I have hydrocephalus

Ryan lived most of his life unaware he had hydrocephalus. After years of misdiagnoses, one neurosurgeon’s insight saved his life and changed his story.

Delrina was diagnosed with hydrocephalus at age 2. Despite multiple surgeries and daily headaches, she’s grown into a leader, advocate, and lifelong learner.

Diagnosed with hydrocephalus at 8 months, Margie defied the odds. Now 32, she climbs mountains, hosts a podcast, and proves she’s more than able.

Alia, born with hydrocephalus, endured years of complex surgeries. With faith and family by her side, she’s overcome the odds and continues to inspire.

Diagnosed with congenital hydrocephalus before birth, Jessica has had over 150 surgeries, but found strength and purpose through volunteering and advocacy.

From overcoming medical hurdles in Brazil to pursuing a degree in medicine, Marcio’s hydrocephalus journey is one of resilience, perseverance, and hope.

Diagnosed at 8, Janay has endured 200+ shunt revisions. Now, she’s advocating, supporting others, and refusing to let hydrocephalus define her.

Sarah was diagnosed with hydrocephalus at four months, facing surgeries and challenges. Now a mother, she lives each day with strength and purpose.

Ayana was diagnosed with hydrocephalus at age 12.Through 15 brain surgeries, she found strength, hope, and purpose.

Born in the late 1960s, Bill faced early challenges with hydrocephalus but went on to earn a master’s degree, teach, and become a parent, grateful for his stability while recognizing every journey is unique.

Dereck’s journey with hydrocephalus has made him resilient, navigating over 500 surgeries and countless challenges. Despite unexpected turns, he finds fulfillment in volunteering and inspiring hope in others.