Statement by Hydrocephalus Association President and CEO Diana Gray on Washington Post Article About Chloe Kral

By Natalia Martinez Duncan / February 15, 2022

The Washington Post recently published a story about Chloe Kral, who suffered for years and was told she had severe mental illness before discovering later that she had hydrocephalus. Here’s a statement from HA’s President & CEO Diana Gray about Chloe’s remarkable story.

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AHCRN Awarded $14 Million NINDS Grant to Study Effectiveness of Shunt Treatment for idiopathic Normal Pressure Hydrocephalus

By Natalia Martinez Duncan / December 8, 2021

The AHCRN, one of three research networks HA funds, was awarded a $14 million federal grant to study the effectiveness of shunt treatment for NPH.

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Fighting for Hydrocephalus Funding in Congress. October Update

By Natalia Martinez Duncan / November 8, 2021

October has been a busy time for Congress, and the Hydrocephalus Association has been hard at work ensuring that we have a seat at the table. We have an exciting new bill introduced and an update on congressional funding for hydrocephalus research. 

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Congressman Mike Levin Joins Congressional Hydrocephalus Caucus

By Natalia Martinez Duncan / October 20, 2021

Caucus helps families impacted by a brain condition that has no cure. Rep. Mike Levin (CA-49) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Levin’s support of children and…

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Congresswoman Cindy Axne Joins Congressional Hydrocephalus Caucus

By Natalia Martinez Duncan / October 20, 2021

Caucus helps find solutions for the leading cause of brain surgery in children. Rep. Cindy Axne (IA-3) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Axne’s support of families…

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Congressman Lloyd Doggett Recognizes September as Hydrocephalus Awareness Month

By Natalia Martinez Duncan / September 29, 2021

Raises awareness of the leading cause of brain surgery in children. There are over 1 million Americans living with hydrocephalus, a chronic neurological condition that has no cure and can…

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Local Mom on a Mission to Find a Cure for Son’s Brain Disorder

By Natalia Martinez Duncan / September 28, 2021

Will take part in Cincinnati WALK to End Hydrocephalus on Oct. 3rd Chase Parker Lorenzo was just 9 months old when he was diagnosed with hydrocephalus, a life-threatening neurological condition…

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Massachusetts Governor Names September Hydrocephalus Awareness Month

By Natalia Martinez Duncan / September 14, 2021

Hydrocephalus is the leading cause of brain surgery in children. Every 15 minutes, a brain surgery is performed to treat hydrocephalus, a life-threatening brain disorder that affects over 1 million…

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Congressmen Lloyd Doggett and Chris Smith Join Forces to Raise Awareness About Hydrocephalus

By Natalia Martinez Duncan / April 14, 2021

Representatives Lloyd Doggett (D-TX) and Chris Smith (R-NJ) have joined forces to champion two critical Hydrocephalus Association priorities for the 117th Congress. Specifically, they’ve introduced H. Res. 20, a bipartisan…

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Great.com Interviews Hydrocephalus Association About the Promising Search for New Treatments

By Natalia Martinez Duncan / March 15, 2021

Spirit Rosenberg from Great.com interviewed the Hydrocephalus Association as part of their ‘Great.com Talks With…’ podcast. This series is an antidote to negative news stories that aims to shed light…

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The Hydrocephalus Scoop on Capitol Hill December 2020

By Natalia Martinez Duncan / December 17, 2020

October and November have been a super busy time for all three branches of government (Executive, Legislative and Judicial). Here’s our latest summary of what’s been happening on Capitol Hill.

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Two Sisters, Two Brain Disorders, 36 Brain Surgeries

By Natalia Martinez Duncan / October 14, 2020

St. Louis family fights for a cure for leading cause of brain surgery in children Sisters Stephanie (Buffa) Vogt and Sarah Buffa have the same color hair, the same love…

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The Hydrocephalus Scoop on Capitol Hill for September-October 2020

By Natalia Martinez Duncan / October 6, 2020

In addition to celebrating Hydrocephalus Awareness month, the Hydrocephalus Association has been tracking the ins and outs of what’s happening on Capitol Hill. Read our latest advocacy update!

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Local Mom Living with Brain Disorder Fights for a Cure

By Natalia Martinez Duncan / September 30, 2020

Hopes to raise funds for a cure at the New Orleans WALK to End Hydrocephalus Oct. 3 Imagine living your entire life with headaches and then finding out that they…

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Congressman Josh Gottheimer Joins Congressional Pediatric and Adult Hydrocephalus Caucus

By Natalia Martinez Duncan / September 30, 2020

Hydrocephalus is the leading cause of brain surgery in children. Rep. Josh Gottheimer (NJ-5) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Josh Gottheimer’s support of the over one…

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Congress Recognizes September as Hydrocephalus Awareness Month

By Natalia Martinez Duncan / September 28, 2020

Aims to raise awareness of the impact of hydrocephalus and COVID-19 especially in older adults. What if brain surgery was the only way to stay alive? For the over 1…

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Baltimore Mom on a Mission to Find a Cure for Son’s Brain Disorder

By Natalia Martinez Duncan / September 10, 2020

Jacob Heston was just four weeks old when he was diagnosed with hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Now…

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Bergen County Board of Commissioners Issues Resolution Naming September Hydrocephalus Awareness Month

By Natalia Martinez Duncan / September 8, 2020

The Bergen County Board of Commissioners partners with the Hydrocephalus Association to raise awareness about hydrocephalus.

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Local Mom on a Mission to Find a Cure for Son’s Brain Disorder

By Natalia Martinez Duncan / January 23, 2020

Will organize new WALK to End Hydrocephalus in Decatur Lucky McMahon was just one day old when he had his first brain surgery to treat his hydrocephalus, a life-threatening neurological…

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Congressman TJ Cox Joins Congressional Hydrocephalus Caucus

By Natalia Martinez Duncan / November 28, 2019

Congressman TJ Cox has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus.

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