Hydrocephalus Blog & Resources
The Patient Voice in Hydrocephalus Research Studies
Our Patient Partner Committees provide the patient perspective throughout the duration of a research study, making sure the patient voice is at the table.
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Research 101: Randomization
Our Research Blog 101 series continues with a look at how randomization works in clinical trials.
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Realizing I Had Hydrocephalus
Dan Kricke talks about the first time he realized he had hydrocephalus when he was 5 and the various emotions he had along the way to adulthood.
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Mixed Emotions: Nerves
Jamie Wright, Houston Community Network leader, went to Haiti with a pediatric neurosurgery team from Children’s Memorial Hermann Hospital. This is her experience.
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Moms on a Mission: The Trailblazers
It is only fitting that we close out our Mother’s Day celebration with the mothers that started it all. Our Trailblazers – Emily Fudge, Cynthia Solomon, Pip Marks.
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Moms on a Mission: April Christian, Champion
Our mom and (S)HEro #6 April Christian continues our Mother’s Day profiles of 7 moms on a mission within our #hydrocephalus community.
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Moms on a Mission: Jennifer Pope, Power Forward
Our mom and (S)HEro #5 Jennifer Pope continues our Mother’s Day profiles of 7 moms on a mission within our #hydrocephalus community.
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Moms on a MISSION: Chara McLaughen, Promoter
Tireless organizer and promoter describe Mom #4 – Chara McLaughen. Our Mother’s Day profiles of 7 (S)HEroes of our #hydrocephalus community continues.
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Moms on a MISSION: Jan Kell, Connector
Bringing people together. That’s Mom #3 – Jan Kell, The Connector. Our profiles of 7 (S)HEroes of our #hydrocephalus community continues. Happy Mother’s Day!
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Moms on a MISSION: Susan Fiorella, Advocate
Mom #2 – Susan Fiorella, The Advocate. Join us as we profile 7 (S)HEroes of our #hydrocephalus community – MOMS ON A MISSION! Happy Mother’s Day!
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Moms on a MISSION: Vicki Brown, Visionary
One week of celebrating our MOMS ON A MISSION! Mom #1 – Vicki Brown, The Visionary. Happy Mother’s Day!
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Learning to Date Me
Bryant, our new guest blogger, shares openly about the unconditional support of his fiancee and resilience of their relationship as he lives with hydrocephalus.
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