I have hydrocephalus

I was born with an eye condition called Congenital Toxoplasmosis. During the 1970’s doctors did not know much about the Toxoplasmosis condition. However they now know this condition does more damage to the body than just the eyes

An MRI in January 2016 revealed a break in the catheter and I prepared myself for surgery number 5 in one year!

I am so blessed to have such a diagnosis. It makes me appreciate the good days, and makes me realize how valuable and precious health truly is.

I view the challenges I have faced as an avenue for opportunity.

Congenital hydrocephalus
Receptionist/Secretary

Sandy was diagnosed with hydrocephalus when she was 12, but not treated until she was 18. She is in the group of first generation hydrocephalus survivors!

Edgar was diagnosed with communicating hydrocephalus as a child.

Brianna was born with hydrocephalus and Dandy Walker Syndrome. With aspirations to become a doctor, Brianna refuses to let hydrocephalus run her life.

Robert was diagnosed with hydrocephalus at two weeks of age.

Melinda was diagnosed with congenital hydrocephalus at the age of 18. In the summer of 2013, her symptoms escalated to having migraines every day, urinary incontinence, vomiting, and severe neck pain.

Jessie acquired hydrocephalus from a brain bleed and she has decided to share her story in the hopes that by talking, we can end the negative stigma around differently-abled people.

Danielle was diagnosed with hydrocephalus at 18 months old.

Diane was born with hydrocephalus. She is now a 5th grade teacher.

Matthew acquired hydrocephalus from a brain bleed. Currently, he is a security officer and he is married with 5 kids. He is working and accomplishing things that doctors thought would not be possible.

Greg has congenital hydrocephalus and is a manager at a bank. Hydrocephalus is part of who he is and it changes the way he does certain things, but he does not let the condition define who he is as a person.

Carly acquired hydrocephalus from a brain bleed. She says that shunts quit; she doesn’t!