Press Releases
Fighting for Hydrocephalus Funding in Congress. October Update
October has been a busy time for Congress, and the Hydrocephalus Association has been hard at work ensuring that we have a seat at the table. We have an exciting new bill introduced and an update on congressional funding for hydrocephalus research.
Congressman Mike Levin Joins Congressional Hydrocephalus Caucus
Caucus helps families impacted by a brain condition that has no cure. Rep. Mike Levin (CA-49) has joined…
Congresswoman Cindy Axne Joins Congressional Hydrocephalus Caucus
Caucus helps find solutions for the leading cause of brain surgery in children. Rep. Cindy Axne (IA-3) has…
Congressman Lloyd Doggett Recognizes September as Hydrocephalus Awareness Month
Raises awareness of the leading cause of brain surgery in children. There are over 1…
Local Mom on a Mission to Find a Cure for Son’s Brain Disorder
Will take part in Cincinnati WALK to End Hydrocephalus on Oct. 3rd Chase Parker Lorenzo…
Massachusetts Governor Names September Hydrocephalus Awareness Month
Hydrocephalus is the leading cause of brain surgery in children. Every 15 minutes, a brain…
Congressmen Lloyd Doggett and Chris Smith Join Forces to Raise Awareness About Hydrocephalus
Representatives Lloyd Doggett (D-TX) and Chris Smith (R-NJ) have joined forces to champion two critical…
The Hydrocephalus Scoop on Capitol Hill December 2020
October and November have been a super busy time for all three branches of government (Executive, Legislative and Judicial). Here’s our latest summary of what’s been happening on Capitol Hill.
Two Sisters, Two Brain Disorders, 36 Brain Surgeries
St. Louis family fights for a cure for leading cause of brain surgery in children…
The Hydrocephalus Scoop on Capitol Hill for September-October 2020
In addition to celebrating Hydrocephalus Awareness month, the Hydrocephalus Association has been tracking the ins and outs of what’s happening on Capitol Hill. Read our latest advocacy update!
Local Mom Living with Brain Disorder Fights for a Cure
Hopes to raise funds for a cure at the New Orleans WALK to End Hydrocephalus…
Congressman Josh Gottheimer Joins Congressional Pediatric and Adult Hydrocephalus Caucus
Hydrocephalus is the leading cause of brain surgery in children. Rep. Josh Gottheimer (NJ-5) has joined the bipartisan…
Congress Recognizes September as Hydrocephalus Awareness Month
Aims to raise awareness of the impact of hydrocephalus and COVID-19 especially in older adults.…
Baltimore Mom on a Mission to Find a Cure for Son’s Brain Disorder
Jacob Heston was just four weeks old when he was diagnosed with hydrocephalus, a life-threatening…
Bergen County Board of Commissioners Issues Resolution Naming September Hydrocephalus Awareness Month
The Bergen County Board of Commissioners partners with the Hydrocephalus Association to raise awareness about hydrocephalus.
Local Mom on a Mission to Find a Cure for Son’s Brain Disorder
Will organize new WALK to End Hydrocephalus in Decatur Lucky McMahon was just one day…
Congressman TJ Cox Joins Congressional Hydrocephalus Caucus
Congressman TJ Cox has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus.
NYC Grandmother Fights for a Cure for Leading Cause of Brain Surgery in Children
NYC grandmother Tammara Tillman is on a mission to raise awareness and find a cure for hydrocephalus by taking part in the NYC WALK to End Hydrocephalus.
Medical Experts and Patients to Educate New Jersey Families About Brain Disorder That Affects Over 1 Million Americans
Dementia, gait disturbance, and incontinence. Typically, when older adults have these symptoms, they’re told they…
Local Families Fight for a Cure for Little-Known Brain Disorder
Will take part in the Orange County WALK to End Hydrocephalus Oct. 12 in Huntington…