From the Association
Patient Engagement: A Key Healthcare Priority
HA staff recently attended the National Health Council’s (NHC) Science of Patient Engagement Symposium. The event, hosted in Washington, D.C., brought together an array of patients and patient organizations to speak on the importance of patient-centered programs and policies within the American healthcare system.
Get the Hydrocephalus Scoop on Capitol Hill | May 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Ways to Fund and Save for HA CONNECT
Join us at HA CONNECT, the National Conference on Hydrocephalus, in Tampa, FL from July 25-27, 2024. To help manage costs, we’ve created a tip sheet to assist with securing financial support for travel and accommodations.
Advancing Engineering Solutions for Hydrocephalus
As part of its strategic plan, HA’s research team expanded its network to include bioengineers, inspiring a new generation to drive device innovation for hydrocephalus—leading to the Engineering Roadshow!
Get the Hydrocephalus Scoop on Capitol Hill for April 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Advancing Hydrocephalus Research and Treatment Options: Non-Invasive Therapy Research Workshop
More than 75 experts in hydrocephalus gathered in Cincinnati, OH for the 2024 Research Workshop focused on finding ways to better treat hydrocephalus, aiming to make treatments safer and less invasive.
Grey’s Anatomy Airs Episode on Congenital Hydrocephalus Performing Endoscopic Third Ventriculostomy (ETV)
Hydrocephalus in Pop Culture Sierra SPEAKS OUT HA’s Support & Education Program Assistant A Review:…
Hydrocephalus Scoop on Capitol Hill for March 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues. (March 2024)
Kim Apurado Awarded Prestigious Mary Decker Mentorship Award
Kim Apurado has been awarded the prestigious Mary Decker Mentorship Award. This accolade, open to all AANN members, celebrates neuroscience nurses who exemplify excellence in mentoring.
Hydrocephalus Association Congressional Briefing on Capitol Hill
The Hydrocephalus Association recently partnered with the Defense Health Research Consortium (DHRC) to host a research-centered Congressional Briefing on Capitol Hill.
Revolutionary Women in Hydrocephalus Research – Dr. Blazer-Yost
Celebrate Influential Leaders during National Women’s History Month. Dr. Blazer-Yost, scientist and medical researcher is making strides for hydrocephalus.
Hydrocephalus Association Highlights Revolutionary Women in Medical Research
Celebrate Influential Leaders during National Women’s History Month. Dr. Robinson & Dr. Jantzie are both revolutionary women making strides for hydrocephalus
Get the Hydrocephalus Scoop on Capitol Hill for February 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Hydrocephalus Association Unites Advocates for 2024 Rare Disease Week
Members from the Hydrocephalus Association Action Network came to Washington, DC, to participate in the Everylife Foundation for Rare Disease’s Rare Disease Week, which took place from February 25-28, 2024.
Get the Hydrocephalus Scoop on Capitol Hill for January 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
The Hydrocephalus Scoop on Capitol Hill for December 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Dr. Peter Chiarelli Receives the Hydrocephalus Association Cynthia Solomon Resident’s Prize for Noninvasive Shunt Function Assessment Method
The Resident’s prize is awarded each year to the most promising hydrocephalus-related research paper presented by a neurosurgical resident at the Pediatric Section meeting of the AANS/CNS. The prize is designed to encourage young doctors to focus their research efforts on advancing treatment and care of individuals with hydrocephalus.
Coast to Coast for Hydrocephalus – An Amazing Family’s Journey
On November 17, 2023, the Touchberry Family embarked on an extraordinary journey, setting out on a cross-country drive in their century-old Model T Ford—a symbolic quest aimed at raising awareness and crucial funding for hydrocephalus.
The Hydrocephalus Scoop on Capitol Hill for November 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
WALK to End Hydrocephalus 2023 Season Recap
Thanks to the Hydrocephalus Association’s wonderful volunteers, 40 WALKS were held across the U.S., with nearly 7,000 participants representing over 800 teams.