HA Blog
Team Hydro’s Commitment to Curing Hydrocephalus Receives National Attention
Featured in Forbes, Team Hydro, now in it’s ninth year, has raised $546,335 for hydrocephalus research.
Read MoreSixteen States Join Congress in Declaring September Hydrocephalus Awareness Month
Sixteen states joined Congress in declaring September as Hydrocephalus Awareness Month.
Read MoreHappy 10th Anniversary to the Hydrocephalus Clinical Research Network!
The Hydrocephalus Clinical Research Network celebrates 10 years of pursuing impactful research into childhood hydrocephalus.
Read MoreChicago Neurosurgeon Announced as Medical Honoree of the Chicago Hydrocephalus Association WALK
Arthur DiPatri, MD, a neurosurgeon, will be honored at Chicago WALK to End Hydrocephalus.
Read MoreHydrocephalus Mom Fights to Change Pennsylvania Truancy Law
The Mantheiy family is fighting to change truancy law in Pennsylvania for chronically ill children, like their son who has hydrocephalus.
Read MoreDevice Currently in Clinical Trials May Delay the Need for Emergency Shunt Surgery
ReFlow System by Alcyone Lifesciences, Inc., currently in clinical trials, may prevent the need for an immediate emergency shunt revision for patients with hydrocephalus.
Read MoreHA Convenes the First International Workshop on Posthemorrhagic Hydrocephalus
Workshop on Posthemorrhagic Hydrocephalus (PHH) proves the potential for researchers to alter the course of the development of hydrocephalus and its long-term outcomes.
Read MoreHydrocephalus Receives National Attention
TLC aired a feature piece on hydrocephalus that featured three families – Roona in India, Lyndos in Uganda, and Parker in Oklahoma.
Read MoreWhy I WALK – For a Better Tomorrow
The WALK has become so important to me because I know how it feels to be alone and confused after being diagnosed with hydrocephalus.
Read MoreSplash Into Summer Fun with Summer Camp
Summer is right around the corner. Where will you child go to summer camp this year? A young adult from our community offers some insight and tips.
Read MoreWhy I WALK to Raise Hydrocephalus Awareness
“…the likelihood of fraternal twins being born with the same variation of hydrocephalus was extremely rare.” One dad shares his story and the inspiration behind raising awareness.
Read MoreFDA Clears MRI-Compatible Shunt System by Medtronic
The Food and Drug Administration cleared Medtronic’s new StrataMR™ valve and shunt system for use in the United States.
Read MoreAn Invisible Medical Condition and a Handicap Placard
Sometimes a disability is not readily visible. A mom shares her experience advocating for her daughter with hydrocephalus to a stranger in a parking lot.
Read MoreHawk and Why I WALK
A member of the hydrocephalus community reflects on the birth of his son with hydrocephalus and how it has affected his life.
Read MoreSeattle area-based Cider Company Partners with National Patient Advocacy Organization to Raise Awareness for Incurable Brain Condition
Locust Cider founder, Jason Spears, announces a partnership with the Hydrocephalus Association to raise awareness and funds for education and research.
Read MoreCerebral Palsy Benefits from Hydrocephalus Research
On National Cerebral Palsy Awareness Day, the Hydrocephalus Association is proud to support the Cerebral Palsy Research Network.
Read MoreInspiring 26 Miles: A Posse of Penguins Take On the LA Marathon
Inspired by her cousin, Jessica, and her journey with hydrocephalus, Katie, along with other family members, set out to run the LA Marathon in Jessica’s honor.
Read MoreThat Feeling of Helplessness
One mom openly and honestly shares the many emotions that challenge parents of children living with hydrocephalus.
Read MoreISHCSF Highlights HCRN Studies on Shunt Failure and Infection
ISHCSF newsletter highlights Hydrocephalus Clinical Research Network (HCRN) studies around hydrocephalus shunt infection rates and risk factors.
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