Hydrocephalus Blog & Resources
Learning to Date Me
Bryant, our new guest blogger, shares openly about the unconditional support of his fiancee and resilience of their relationship as he lives with hydrocephalus.
Read More
Telling My Story
Meet Dan, a new guest blogger lending his voice to our adult hydrocephalus community. We are excited for Dan to share different aspects of his journey each month.
Read More
HCRN Researcher Dr. Jay Wellons Demonstrates Importance of Multi-Center Studies
How do surgeons make decisions? How do they stand by those decisions and evaluate themselves? The HCRN set out to answer these questions in their study.
Read More
FIGHTER! Hydrocephalus and CP Don’t Stop THIS Guy!
Today is Cerebral Palsy (CP) Awareness Day, part of CP Awareness Month! Meet William, living with both hydrocephalus and CP.
Read More
Grey’s Anatomy Highlights Misdiagnosis of Normal Pressure Hydrocephalus
On Thursday, March 19, 2015, Grey’s Anatomy aired an episode which highlighted Normal Pressure Hydrocephalus and raised awareness of a “treatable dementia.”
Read More
My 4-H Speech about Hydrocephalus
India is a 5th grade school “buddy” to a Kindergartner who has hydrocephalus. India used her 4-H competition to educate the public and share her friendship.
Read More
Making the Hydrocephalus Association a Part of My Legacy
At the age of 25, Haylea is thinking about how she will make a lasting impact in the hydrocephalus community through her volunteerism and estate planning.
Read More
Predicting the Need for a Shunt after a Brain Bleed
Diagnosing the need for a shunt early after someone has had a brain bleed could prevent additional neurological deterioration, study finds.
Read MoreThe ABLE Act Offers Tax Benefits for Hydrocephalus Families
The ABLE Act allows families with children with disabilities to save for college and other expenses in tax-deferred accounts. A must read with tax season upon us!
Read More
Research 101: An Explanation of Clinical Trials Design
Dr. Koschnitzky continues our Science Facts blog series with an explanation of the various clinical trial designs we find in hydrocephalus research.
Read More
Research 101: Levels of Evidence in Hydrocephalus Clinical Research Studies
Clinical studies are often reported in the news, but how do you know if the study is strong? Dr. Koschnitzky describes how to interpret the results of a study.
Read More
A Sad Farewell to a Friend of our Community: Jerome Kersey
It is with deep sadness that we share the news of the passing of retired NBA player Jerome Kersey, a keynote speaker at our 2014 Hydrocephalus Conference.
Read More