Blog | Hydrocephalus Association

Hydrocephalus Association at 30

January 30, 2013

In 1983, a small group of parents of children with hydrocephalus living in the San Francisco Bay area came together seeking community and support. Thirty years ago could this group of determined and committed individuals have imagined that the Hydrocephalus Association would become the nation’s largest and most widely respected advocacy group dedicated to hydrocephalus?

Teen Voices: Taking on High School with No Regrets

January 22, 2013

Starting high school can be tough, especially when you are dealing with a medical condition such as hydrocephalus. Madeleine shares her advice for taking on high school.

Is There a Cure for My Dementia?

November 11, 2012

Today’s article in Parade Magazine, What If Grandpa Doesn’t Really Have Alzheimer’s?, plays an important role in our quest to educate the public about the form of hydrocephalus called Normal Pressure Hydrocephalus or NPH. While the condition was identified over 50 years ago, there is little research into the condition, which so far is the only known reversible form of dementia but it is often mistaken for Alzheimer’s or Parkinson’s Disease.

Announcing our Hydrocephalus Association TTC Scholarship Recipients!

November 2, 2012

The Hydrocephalus Association Teens Take Charge program trains teenagers and young adults (and their siblings), who are affected by hydrocephalus, to take charge of the condition and become self-advocates with both health professionals and with their legislators. Through a generous grant from the Medtronic Foundation, the Hydrocephalus Association is able to award five scholarships, in the amount of $1,000, to teens and young adults (ages 17 to 25) who are affected by hydrocephalus.

Making Life Happen: Living Life with Spina Bifida and Hydrocephalus

October 25, 2012

Meet Luke Russell, a freshman at the University of Wisconsin-Whitewater who plans to major in marine biology with either a second major or a minor in psychology. He has spina bifida and hydrocephalus.

Voices from Our Community: David Walters Shares his Hydrocephalus Story

September 24, 2012

David Walters was diagnosed with hydrocephalus at 2 weeks old and has had one shunt revision. He is an active teenager and member of the Hydrocephalus Association Teens Take Charge program. Read his story.