Life with Hydrocephalus

Maximizing Your Doctor Appointments: Tips, Tools, and Insights

December 5, 2024

Doctor appointments can be overwhelming, but preparation is the key to making them count. This article offers practical tips, trusted resources, and insights from those living with hydrocephalus to help you take charge of your healthcare journey and get the answers you need.

The Power of a Second Opinion: Advocating for Your Health

December 2, 2024

Even though second opinions are a common and accepted practice in medicine, many people feel uncomfortable asking for them.

Breaking Myths About Hydrocephalus: What’s Fact and What’s Fiction?

November 25, 2024

Hydrocephalus is often misunderstood, with myths overshadowing the realities of this invisible condition. This blog breaks down common misconceptions, highlights the facts, and sheds light on the challenges faced by those living with hydrocephalus, proving that what you see on the outside doesn’t always reflect the struggles within.

Understanding Cerebral/Cortical Visual Impairment (CVI) and Hydrocephalus: How Vision Can Be Affected

November 19, 2024

Cerebral Visual Impairment (CVI) affects how the brain processes visual information. This article highlights the link between CVI and hydrocephalus, its impact on vision, and ways to support those affected.

Strategies for Coping with Memory Issues and Forgetfulness

November 19, 2024

Memory challenges can impact daily life in many ways, whether they’re related to managing medical conditions like hydrocephalus or are part of the natural aging process. Here are some practical strategies, tools, and resources to help manage forgetfulness and enhance your memory.

What to Ask Your Doctor about NPH

May 23, 2024

Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

What to Ask Your Doctor about Young and Middle-Age Adults with Hydrocephalus

May 23, 2024

Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

What to Ask Your Doctor about Teens with Hydrocephalus

May 23, 2024

Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

What to Ask Your Doctor About Infants and Children with Hydrocephalus

May 23, 2024

Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

Coping with Hospital Stays

February 12, 2024

If you have hydrocephalus, the hospital may be a very familiar place. Learn tips and tools on how to cope with hospitalizations.

Medical Alert IDs and Hydrocephalus

January 24, 2024

Without proper ID of a medical condition, common symptoms can be misdiagnosed and appropriate care could be jeopardized or delayed. Learn more about Medical Alert IDs.

How to be an Assertive Member of the Treatment Team

January 23, 2024

People with hydrocephalus and their caregivers are highly encouraged to become active, assertive members of their treatment team.

Sending your Child to Daycare

December 30, 2023

Sending off a child to daycare is scary on its own. We have developed a checklist to help you prepare.

Bullying and Hydrocephalus

December 1, 2023

Bullying. We hold on to the 1950s image of the big kid on the playground taunting, name-calling, pushing, and intimidating other children.

Driving and Hydrocephalus

November 23, 2023

Driving is often seen as a rite of passage into adulthood. However, it’s not uncommon for individuals with hydrocephalus to experience challenges.

Post-surgical Depression

August 8, 2023

There’s one surgical complication that is seldom if ever, mentioned before or after surgery, post-surgical depression. Learn more.

Living With NPH Part 2: Tips for Living With NPH

May 30, 2023

Frank Salamone shares tips for living with normal pressure hydrocephalus (NPH).

Living With NPH Part 1: Trying to Make Peace With a “New Normal”

May 28, 2023

Frank Salamone, L.C.S.W. is living with NPH and shares his story.

What I Know Now: Tips to Prepare for Shunt Surgery

September 23, 2022

If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!

Brainy Camps and Camp Headstrong are Back This Year!

March 16, 2022

The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.