In Memory of Kate

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Kate FinlaysonOn November 27, Kate Finlayson passed away due to complications from hydrocephalus and the many surgeries she endured to combat it.  She was, and remains, an inspiration for all of us dedicated to furthering the fight against hydrocephalus.

Just 26 years old, Kate underwent more than 130 surgeries in an ongoing struggle to manage her hydrocephalus, and then to cope with the many complications that resulted from these surgeries.  Her struggle embodied the old saying that ‘the best surgery is no surgery’.  Unfortunately, for Kate and most people with hydrocephalus, the no surgery option is not possible.

Kate has been, and remains, an inspiration for many of us.  Not simply based on the fact of her struggle, but also because of the grace and courage she showed throughout.  It was this that inspired her brothers, Pete and Sam Finlayson to create TeamHYDRO.  It was their effort to try to make a difference on her behalf.

We hope, one day, through research, to find cures for the many forms of hydrocephalus.  Along that path, with an increased understanding of the bio-mechanics of hydrocephalus that research will provide, we hope to support the development of meaningful non-surgical therapeutic treatments,  with significantly fewer complications.

Our condolences and sympathy go out to the Finlayson family.

19 Comments for : In Memory of Kate
    • Thomas
    • February 8, 2012
    Reply

    im so sorry about ur loss 🙁 a kid that goes to my school is also battling hydrocephalus and he seems pretty good as of now. god bless uu 😉

    • pbryant
    • February 2, 2011
    Reply

    I watched the tribute video of Kate’s life and found it to very touching and emotional.

    I have a niece with HD, she is 18 and getting ready for college. She has several surgies too. I seen so much that they have in common.

    Kate was a wonderful daughter, you could see it.

    I send my deepest sympathies to the family and friends of Kate.

  1. Reply

    I am almost 37, diagnosed with hydro at 1 year old… I have memory issues and can’t do some things I should be able to, but am glad to be alive. I have had 3 total replacements in my life and 2 more revisions…

    • Susan Harper
    • January 7, 2011
    Reply

    After many years, we adopted the second child with Hydrocephalus. He just had his 3rd shunt and is age 4. It took us 2 days and several physicians until we got a pediatric Neurosurgeon, who scheduled surgery 20 minutes later. My son suffered needlessly for 2 days. When will these doctors get educated that parents know their child’s signs and symptoms. Your daughter and you as parents are an inspiration for all us who continue the journey, one day at a time. It is a reminder that we only have one day at a time and life is precious. Thank you for sharing with the rest of us. May your family find peace in the work you are doing! Blessings.

    • Rose Fenstermaker
    • January 3, 2011
    Reply

    Our thoughts and prayers are with you and your entire family. My son had his first surgery last June in Cleveland. It was the scariest thing I have ever had to face as a parent. God Bless all of you.

    • Kelly
    • December 30, 2010
    Reply

    You have an amazing daughter and Peter’s memorial to his sister shows the love your family has for her and the fight that you all will continue on to help find a cure for Hydrocephalus.

    My son Max is 18 months old born with Hydro and had a VP Shunt since 22 days old. He has also been diagnosed with Hemiplegic CP. We can handle anything and we thank GOD every day that his shunt has been working.

    You have yet again reminded us that life is too short and to cherish every day.

    My GOD comfort you during this time & may Kate rest in eternal peace!

    • Lisa Healy
    • December 27, 2010
    Reply

    My daughter is 14 and wasnt diagnosed till she was over 1 yr old…she has now had 173 surgeries and 7 different shunts in her head..she has memory problems but for the most part a completely normal young girl. She even does competition cheerleading and can tumble doing back handsprings. Unfortunately we are getting ready to go across country to her neurosurgeon in CA to have another surgery making it 174…she is missing out AGAIN on time with her friends and upcoming parties–totally sucks for her

    • trish Fulton
    • December 26, 2010
    Reply

    i have a wonderful daughter with HD shes had many surgerys i thank God for each moment i have her my heart goes out to this girls family may God be with you all

    • phyllis
    • December 26, 2010
    Reply

    My heart goes out to you, I am a 39 year old single mother of 2 and I found out I had NP Hydrocephalus almost 3 years ago, I had a vp shunt placement, It has been so hard, I had to have my mom stay with us for awhile,even thou I still have problms with my head. My kids,12 & 4, if it wasnt for them,I truly believe I would have given up many times.Your in my prayers!

    • Pascal
    • December 23, 2010
    Reply

    My deepest feelings to the entire family.

    My father (62) also had some complications from hydrocephalus. I lost him 4 months ago.

  2. Reply

    I feel deeply with the family.

    • Jeff Carter
    • December 23, 2010
    Reply

    My deepest sympathies go out to your family. As the parent of two boys with hydrocephalus, we are always aware of the seriousness of that condition, and the risks of every surgery. I pray that God will make you strong, and that with the help of His grace, and the love of friends and family, that your happy memories will overshadow your pain of loss. Allow yourselves time to grieve, heal, and then you can focus on all the good things that her life has meant to all who knew her.
    God’s richest blessings,

    Jeff Carter
    Milwaukee. wI

    • Sonja
    • December 23, 2010
    Reply

    I feel deeply with the family.

    • Mafeeb
    • December 23, 2010
    Reply

    I’m a father to a 20 month boy who has hydro and have had 3 surgeries already and this have not been easy for me and my wife let alone to talk of 130 surgeries. Life is a gift and from what I have ready and comments made…she gave it all she could. May her soul rest in eternal peace. My sincere condolence to the Finlayson Family may the Lord comforts you.

    • Judy
    • December 22, 2010
    Reply

    I weep for your beautiful daughter. Our son is currently a patient in ICU and has been for almost the past 12 months. I’m so distraught over his condition and frustrated…..I’m sure you’ve felt every emotion I could describe here. I just wanted to say “thank you” for what you are doing to bring attention to hydrocephalus and promoting research. Our son, Dustin, is 38 and has had hd for the past 26 years due to a head injury he suffered as a child. May God bless you and your efforts. Judy in Buffalo, NY

  3. Reply

    Here is a slideshow/video tribute to Kate’s life. We love you, Kate!

    http://www.youtube.com/watch?v=dTQvp8_o8H0

    • Nichole
    • December 21, 2010
    Reply

    My deepest and most heartfelt sympathyies to the entire family. My name is nichole. I was born in 1971 with spina bifida and hydrocephalus as well as myelomeninogcele (Ii probably spelled that wrong, god knows that’s a difficult word to spell let alone say).. I know first hand what your beautiful and courageous daughter was going through each time her shunt failed. She was shunted after birth, right? Well, as I was saying, I know how she was feeling when she fell ill. It sucks..

    Again, I’m truly sorry for your loss. Oh wow, I don’t know you and I never knew her and I am now feeling tears welling in my eyes..rest in peace angel..

    • Kristen
    • December 19, 2010
    Reply

    I miss her. Let’s find a cure to this thing already.

    • Jessica
    • December 18, 2010
    Reply

    Bless your hearts to have such a fighter. 26 amazing years spent with your daughter. Each day is a gift with hydrocephalus, just look at all those days you were blessed with! I cant not wait until they day hydrocephelus of all kinds has a cure and I wont stop fighting for all who have suffered the consequences of having hydro. Be strong for your girl and dont ever stop fighting for her.

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