HA Blog
The Challenges of Transitioning to Adult Care
HA has long been aware of inequality in care for children and adults with hydrocephalus, and we are taking steps to bridge the gap.
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2016 Innovator Award Announcement
The Hydrocephalus Association is pleased to announce the funding of three hydrocephalus researchers through the HA Network for Discovery Science (HANDS), Innovator Award.
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Genetic Mutations and their Role in Congenital Hydrocephalus
Hydrocephalus has been shown to have multiple causes, including numerous genetic origins. Dr. Jenna Koschnitzky explores genetic mutations in a three blog series.
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Aging Out of Pediatric Care: A Cautionary Tale
Four. That is how many different hospitals I visited trying to transition from a pediatric to an adult neurosurgery program in the midst of a shunt malfunction.
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Whole Foods Features Cider With A Purpose
Jason Spears and his brother Patrick founded Locus Cider in March of 2015 inspired by real, tough people, a.k.a children with hydrocephalus.
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Student Spotlight: Jamie Wright Advocates For Hydrocephalus Awareness
Imagine having a neurological condition that most people have never heard of. Jamie Wright is on a mission to educate others about hydrocephalus.
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Support the Hydrocephalus Association by Shopping through AmazonSmile!
Did you know that you can use AmazonSmile and support HA while you shop?
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Hydrocephalus Shunt featured on Nike’s Air Max Zero
A hydrocephalus patient of Doernbecher Children’s Hospital designs a hydrocephalus shoe in the annual Doernbecher Freestyle event with Nike.
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2016 Year-In-Review
As we close out yet another banner year, we are grateful for all that we have been able to achieve through the support of our caring community.
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We’re Partnering With The Mighty!
We’re thrilled to announce a new partnership with The Mighty where stories of individuals living with hydrocephalus will be featured.
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Like Father, Like Son: An NPH Journey
One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.
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What Can’t You Live Without?
Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.
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Risk Factors For Posthemorrhagic Hydrocephalus
Learn about how Dr. Hannah Tully is uncovering risk and protective factors associated with the development of PHH, and the results of a large retrospective study she recently presented.
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Announcing Our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
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Announcing Our 2016 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Scholarship Recipients.
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Mary Decker Mentorship Award: Call for Nominations
Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!
Read MoreSeattle Neurologist Honored for 18 Years of Service to Patients with Debilitating Brain Condition
Dr. Michael A. Williams received the Leadership Award by the Hydrocephalus Association to honor his career dedicated to caring for patients with hydrocephalus.
Read MoreFamilies Unite with Scientists to Prevent Leading Cause of Brain Surgery in Children
The Hydrocephalus Association’s annual Vision Dinner will serve as the catalyst for a focused research…
Read MoreHydrocephalus Mom Fights to Change Pennsylvania Truancy Law
Ashley Mantheiy, who has two sons with hydrocephalus, has worked with State politicians to introduce the Student Medical Leave Act of PA 2016.
Read MoreHydrocephalus Association Converges on Capitol Hill for Rally for Medical Research Hill Day to Advocate for Increased Funding for the National Institutes of Health (NIH)
The Hydrocephalus Association joins more than 300 organizations to ask Congress to provide robust, sustained, and predictable budget increases for the NIH
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