Rating
Handling Hard Days with Hydrocephalus: Community Tips
Discover practical tips for managing hard days with hydrocephalus, including self-care, rest, and finding support from the community.
Headaches After Shunt Surgery: What to Expect
Learn why headaches may occur after shunt surgery, what to expect during recovery, which symptoms may indicate a complication, and when to seek medical care.
Hospital Bag Essentials: Tips From the Community
Discover hospital bag essentials and helpful tips from the hydrocephalus community to make your hospital stay more comfortable.
Overdraining and Underdraining with Hydrocephalus: Key Causes, Symptoms, and Solutions
Learn about overdraining and underdraining in hydrocephalus, including symptoms, causes, complications like slit ventricle syndrome, diagnosis, and treatment.
Podcast: Epilepsy and Hydrocephalus with Erin Fecske
In this Hydro Heroes Unite podcast episode, learn about epilepsy and hydrocephalus, including seizures, diagnosis, treatment, and signs of shunt malfunction.
Scalp Thinning After Hydrocephalus Surgery: Causes and Risks
Learn what causes scalp thinning after hydrocephalus surgery, the risks associated with shunt hardware, warning signs to watch for, and treatment options.
Night and Morning Headaches in Hydrocephalus
Learn why hydrocephalus headaches may occur at night or in the morning, how CSF pressure and sleep position affect symptoms, and when to seek medical care.
Podcast: Dare To Be Your Unique Self – Angelica’s Hydro Story
On the Hydro Heroes Podcast, Angelica shares her life with hydrocephalus and why speaking up, being yourself, and respecting differences matter.
Staying Social with NPH: 10 Empowering Tips
Learn practical tips for staying social with normal pressure hydrocephalus (NPH) while managing memory changes, balance issues, fatigue, and other symptoms.
Switching Hydrocephalus Doctors: A Smooth Transition
Learn how to switch hydrocephalus doctors, prepare for planned or unexpected changes, organize your medical history, and maintain continuity of care.
New Hydrocephalus Diagnosis: What to Do Next
Newly diagnosed with hydrocephalus? Learn what to ask, understand treatment, recognize warning signs, prepare for emergencies, and find support.
Essential Facts About Epilepsy and Hydrocephalus
Learn about epilepsy and hydrocephalus, including seizure signs, triggers, risk factors, treatment options, and what to do when a seizure occurs.
Podcast: Navigating IEP and 504 Plans
The Hydro Heroes Podcast explains IEPs and 504 plans, legal protections, and how teens with hydrocephalus can advocate for themselves.
Podcast: School Life, Growing Confidence, and Becoming More Independent: Camille’s Hydro Journey
In this Hydro Heroes Unite podcast episode, hear from Camille, a 15-year-old sharing her experience living with hydrocephalus in her own words.
Podcast: Mental Health and Hydrocephalus with Pediatric Psychologist Dr. Elizabeth McRae
In this Hydro Heroes Unite podcast episode, Dr. Elizabeth McRae discusses teen mental health, family support, and self-advocacy.
Podcast: Understanding the Adolescent Brain and Hydrocephalus with Neuropsychologist Dr. Andy Zabel
In this Hydro Heroes Unite podcast episode, Dr. Andy Zabel explores adolescence and hydrocephalus, neuropsychological evaluations, and more.
Quick Stress Relief Strategies for Overwhelming Days
Stress can make even simple tasks feel impossible. Discover quick stress relief strategies to reduce anxiety, manage overwhelm, and feel more in control.
Spina Bifida and Hydrocephalus: What Families Should Know
Learn how spina bifida and hydrocephalus are connected, including symptoms, treatment, lifelong care, school support, and transition planning.
Hydrocephalus Symptoms That Fluctuate: Coping Without Panic
Hydrocephalus symptoms can fluctuate. Learn how to manage changing symptoms calmly, avoid panicking, and feel more in control of your health.
Middle School with Hydrocephalus: Smart Preparation
Learn how to prepare for middle school with hydrocephalus. Tips for parents and students on independence, school success, and managing health.