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Shuntogram

Understanding a Shuntogram (Shunt Patency Study)

January 14, 2025

A shuntogram, or shunt patency study, checks if a shunt is working properly by tracking fluid flow to identify blockages or leaks.

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Understanding External Ventricular Drains

Understanding External Ventricular Drains (EVDs) in Hydrocephalus Management

January 13, 2025

External Ventricular Drains (EVDs) are crucial for managing hydrocephalus, providing temporary relief and helping treat infections or test shunt effectiveness. Understanding their use can help patients and families feel more confident.

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ICP Monitors in Hydrocephalus, managing hydrocephalus

Understanding Intracranial Pressure (ICP) Monitors in Hydrocephalus: When and Why They’re Used

January 8, 2025

Intracranial pressure (ICP) monitors are essential for managing hydrocephalus, offering real-time insights into intracranial pressure. They help diagnose symptoms, evaluate shunt performance, and guide treatment decisions, empowering patients and families to actively participate in care.

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Guide to Managing Chronic Pain Headaches and Hydrocephalus

Guide to Managing Headaches, Chronic Pain, and Hydrocephalus

January 8, 2025

Chronic pain and headaches can impact every aspect of life, but with the right strategies, relief is possible. This guide offers practical tips for managing symptoms, including tracking with HydroAssist®, staying hydrated, prioritizing sleep, and exploring stress management and alternative therapies to improve daily well-being.

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How to Explain Hydrocephalus to Your Teachers and Friends

How to Explain Hydrocephalus to Your Teachers and Friends

January 3, 2025

Hydrocephalus can be tricky to explain, but keeping it simple helps: Share what’s important for others to know, like when you might need a break, and remember—it’s your story to tell, your way.

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emotional support, relationships and hydrocephalus

Navigating Relationships with Hydrocephalus: Building Strong Connections

December 10, 2024

Navigating relationships with hydrocephalus requires patience, open communication, and mutual support. With understanding and balance, strong connections can thrive beyond the challenges.

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Intimacy and Hydrocephalus: Strengthening Bonds Together

December 10, 2024

Learn how hydrocephalus affects intimacy and find ways to strengthen emotional and physical connections in romantic relationships.

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Maximizing Your Doctor Appointments: Tips, Tools, and Insights

December 5, 2024

Doctor appointments can be overwhelming, but preparation is the key to making them count. This article offers practical tips, trusted resources, and insights from those living with hydrocephalus to help you take charge of your healthcare journey and get the answers you need.

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The Power of a Second Opinion: Advocating for Your Health

December 2, 2024

Even though second opinions are a common and accepted practice in medicine, many people feel uncomfortable asking for them.

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Understanding Cerebral/Cortical Visual Impairment (CVI) and Hydrocephalus: How Vision Can Be Affected

November 19, 2024

Cerebral Visual Impairment (CVI) affects how the brain processes visual information. This article highlights the link between CVI and hydrocephalus, its impact on vision, and ways to support those affected.

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Strategies for Coping with Memory Issues and Forgetfulness, stress reduction

Strategies for Coping with Memory Issues and Forgetfulness

November 19, 2024

Memory challenges can impact daily life in many ways, whether they’re related to managing medical conditions like hydrocephalus or are part of the natural aging process. Here are some practical strategies, tools, and resources to help manage forgetfulness and enhance your memory.

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Communicating hydrocephalus, non-communicating hydrocephalus

Communicating and Non-Communicating Hydrocephalus

October 3, 2024

Communicating hydrocephalus occurs when the flow of cerebrospinal fluid (CSF) is blocked after it exits the ventricles. Non-communicating hydrocephalus occurs when the flow of CSF is blocked along one of or more of the narrow passages connecting the ventricles.

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congenital hydrocephalus

Congenital Hydrocephalus

October 3, 2024

Congenital hydrocephalus is caused by a complex interaction of genetic and environmental factors during fetal development.

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Acquired Hydrocephalus

October 3, 2024

Acquired hydrocephalus develops after birth as a result of neurological conditions such as head trauma, brain tumor, cyst, brain bleed, or infection.

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You or Your Loved One Has Just Been Diagnosed – What’s Next?

October 2, 2024

Have you or a loved one been newly diagnosed with hydrocephalus? We’re here to help you on this journey!

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Just Like Any Other Beagle: Coloring Book

October 1, 2024

This coloring book helps children with hydrocephalus understand the condition through the story of Barney Beagle, making learning fun and engaging for families.

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A Guide for Families

October 1, 2024

We know a new diagnosis can be overwhelming. Our guide offers essential information on hydrocephalus in children, its diagnosis, treatment options, and supportive programs to help your family cope and thrive.

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A Guide for Adults

October 1, 2024

Our guide offers essential information on hydrocephalus, including supportive programs to help your family navigate this journey with confidence!

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What to Ask Your Doctor about NPH

May 23, 2024

Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

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What to Ask Your Doctor about Teens with Hydrocephalus

May 23, 2024

Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

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