Hydrocephalus Blog & Resources

Looking Back…Moving Forward: There Has to be a Better Way

September 18, 2013

As the Hydrocephalus Association continues its history series commemorating our 30th anniversary, Barrett O’Connor, chair of the HA board of directors, shares a personal message to the hydrocephalus community.

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scholarship, hydrocephalus

Announcing our 2013 Hydrocephalus Association TTC Scholarship Recipients!

September 17, 2013

Congratulations to our 2013 Hydrocephalus Association Teens Take Charge (TTC) Scholarship Recipients! Our TTC scholarship program is made possible through the generous support of the Medtronic Foundation.

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HA Accepted into the 2013 COMBINED FEDERAL CAMPAIGN

September 16, 2013

The Hydrocephalus Association has qualified for inclusion in the Combined Federal Campaign, the federal government’s workplace giving program. If you are a federal employee you can designate your contribution to the Hydrocephalus Association (HA) with code #10066.

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Research UPDATE: Exploring Alternative Treatments

September 12, 2013

In our third installment of the Mentored Young Investigator (MYI) blog series, we showcase 2009…

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Looking Back…Moving Forward: With Laughter In His Heart

September 11, 2013

The Hydrocephalus Association continues it’s 30th anniversary interview series with Sam Marks, life-long HA member, as he shares his unique experience growing up with the Hydrocephalus Association and his advice for confronting life’s challenges.

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Looking Back…Moving Forward: Hydrocephalus Awareness, New York Style!

September 4, 2013

The Hydrocephalus Association continues its 30th anniversary history series with an interview with our Long Island WALK Chair, Mia Padron. Mia is determined to raise awareness for hydrocephalus, and it doesn’t stop with leading a WALK. New York celebrates Hydrocephalus Awareness Month because of this woman.

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HCRN Update: Shunt Infection Risk and Treatment in Children

August 29, 2013

Dr. Tamara Simon discusses her work as the Principal Investigator for the shunt infection registry for the Hydrocephalus Clinical Research Network. Her study aims to understand the risk factors associated with shunt infection and how shunt infections are being treated.

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Looking Back…Moving Forward: Telling Her Own Story

August 28, 2013

The Hydrocephalus Association continues its 30th anniversary interview series with Olivia Maccoux, a high school senior, who feels she has been given the opportunity to grow and help others struggling with the challenges of hydrocephalus.

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Looking Back…Moving Forward: The Need to Value Shunt Management

August 21, 2013

As the Hydrocephalus Association continues our 30th anniversary interview series, Ann Marie Flannery, M.D., shares her thoughts on young adults transitioning to adult neurological care and issues a call to action for society to value the management of shunts and the individuals living with them.

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Looking Back…Moving Forward: A Sister’s Love

August 14, 2013

Roxana Ramos became a Hydrocephalus Association Support Group leader to connect her brother to others that have hydrocephalus, only to realize family members benefit, as well. As we continue our interview series commemorating our 30th anniversary, we sit down with Roxana to talk about her motivation behind her volunteer position and the value her service brings to the hydrocephalus community.

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Looking Back…Moving Forward: A Journey of Support

August 7, 2013

Debby Buffa has raised two daughters with hydrocephalus and provided support to hundreds of families since the early 1980s. As the Hydrocephalus Association (HA) continues its 30th anniversary interview series, Debby shares her journey with HA over the last 30 years.

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Medical Device Development and Evolution: A Comparative Study

August 6, 2013

In this educational blog, Marvin Sussman, PhD, compares the evolution of the cardiac pacemaker and radiation oncology with that of the shunt to treat hydrocephalus over a 60 year period.

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