Life with Hydro
Interview with Olivia Bell, Cognitive Therapist – Part 2
This part of the interview touches on neuropsychology, debunking some misunderstandings about cognitive therapy (CT), some advice Olivia had for NPH patients and spreading the word about CT.
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Interview with Olivia Bell, Cognitive Therapist – Part 1
This is the first part of Trish’s interview with cognitive therapist Olivia Bell. It covers who benefits from CT, how to find a therapist, and how to get the most out of the therapy appointments.
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How I Decided to have Shunt Surgery
Trish was diagnosed with NPH in 2015 and had shunt surgery then. Thanks to the surgery and several kinds of therapy, Trish is now back to doing what she loves, including a killer step aerobics class at her gym and singing with her husband in a community chorus
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Hydrocephalus and Sleep
Sarah has a passion for improving her and other’s sleep quality. Having suffered from sleep deprivation and feeling the effects across her entire life, she realized the importance of optimizing her sleep.
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Physical Therapy Tips for NPH Patients
By the time Trish was diagnosed with NPH and had shunt surgery, she had lost her ability to walk unaided, so her neurosurgeon gave her a prescription for physical therapy.
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Cognitive Therapy for NPH Patients
If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.
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En Garde! The Sport of Fencing and Hydrocephalus
Jonathan, who lives with spina bifida and hydrocephalus, shares discovering fencing as a form of exercise and competition.
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What Can’t You Live Without?
Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.
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Overcoming Bullying through a Passion for Sports
Bryant found sports to help him get through being bullied because of his hydrocephalus. He challenges us to each find our own passion and let it grow our individual confidence and resilience.
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Navigating Social Interactions Growing Up with Hydrocephalus
In Dan’s new blog, he talks about growing up with a chronic medical condition and navigating social interactions with his school peers.
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From 0 to 60: Driving and Hydrocephalus
For teenagers, learning to drive and getting a license is an important rite of passage. Having hydrocephalus adds a layer of complexity to the learning process.
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Never Give Up
Ariel Yong follows up on the topic of our recent video blog by Debby Buffa about kids with hydrocephalus playing sports by talking about the lessons she learned as an athlete.
Read MoreTeen Voices: Hydrocephalus has Changed My Life
I am amazed at how hydrocephalus has changed my life…but I would not change it. Here is my story. Within weeks of my birth the doctor expressed concerns about the amount of growth of my head. My parents were referred to a neurologist who diagnosed me with communicating hydrocephalus
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Making Life Happen: Living Life with Spina Bifida and Hydrocephalus
Meet Luke Russell, a freshman at the University of Wisconsin-Whitewater who plans to major in marine biology with either a second major or a minor in psychology. He has spina bifida and hydrocephalus.
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