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What to Ask Your Doctor About Infants and Children with Hydrocephalus
Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.
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Medical History Summary
Fill out this form to keep track of your medical history and other vital information regarding your health. Keep a printed copy always with you.
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Coping with Hospital Stays
If you have hydrocephalus, the hospital may be a very familiar place. Learn tips and tools on how to cope with hospitalizations.
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Medical Alert IDs and Hydrocephalus
Without proper ID of a medical condition, common symptoms can be misdiagnosed and appropriate care could be jeopardized or delayed. Learn more about Medical Alert IDs.
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How to be an Assertive Member of the Treatment Team
People with hydrocephalus and their caregivers are highly encouraged to become active, assertive members of their treatment team.
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Teacher’s Guide: Early Elementary (K-2nd)
Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.
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Teacher’s Guide: Late Elementary (Grades 3-5)
Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.
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Teacher’s Guide to Hydrocephalus: High School
Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.
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Teachers’ Guide: Middle School (6th-8th)
Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.
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Health Challenges and School
Hydrocephalus, as well as the other medical conditions that can accompany it, can have an impact on a child’s ability to participate fully in school.
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Toolkit for Transitioning Medical Care
Working with both pediatric and adult providers, we have developed a tool for you to use to help ensure a smooth transition of care.
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Timeline for a Successful Transition to Adult Care
Mapping out a path to taking over your medical care once you are of legal age and/or ready to move away from home will help you have a successful transition into the adult medical world.
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Primary Care Needs of Children with Hydrocephalus
Children with hydrocephalus may have life-long special health needs. It’s key that caregivers understand hydrocephalus to provide the right primary healthcare.
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Learning Disabilities in Children with Hydrocephalus
Learning disabilities (difficulties) are not uncommon in kids with hydrocephalus. Parents must be prepared to act early to give their child the best chance for success.
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Sending your Child to Daycare
Sending off a child to daycare is scary on its own. We have developed a checklist to help you prepare.
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Social Skills Development in Children with Hydrocephalus
Some kids with hydrocephalus face difficulty developing their social skills. This article talks about those difficulties and suggests tools for overcoming them.
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Individualized Education Program (IEP)
Guidance for parents so they can learn how to develop and maintain good communication between with school personnel.
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Bullying and Hydrocephalus
Bullying. We hold on to the 1950s image of the big kid on the playground taunting, name-calling, pushing, and intimidating other children.
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Driving and Hydrocephalus
Driving is often seen as a rite of passage into adulthood. However, it’s not uncommon for individuals with hydrocephalus to experience challenges.
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Video: About Hydrocephalus
Our video simplifies and explains what hydrocephalus is, showcases the treatment options, and highlights the key symptoms to look out for in case of complications. Take a minute to watch and expand your understanding like never before!
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