Life with Hydrocephalus
Driving and Hydrocephalus
Driving is often seen as a rite of passage into adulthood. However, it’s not uncommon for individuals with hydrocephalus to experience challenges.
Post-surgical Depression
There’s one surgical complication that is seldom if ever, mentioned before or after surgery, post-surgical depression. Learn more.
Living With NPH Part 2: Tips for Living With NPH
Frank Salamone shares tips for living with normal pressure hydrocephalus (NPH).
Living With NPH Part 1: Trying to Make Peace With a “New Normal”
Frank Salamone, L.C.S.W. is living with NPH and shares his story.
What I Know Now: Tips to Prepare for Shunt Surgery
If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!
Brainy Camps and Camp Headstrong are Back This Year!
The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.
The Importance of a Support System
Living with hydrocephalus can feel overwhelming at times. That’s why building a strong support system is so important. Our team of trained professionals is here to help! Our staff will listen to your concerns and connect you with helpful resources.
Hydrocephalus and Independence
By Madeleine Darowiche, HA Volunteer So, you’re considering living on your own for the first…
A Mystery Disease: One Woman’s Struggle to Get Diagnosed with NPH
Merlin Bott woke up one morning in October 2013 with a severe case of vertigo. It quickly got worse and soon, she became so dehydrated that she had to be hospitalized. Finally after 29 harrowing days in the hospital, she was told she needed brain surgery.
Get on the Right Career Track
When choosing a career, college major, or educational program, it’s important to take the time to explore your options.
Sophia Gigante: Finding Strength from Within
Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.
Dorothy Sorlie: A Teacher’s Unbreakable Spirit
Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.
Your Healthcare Team
Living well with hydrocephalus often requires a team of healthcare providers. Together, you’ll monitor your condition.
Living Independently
Hydrocephalus can affect your independence and day-to-day needs, and there are additional considerations to keep in mind. Learn more about living independently and hydrocephalus.
Scout O’Donnell: Using Fashion to Help Others Heal
After being diagnosed with hydrocephalus at 18, Scout O’Donnell found a way to combine her two passions — fashion and finding a cure for hydrocephalus.
The Day-to-Day of Headaches and Hydrocephalus
Living with hydrocephalus means living with headaches. In his latest post, Dan discusses headaches, weather changes, and the importance of knowing your body.
High School Student Educates Others about Hydrocephalus
Mauryce Thomas organized an event in Mobile, AL to educate his community about hydrocephalus. The event raised awareness and $1,320 to support HA’s mission!
New Ask the Expert Video Series for Adults Living with Hydrocephalus
Check out our latest Ask the Expert Video Series developed specifically for adults living with hydrocephalus. The series answers some of the most common questions we receive to our support line.
Two Sons, Two Brain Disorders, 18 Brain Surgeries
Houston family hopes to raise money for a cure at the WALK to End Hydrocephalus…
HydroWarrior Makes His Car Racing Dreams a Reality
Mark Dingman has been a NASCAR fan for as long as he can remember. But he never thought he would ever get to drive a race car. That all changed when he discovered the SimPossible Racing League.