Press Releases
Congressman Mike Levin Joins Congressional Hydrocephalus Caucus
Caucus helps families impacted by a brain condition that has no cure. Rep. Mike Levin (CA-49) has joined…
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Congresswoman Cindy Axne Joins Congressional Hydrocephalus Caucus
Caucus helps find solutions for the leading cause of brain surgery in children. Rep. Cindy Axne (IA-3) has…
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Congressman Lloyd Doggett Recognizes September as Hydrocephalus Awareness Month
Raises awareness of the leading cause of brain surgery in children. There are over 1…
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Local Mom on a Mission to Find a Cure for Son’s Brain Disorder
Will take part in Cincinnati WALK to End Hydrocephalus on Oct. 3rd Chase Parker Lorenzo…
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Massachusetts Governor Names September Hydrocephalus Awareness Month
Hydrocephalus is the leading cause of brain surgery in children. Every 15 minutes, a brain…
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Congressmen Lloyd Doggett and Chris Smith Join Forces to Raise Awareness About Hydrocephalus
Representatives Lloyd Doggett (D-TX) and Chris Smith (R-NJ) have joined forces to champion two critical…
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The Hydrocephalus Scoop on Capitol Hill December 2020
October and November have been a super busy time for all three branches of government (Executive, Legislative and Judicial). Here’s our latest summary of what’s been happening on Capitol Hill.
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Two Sisters, Two Brain Disorders, 36 Brain Surgeries
St. Louis family fights for a cure for leading cause of brain surgery in children…
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The Hydrocephalus Scoop on Capitol Hill for September-October 2020
In addition to celebrating Hydrocephalus Awareness month, the Hydrocephalus Association has been tracking the ins and outs of what’s happening on Capitol Hill. Read our latest advocacy update!
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Local Mom Living with Brain Disorder Fights for a Cure
Hopes to raise funds for a cure at the New Orleans WALK to End Hydrocephalus…
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Congressman Josh Gottheimer Joins Congressional Pediatric and Adult Hydrocephalus Caucus
Hydrocephalus is the leading cause of brain surgery in children. Rep. Josh Gottheimer (NJ-5) has joined the bipartisan…
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Congress Recognizes September as Hydrocephalus Awareness Month
Aims to raise awareness of the impact of hydrocephalus and COVID-19 especially in older adults.…
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Baltimore Mom on a Mission to Find a Cure for Son’s Brain Disorder
Jacob Heston was just four weeks old when he was diagnosed with hydrocephalus, a life-threatening…
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Bergen County Board of Commissioners Issues Resolution Naming September Hydrocephalus Awareness Month
The Bergen County Board of Commissioners partners with the Hydrocephalus Association to raise awareness about hydrocephalus.
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Local Mom on a Mission to Find a Cure for Son’s Brain Disorder
Will organize new WALK to End Hydrocephalus in Decatur Lucky McMahon was just one day…
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Congressman TJ Cox Joins Congressional Hydrocephalus Caucus
Congressman TJ Cox has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus.
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NYC Grandmother Fights for a Cure for Leading Cause of Brain Surgery in Children
NYC grandmother Tammara Tillman is on a mission to raise awareness and find a cure for hydrocephalus by taking part in the NYC WALK to End Hydrocephalus.
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Medical Experts and Patients to Educate New Jersey Families About Brain Disorder That Affects Over 1 Million Americans
Dementia, gait disturbance, and incontinence. Typically, when older adults have these symptoms, they’re told they…
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Local Families Fight for a Cure for Little-Known Brain Disorder
Will take part in the Orange County WALK to End Hydrocephalus Oct. 12 in Huntington…
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Hydrocephalus Awareness Month Resolution Introduced in Congress
Hydrocephalus Awareness Month resolution introduced in Congress by Representatives Chris Smith (R-NJ) and Lloyd Doggett (D-TX).
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