Life with Hydro
What to Ask Your Doctor about Young and Middle-Age Adults with Hydrocephalus
Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.
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Scout O’Donnell: Using Fashion to Help Others Heal
After being diagnosed with hydrocephalus at 18, Scout O’Donnell found a way to combine her two passions — fashion and finding a cure for hydrocephalus.
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The Day-to-Day of Headaches and Hydrocephalus
Living with hydrocephalus means living with headaches. In his latest post, Dan discusses headaches, weather changes, and the importance of knowing your body.
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High School Student Educates Others about Hydrocephalus
Mauryce Thomas organized an event in Mobile, AL to educate his community about hydrocephalus. The event raised awareness and $1,320 to support HA’s mission!
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New Ask the Expert Video Series for Adults Living with Hydrocephalus
Check out our latest Ask the Expert Video Series developed specifically for adults living with hydrocephalus. The series answers some of the most common questions we receive to our support line.
Read MoreTwo Sons, Two Brain Disorders, 18 Brain Surgeries
Houston family hopes to raise money for a cure at the WALK to End Hydrocephalus…
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HydroWarrior Makes His Car Racing Dreams a Reality
Mark Dingman has been a NASCAR fan for as long as he can remember. But he never thought he would ever get to drive a race car. That all changed when he discovered the SimPossible Racing League.
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Sevi: A Story of Hope and Brotherly Love
When Sevi was first diagnosed with hydrocephalus, Tiana and Pete Chavez remember feeling terrified. But their fear quickly turned into a desire to help other children in need.
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Wyatt: Meeting Adversity with Joy
Wyatt Foster was born with Spina Bifida and hydrocephalus and has already endured six surgeries before turning 3. Despite that, Wyatt brings joy to everyone he meets and pushes himself to achieve his milestones.
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Finding Life’s Purpose Through Hydrocephalus
James “JT” Thompson developed hydrocephalus as a teen. Little did he know that his experience would help him find his purpose in life.
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Surviving College with the Ups and Downs of Hydrocephalus
College is an exciting time but can be challenging when you’re living with hydrocephalus. Here are some tips to survive college while managing the ups and downs of hydrocephalus.
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Extracurricular Activities and Hobbies: The Positive Effect They Have for Individuals with Disabilities
People with disabilities can benefit greatly by taking part in hobbies and extracurricular activities. Here are some tips to help you identify the activity that’s right for you.
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My Incredible Experience at Camp Head Strong
I spent six days and five nights as a counselor at Camp Head Strong, the very first camp for kids with hydrocephalus. This was the second year of the camp, and judging by everyone’s excitement, I think it was the most successful camp of all!
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Post-surgical Depression
You are on the road to recovery after yet another surgery but suddenly you find yourself unable to focus. One minute you are sitting at your computer working and the next thing you know you are thinking back to being in the hospital and suddenly you are overwhelmed by emotion.
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Balance Therapy Tips for NPH Patients
A few months ago, I noticed that my balance was deteriorating so I mentioned it to my GP at my annual physical. He immediately ordered a CT scan and more Physical Therapy.
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Exercise Tips for NPH patients
Trish recommends finding an activity to help you challenge both your mind and body and have fun while doing it! Read more about her exercise tips for NPH patients.
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