Press Releases
Rhode Island Representatives Unite to Join Pediatric and Adult Hydrocephalus Caucus
Washington, D.C., April 10, 2024 – The Hydrocephalus Association proudly announces that Congressman Gabe Amo (RI-01) and Congressman…
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Congressman Marc Veasey (TX–33) Joins Pediatric and Adult Hydrocephalus Caucus to Advocate for Affected Families
The Hydrocephalus Association proudly announces that Representative Marc Veasey (TX-33) has joined the Congressional Pediatric and Adult Hydrocephalus Caucus.
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Congressman Derrick Van Orden (WI–03) Joins Pediatric and Adult Hydrocephalus Caucus to Advocate for Affected Families
The Hydrocephalus Association proudly announces that Representative Derrick Van Orden (WI-03) has joined the Congressional Pediatric and Adult Hydrocephalus Caucus.
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Representative Jerry Nadler (NY–12) Joins Pediatric and Adult Hydrocephalus Caucus to Advocate for Affected Families
The Hydrocephalus Association proudly announces that Representative Jerry Nadler (NY-12) has joined the Congressional Pediatric and Adult Hydrocephalus Caucus.
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Hydrocephalus Association Plays Key Role in Rare Disease Advocacy Week
The Hydrocephalus Association is proud to announce its prominent role in Rare Disease Advocacy Week. Hosted by the EveryLife Foundation for Rare Diseases, this annual event brings together advocates from across the country to advocate for the rare disease community.
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Representative Morgan McGarvey Joins Pediatric and Adult Hydrocephalus Caucus to Advocate for Affected Families in KY-03
The Hydrocephalus Association proudly announces that Representative Morgan McGarvey (KY-03) has joined the Congressional Pediatric and Adult Hydrocephalus Caucus.
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Representative Ritchie Torres Joins Pediatric and Adult Hydrocephalus Caucus to Advocate for Affected Families in NY-15
The Hydrocephalus Association proudly announces that Representative Ritchie Torres (NY-15) has joined the Congressional Pediatric and Adult Hydrocephalus Caucus.
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A Magical Night of Impact
Join us in celebrating four decades of unwavering commitment, community support, and transformative impact at the Hydrocephalus Association’s 40th Anniversary Gala.
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Harnessing the Power of Artificial Intelligence and Machine Learning to Innovate Treatments for Hydrocephalus
[Dallas, TX, October 4, 2023] — The Hydrocephalus Association (HA) and the Rudi Schulte…
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The Hydrocephalus Association Earns a Prestigious Four-Star Rating from Charity Navigator
[Bethesda, MD, September 29, 2023] – The Hydrocephalus Association is proud to announce that our…
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Danny Bonaduce’s “Mystery Illness” Explained
(June 6, 2023) – Danny Bonaduce’s recent battle with a “mystery illness” and lack of…
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Zach Roloff Emergency Brain Surgery
(February 13, 2023) – A few days ago, Zach Roloff, one of the stars of…
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The Phoenix Community Rallies for Hydrocephalus
President and CEO of Anuncia Medical, Inc., will join hundreds of families and medical professionals at the Phoenix WALK to End Hydrocephalus as they rally to raise awareness and critical funds for hydrocephalus.
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Community Rallies Together in Saying “No More Brain Surgery”
Patients, family members and local businesses will raise awareness and critical funds for a brain condition that has no cure and that affects more than 1 million Americans.
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The South Carolina Community Rallies for Hydrocephalus
Olly Otter and hundreds of families and medical professionals will rally to raise awareness and critical funds for hydrocephalus, an incurable, life-long neurological condition that affects over 1 million Americans. The walk is followed by a full day of family-oriented events.
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The Burlington Community Rallies for Hydrocephalus With the Hydrowarrior Ride
“We are so excited to be hosting this charity ride and benefit for the fifth year,” said Cathi Roberts, local event lead whose 19 year old daughter has hydrocephalus, “The event has been doubling in size each year. Last year we raised approximately $15k for critical hydroecephalus research and awareness.”
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A Father’s Love Knows No Bounds
The Marquez Family, and other families, will be attending the National Conference on Hydrocephalus July 14-16 at the Austin Marriott Downtown and are available for interviews. They are also available for phone interviews at any time before or after conference.
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Statement by Hydrocephalus Association President and CEO Diana Gray on Washington Post Article About Chloe Kral
The Washington Post recently published a story about Chloe Kral, who suffered for years and was told she had severe mental illness before discovering later that she had hydrocephalus. Here’s a statement from HA’s President & CEO Diana Gray about Chloe’s remarkable story.
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AHCRN Awarded $14 Million NINDS Grant to Study Effectiveness of Shunt Treatment for idiopathic Normal Pressure Hydrocephalus
The AHCRN, one of three research networks HA funds, was awarded a $14 million federal grant to study the effectiveness of shunt treatment for NPH.
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Fighting for Hydrocephalus Funding in Congress. October Update
October has been a busy time for Congress, and the Hydrocephalus Association has been hard at work ensuring that we have a seat at the table. We have an exciting new bill introduced and an update on congressional funding for hydrocephalus research.
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