Life with Hydrocephalus
What to Ask Your Doctor about NPH
Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.
What to Ask Your Doctor about Young and Middle-Age Adults with Hydrocephalus
Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.
What to Ask Your Doctor about Teens with Hydrocephalus
Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.
What to Ask Your Doctor About Infants and Children with Hydrocephalus
Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.
Coping with Hospital Stays
If you have hydrocephalus, the hospital may be a very familiar place. Learn tips and tools on how to cope with hospitalizations.
Medical Alert IDs and Hydrocephalus
Without proper ID of a medical condition, common symptoms can be misdiagnosed and appropriate care could be jeopardized or delayed. Learn more about Medical Alert IDs.
How to be an Assertive Member of the Treatment Team
People with hydrocephalus and their caregivers are highly encouraged to become active, assertive members of their treatment team.
Sending your Child to Daycare
Sending off a child to daycare is scary on its own. We have developed a checklist to help you prepare.
Bullying and Hydrocephalus
Bullying. We hold on to the 1950s image of the big kid on the playground taunting, name-calling, pushing, and intimidating other children.
Driving and Hydrocephalus
Driving is often seen as a rite of passage into adulthood. However, it’s not uncommon for individuals with hydrocephalus to experience challenges.
Post-surgical Depression
There’s one surgical complication that is seldom if ever, mentioned before or after surgery, post-surgical depression. Learn more.
Living With NPH Part 2: Tips for Living With NPH
Frank Salamone shares tips for living with normal pressure hydrocephalus (NPH).
Living With NPH Part 1: Trying to Make Peace With a “New Normal”
Frank Salamone, L.C.S.W. is living with NPH and shares his story.
What I Know Now: Tips to Prepare for Shunt Surgery
If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!
Brainy Camps and Camp Headstrong are Back This Year!
The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.
The Importance of a Support System
Living with hydrocephalus can feel overwhelming at times. That’s why building a strong support system is so important. Our team of trained professionals is here to help! Our staff will listen to your concerns and connect you with helpful resources.
Hydrocephalus and Independence
By Madeleine Darowiche, HA Volunteer So, you’re considering living on your own for the first…
A Mystery Disease: One Woman’s Struggle to Get Diagnosed with NPH
Merlin Bott woke up one morning in October 2013 with a severe case of vertigo. It quickly got worse and soon, she became so dehydrated that she had to be hospitalized. Finally after 29 harrowing days in the hospital, she was told she needed brain surgery.
Get on the Right Career Track
When choosing a career, college major, or educational program, it’s important to take the time to explore your options.
Sophia Gigante: Finding Strength from Within
Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.