Research |

50th Anniversary of the Recognition of Normal Pressure Hydrocephalus

March 10, 2014

March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia.

HA and the Rudi Schulte Research Institute Announce a New Research Venture

January 28, 2014

The Hydrocephalus Association and the Rudi Schulte Research Institute (RSRI) announce a joint research venture with Dr. Mark Wagshul.

Medical Advisory Board Member on Research Team to Investigate Long-Term Outcomes of TBI

December 5, 2013

Dr. Richard Ellenbogen, a UW neurosurgeon and a member of the Hydrocephalus Association Medical Advisory Board, will serve as a principal investigator on a two-year, $2.4 million study looking into the long-term implications of damage to the brain caused by TBI, funded by Seattle Seahawks owner and Microsoft Co-founder, Paul Allen.

Research UPDATE: Preventing Hydrocephalus in Premature Infants

November 7, 2013

In a study published in the journal Brain, researchers find that the infusion of a naturally occurring protein can prevent the development of hydrocephalus after an intraventricular hemorrhage. The results show great promise in the work to develop a preventive therapy for the development of hydrocephalus, particularly in one of our most fragile populations, premature infants.

Looking Back…Moving Forward: Advancing the Research Mission

November 6, 2013

As the Hydrocephalus Association continues it’s 30th anniversary commemoration, David Browdy, Board Member and Chair of the Research Committee, reminisces about the history of the association and shares a vision for the future.

Insight into the Hydrocephalic Brain Using Diffusion Tensor Imaging

September 19, 2013

The Hydrocephalus Association aims to help our community understand the latest findings coming out of the hydrocephalus research community. In this blog, we summarize a study about Diffusion Tensor Imaging (DTI) and pediatric hydrocephalus.

Research UPDATE: Exploring Alternative Treatments

September 12, 2013

In our third installment of the Mentored Young Investigator (MYI) blog series, we showcase 2009…

HCRN Update: Shunt Infection Risk and Treatment in Children

August 29, 2013

Dr. Tamara Simon discusses her work as the Principal Investigator for the shunt infection registry for the Hydrocephalus Clinical Research Network. Her study aims to understand the risk factors associated with shunt infection and how shunt infections are being treated.

Looking Back…Moving Forward: The Need to Value Shunt Management

August 21, 2013

As the Hydrocephalus Association continues our 30th anniversary interview series, Ann Marie Flannery, M.D., shares her thoughts on young adults transitioning to adult neurological care and issues a call to action for society to value the management of shunts and the individuals living with them.

HCRN Update: Biomarkers in Post Hemorrhagic Hydrocephalus

June 25, 2013

Dr. David Limbrick discusses his current research study which aims to develop a complementary tool to supplement the information from imaging in order to determine the best time to treat infants with post hemorrhagic hydrocephalus.

HA Established Investigator Publishes Research Findings on Congenital Hydrocephalus

June 6, 2013

James P. (Pat) McAllister, PhD, Director of Basic Hydrocephalus Research at the University of Utah and a Hydrocephalus Association Established Investigator grantee, has had his research findings related to congenital hydrocephalus published in the journal, Cell and Tissue Research.

HCRN Update: Shunt Outcomes in Post Hemorrhagic Hydrocephalus

April 18, 2013

In a new Research Department blog series, HCRN Update, Ashly Westrick interviews Dr. Jay Wellons, principal HCRN investigator for the Shunt Outcomes in Post Hemorrhagic Hydrocephalus study.

President Announces Funding for BRAIN Initiative

April 3, 2013

President Obama announced that he is proposing $100 million in federal research dollars toward a brain mapping initiative that will ultimately open the door to better treatment options for many brain conditions, including traumatic brain injuries, Alzheimer’s disease, and stroke.

Research UPDATE: Investigating Alternative Treatment Options for Hydrocephalus

March 14, 2013

The Hydrocephalus Association (HA) Research Department update focuses on the research of Dr. Sonia Podvin who aims to develop safe, specific drugs to treat hydrocephalus. She is the recipient of a Mentored Young Investigator (MYI) award from HA.

Research UPDATE: Genetic Mutation Found as a Cause of Neonatal Hydrocephalus

March 7, 2013

A recent study has shown that a specific type of neonatal hydrocephalus can be caused by defects in cellular signaling pathways. The study, out of the University of Iowa, is being led by Val C. Sheffield, MD, Ph.D, and his research team using a mouse model of Bardet-Biedl syndrome (BBS). BBS is a rare disorder that can cause hydrocephalus, among other conditions.

Looking Back…Moving Forward: Prescribing Success

March 6, 2013

The Hydrocephalus Association’s Medical Advisory Board is comprised of nineteen esteemed medical professionals that work closely with our staff to support the educational needs of our members as well as help guide our research vision. As part of our interview series in commemoration of our 30th anniversary, Ashly Westrick, Research Manager, sits down with Dr. Michael Williams, Medical Advisory Board member and co-chair of our recent national conference, “Getting to the Heart of Hydrocephalus”.