Hydrocephalus Blog & Resources
Looking Back…Moving Forward: Mentoring the Future Voice of Hydrocephalus
Jennifer Bechard, the Hydrocephalus Association’s Teens Take Charge mentor and Education and Support Manager, shares her views on growing up with hydrocephalus and mentoring the future voice of hydrocephalus through her work with the teen and young adult community.
Read MoreLooking Back…Moving Forward: A Trusted Source for Information
As the Hydrocephalus Association continues its interview series commemorating our 30th anniversary, Tammy Knight shares the value of support and trusted information for parents and individuals.
Read MorePersonifying Determination: Gabby Giffords
Former Congresswoman Gabrielle Giffords, who acquired hydrocephalus after the tragic incident which took place in 2011, shares a personal message to the hydrocephalus community.
Read MoreLooking Back…Moving Forward: Building Bridges Between Pediatric and Adult Hydrocephalus
As the Hydrocephalus Association continues our 30th year anniversary commemoration, Dr. Marion “Jack” Walker, pediatric neurosurgeon, Primary Children’s Medical Center, Salt Lake City, Utah, reflects on his 37 years of service to the hydrocephalus community.
Read MoreResearch UPDATE: Preventing Hydrocephalus in Premature Infants
In a study published in the journal Brain, researchers find that the infusion of a naturally occurring protein can prevent the development of hydrocephalus after an intraventricular hemorrhage. The results show great promise in the work to develop a preventive therapy for the development of hydrocephalus, particularly in one of our most fragile populations, premature infants.
Read MoreLooking Back…Moving Forward: Advancing the Research Mission
As the Hydrocephalus Association continues it’s 30th anniversary commemoration, David Browdy, Board Member and Chair of the Research Committee, reminisces about the history of the association and shares a vision for the future.
Read MoreWanted: Partners in the Journey
Hydrocephalus Association CEO Dawn Mancuso shares her excitement and gratitude for a special event held for the Hydrocephalus Association in New York City on October 10, 2013, that moves the association mission closer to raising greater awareness of hydrocephalus and, ultimately, finding a cure.
Read MoreLooking Back…Moving Forward: Leading the Charge to WALK to End Hydrocephalus
What started as a walk across the Bay Bridge has grown into the Hydrocephalus Association (HA) WALK program, hosting 32 WALKS across the country to raise awareness for hydrocephalus. This week we interview Randi Corey, Director of Special Events, who shares her vision for the future of the association.
Read MoreHappening NOW: First Annual Vision Dinner in New York City
The Hydrocephalus Association’s First Annual Vision Dinner, “A Time for Awareness; The Hope for a Cure,” unites politicians, neurosurgeons, scientists, advocates, and business leaders to raise the public profile of hydrocephalus and to share the current research initiatives and successes around the condition.
Read MoreLooking Back…Moving Forward: Spina Bifida and Hydrocephalus Do Not Define Me
October is Spina Bifida Awareness Month. Nicole Small reflects on living with both spina bifida and hydrocephalus since birth, as the Hydrocephalus Association continues our interview series commemorating our 30th anniversary.
Read MoreThe Art of Getting Covered
This article was written for individuals newly entering the healthcare system, particularly our growing group…
Read MoreLooking Back…Moving Forward: Moments that Matter
As the Hydrocephalus Association continues its 30th anniversary interview series, Jennifer Balthuis, our Minnesota Community Network leader, shares the moments that have touched her the most while leading the MN Support Group.
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