Press Releases

Advocates, Capitol Hill

Advocates to Rally on Capitol Hill for Hydrocephalus Awareness and Research Funding

January 31, 2025

50 key leaders in the hydrocephalus community from 18 states will convene in Washington, D.C., for Hydrocephalus Capitol Hill Day.

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Hydrocephalus Association Publishes Key Neuropsychology and Cognitive Research Priorities

January 17, 2025

The Hydrocephalus Association (HA) is excited to announce the publication of our Research Priorities in Neuropsychology and Cognition in the Journal of Fluids and Barriers of the CNS.

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University of Washington Researcher Dr. Jennifer Kong Receives Prestigious Innovator Award for Hydrocephalus Research

December 18, 2024

The Hydrocephalus Association (HA) is proud to announce that Jennifer Kong, PhD, an assistant professor of biochemistry at the University of Washington, has been named a recipient of the esteemed 2024 Hydrocephalus Association Innovator Award.

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University of Colorado Researcher Dr. Mohammed Alshareef Receives Prestigious Innovator Award for Hydrocephalus Research

December 10, 2024

Bethesda, MD – The Hydrocephalus Association (HA) proudly announces that Mohammed Alshareef, BSE, MD, an…

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Announcing the 2024 Hydrocephalus Association Innovator Award Recipients

December 5, 2024

The Hydrocephalus Association (HA) is proud to announce the recipients of the 2024 Hydrocephalus Association Innovator Awards. These awards provide critical seed funding to researchers pushing the boundaries of hydrocephalus research and treatment.

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Researchers Convene in Washington D.C. to Address a Neurological Condition Commonly Mistaken for Parkinson’s or Alzheimer’s Disease

October 14, 2024

We are excited to announce the upcoming Research Workshop on idiopathic normal pressure hydrocephalus (iNPH), hosted by the Hydrocephalus Association and the Rudi Schulte Research Institute on October 15-16. iNPH, often misdiagnosed as Parkinson’s or Alzheimer’s, affects an estimated 800,000 U.S. seniors. Experts will present cutting-edge advancements in diagnosis, including how AI and machine learning could improve early detection and treatment tracking.

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World Hydrocephalus Day is September 20: Join Us in Raising Awareness and Support

September 20, 2024

Today is World Hydrocephalus Day and we’re joining forces globally to highlight the urgent need for greater awareness, research, and support for those living with this complex condition.

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Danny Bonaduce Joins the Fight to Raise Global Awareness for Hydrocephalus

September 16, 2024

We are excited to present an exclusive interview with actor and TV/radio personality Danny Bonaduce, who was recently diagnosed with Normal Pressure Hydrocephalus (NPH), a type of hydrocephalus impacting around 800,000 older Americans.

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Hydrocephalus Awareness Month Spotlights Millions Affected by this Chronic Brain Condition

September 5, 2024

September is Hydrocephalus Awareness Month, highlighting the challenges faced by over 1 million Americans living with hydrocephalus. This chronic neurological condition, caused by excess cerebrospinal fluid in the brain, has no cure and is managed only through brain surgery.

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Pioneering Study Aims to Prevent Hydrocephalus in Children

July 24, 2024

Hydrocephalus Association-funded researchers, Dr. Shenandoah Robinson and Dr. Lauren Jantzie of Johns Hopkins, have spent over a decade collaborating to uncover the disease processes leading to brain damage in infants.

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Using AI to More Accurately Diagnose Hydrocephalus, Commonly Misdiagnosed as Parkinson’s or Alzheimer’s Disease

July 22, 2024

The Hydrocephalus Association is excited to announce an upcoming session on the innovative use of artificial intelligence (AI) in diagnosing hydrocephalus. This event is part of the HA CONNECT National Conference on Hydrocephalus.

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A Forever Bond of Two Young Women United by the Loss of Siblings to Hydrocephalus

July 15, 2024

On Independence Day weekend, Cassidy Territo, a delegate for Miss New York 2024, participated in the Miss New York pageant and her impact extended far beyond the competition stage.

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FSU Football and NFL Player-Turned Neurosurgeon to Keynote in Tampa, FL

July 12, 2024

The Hydrocephalus Association is thrilled to announce that Dr. Myron Rolle, a former Florida State University Football standout and NFL player turned neurosurgeon, will be the keynote speaker on Saturday, July 27, at the upcoming HA CONNECT National Conference on Hydrocephalus.

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Congresswoman Lori Chavez-DeRemer (OR–05) Joins Pediatric and Adult Hydrocephalus Caucus to Advocate for Affected Families

June 27, 2024

The Hydrocephalus Association proudly announces that Congresswoman Chavez-DeRemer (OR-05) has joined the Congressional Pediatric and Adult Hydrocephalus Caucus.

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Innovative Drug Aims to Improve Hydrocephalus Treatment and Delay Onset of Alzheimer’s and Parkinson’s Disease

June 21, 2024

Dr. Young-Kwon Hong, Chief of Basic Science Research for the Department of Surgery at the Keck School of Medicine of USC, has unveiled a potential treatment for hydrocephalus that may also delay the onset of Alzheimer’s and Parkinson’s disease.

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A Dementia That Can Be Cured – Shedding Light on NPH

May 30, 2024

Patients with normal pressure hydrocephalus (NPH) often exhibit a triad of symptoms: gait disorder, urinary incontinence, and dementia. Despite affecting an estimated 800,000 seniors in the U.S., NPH is frequently under-diagnosed or misdiagnosed as Parkinson’s, Alzheimer’s, vascular dementia, or normal aging.

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Congresswoman Yadira Caraveo (CO–08) Joins Pediatric and Adult Hydrocephalus Caucus to Advocate for Affected Families

May 23, 2024

The Hydrocephalus Association is proud to announce that Congresswoman Yadira Caraveo (CO-08) has joined the Congressional Pediatric and Adult Hydrocephalus Caucus.

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Researchers Convene in Cincinnati to Advance Non-Invasive Hydrocephalus Treatments

April 26, 2024

In late April, Cincinnati played host to a groundbreaking research workshop aimed at advancing non-invasive hydrocephalus treatments, continuing the momentum from the successful 2023 Research Workshop in Dallas, TX.

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Congressman Bill Posey (FL–08) Joins Pediatric and Adult Hydrocephalus Caucus to Advocate for Affected Families

April 19, 2024

The Hydrocephalus Association proudly announces that Congressman Bill Posey (FL-08) has joined the Congressional Pediatric and Adult Hydrocephalus Caucus.

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Rhode Island Representatives Unite to Join Pediatric and Adult Hydrocephalus Caucus

April 10, 2024

Washington, D.C., April 10, 2024 – The Hydrocephalus Association proudly announces that Congressman Gabe Amo (RI-01) and Congressman…

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