Hydrocephalus Blog & Resources

scholarship, hydrocephalus

Announcing Our 2014 Hydrocephalus Association Scholarship Recipients!

July 29, 2014

The Hydrocephalus Association (HA) is pleased and honored to announce our 2014 Hydrocephalus Association Scholarship Recipients.

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To Share or Not to Share Your Condition on a First Date?

June 26, 2014

Hydrocephalus Association Teens Take Charge guest blogger Holly Senatore talks about the thrill of the first date and whether or not to bring up living with hydrocephalus.

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Solving for X

June 24, 2014

Ariel Yong, guest blogger for the Hydrocephalus Association Teens Take Charge program, shares her journey with math and her ultimate accomplishment of graduating from college with a degree in mathematics.

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In Memoriam: Cynthia E. Solomon

June 12, 2014

The Hydrocephalus Association is saddened to share the passing of an icon in the hydrocephalus community and one of our co-founders – Cynthia E. Solomon. She dedicated her life to helping others. She will be greatly missed.

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Voices from Our Community: Dr. Harold Conn’s Decade of NPH Misdiagnosis

May 22, 2014

The Hydrocephalus Association is commemorating the 50th anniversary of the recognition of normal pressure hydrocephalus (NPH) as a distinct medical syndrome through the journeys of members of our hydrocephalus community on the road to proper diagnosis and treatment of this life-altering condition.

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hydrocephalus, scholarship

Congratulations 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients!

May 16, 2014

The Hydrocephalus Association is so pleased to announce the 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients!

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Mary Decker Mentorship Award Recipient Announced

May 9, 2014

The Hydrocephalus Association is proud to announce Cathy Cartwright as this year’s Mary Decker Mentorship Award recipient for her tremendous passion, caregiving, and nurturing of children with hydrocephalus

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One Person CAN Change the World

April 19, 2014

In Megan Redfearn’s installment of her blog series, Emma Lee and Me, Megan talks about the strength of her daughter and the impact it has had on her and…well…the world!

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AARP Bulletin Features Normal Pressure Hydrocephalus

April 17, 2014

The April 2014 issue of the AARP Bulletin featured an article that highlights normal pressure hydrocephalus as a condition that mimics dementia, helping raise awareness about an often undiagnosed or misdiagnosed treatable neurological condition that affects up to 700,000 persons in the United States alone.

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Never Give Up

April 15, 2014

Ariel Yong follows up on the topic of our recent video blog by Debby Buffa about kids with hydrocephalus playing sports by talking about the lessons she learned as an athlete.

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Bringing Normal Pressure Hydrocephalus Out of Obscurity

April 7, 2014

In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?

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Hydro Queen

March 19, 2014

Karly Rodriguez wrote this powerful and honest poem one month prior to her ETV procedure, after being diagnosed with hydrocephalus in 2012.

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