HA Blog |

Team Hydro’s Commitment to Curing Hydrocephalus Receives National Attention

September 15, 2016

Featured in Forbes, Team Hydro, now in it’s ninth year, has raised $546,335 for hydrocephalus research.

Sixteen States Join Congress in Declaring September Hydrocephalus Awareness Month

September 1, 2016

Sixteen states joined Congress in declaring September as Hydrocephalus Awareness Month.

Happy 10th Anniversary to the Hydrocephalus Clinical Research Network!

August 29, 2016

The Hydrocephalus Clinical Research Network celebrates 10 years of pursuing impactful research into childhood hydrocephalus.

Chicago Neurosurgeon Announced as Medical Honoree of the Chicago Hydrocephalus Association WALK

August 24, 2016

Arthur DiPatri, MD, a neurosurgeon, will be honored at Chicago WALK to End Hydrocephalus.

Hydrocephalus Mom Fights to Change Pennsylvania Truancy Law

August 18, 2016

The Mantheiy family is fighting to change truancy law in Pennsylvania for chronically ill children, like their son who has hydrocephalus.

Device Currently in Clinical Trials May Delay the Need for Emergency Shunt Surgery

August 11, 2016

ReFlow System by Alcyone Lifesciences, Inc., currently in clinical trials, may prevent the need for an immediate emergency shunt revision for patients with hydrocephalus.

HA Convenes the First International Workshop on Posthemorrhagic Hydrocephalus

August 4, 2016

Workshop on Posthemorrhagic Hydrocephalus (PHH) proves the potential for researchers to alter the course of the development of hydrocephalus and its long-term outcomes.

Hydrocephalus Receives National Attention

July 27, 2016

TLC aired a feature piece on ‪hydrocephalus that featured three families – Roona in India, Lyndos in Uganda, and Parker in Oklahoma.

Why I WALK – For a Better Tomorrow

June 27, 2016

The WALK has become so important to me because I know how it feels to be alone and confused after being diagnosed with hydrocephalus.

Splash Into Summer Fun with Summer Camp

May 16, 2016

Summer is right around the corner. Where will you child go to summer camp this year? A young adult from our community offers some insight and tips.

Why I WALK to Raise Hydrocephalus Awareness

May 10, 2016

“…the likelihood of fraternal twins being born with the same variation of hydrocephalus was extremely rare.” One dad shares his story and the inspiration behind raising awareness.

FDA Clears MRI-Compatible Shunt System by Medtronic

May 9, 2016

The Food and Drug Administration cleared Medtronic’s new StrataMR™ valve and shunt system for use in the United States.

An Invisible Medical Condition and a Handicap Placard

April 13, 2016

Sometimes a disability is not readily visible. A mom shares her experience advocating for her daughter with hydrocephalus to a stranger in a parking lot.

Hawk and Why I WALK

April 6, 2016

A member of the hydrocephalus community reflects on the birth of his son with hydrocephalus and how it has affected his life.

Seattle area-based Cider Company Partners with National Patient Advocacy Organization to Raise Awareness for Incurable Brain Condition

March 28, 2016

Locust Cider founder, Jason Spears, announces a partnership with the Hydrocephalus Association to raise awareness and funds for education and research.

Cerebral Palsy Benefits from Hydrocephalus Research

March 25, 2016

On National Cerebral Palsy Awareness Day, the Hydrocephalus Association is proud to support the Cerebral Palsy Research Network.

Inspiring 26 Miles: A Posse of Penguins Take On the LA Marathon

March 8, 2016

Inspired by her cousin, Jessica, and her journey with hydrocephalus, Katie, along with other family members, set out to run the LA Marathon in Jessica’s honor.

That Feeling of Helplessness

February 19, 2016

One mom openly and honestly shares the many emotions that challenge parents of children living with hydrocephalus.

Overcoming Bullying through a Passion for Sports

February 8, 2016

Bryant found sports to help him get through being bullied because of his hydrocephalus. He challenges us to each find our own passion and let it grow our individual confidence and resilience.