Hydrocephalus Blog & Resources
HA Established Investigator Publishes Research Findings on Congenital Hydrocephalus
James P. (Pat) McAllister, PhD, Director of Basic Hydrocephalus Research at the University of Utah and a Hydrocephalus Association Established Investigator grantee, has had his research findings related to congenital hydrocephalus published in the journal, Cell and Tissue Research.
Read MoreLooking Back…Moving Forward: Dedicated to Human and Community Service
“Be yourself, and do not let hydrocephalus define who you are.” A quote from a graduating college senior as she reflects on the 30th anniversary of the Hydrocephalus Association in our interview series.
Read MoreBehind the Recall: Codman Provides Details
The Hydrocephalus Association sits down with a vice president from Codman Neuro and two members of our Medical Advisory Board (MAB) to discuss the recent recall of CODMAN® CERTAS™ Programmable Valves, also known as shunts, and how it relates to patients. Please read and share the latest information on the recall.
Read MoreLooking Back…Moving Forward: Adding a Touch of Pixie Dust
Tina Daniels, Hydrocephalus Association Support Group leader in Owasso, OK, shares her experiences living with hydrocephalus and her decision to lead a support group.
Read MoreCodman Announces Voluntary Recall of CERTAS™ Programmable Valve
Codman announced yesterday that it has made a proactive decision to recall any CERTAS™ programmable valves still in stock at hospitals and medical facilities. According to Codman, this recall was not initiated as a result of reported problems with the shunt in patients.
Read MoreBrushes with Mortality: 5 Lessons On Dealing with Hard Times
Rachel Katz, diagnosed with hydrocephalus at the age of 12, shares the transformational gift she received after her last shunt revision. Read her blog. Be inspired.
Read MoreHCRN Update: Shunt Outcomes in Post Hemorrhagic Hydrocephalus
In a new Research Department blog series, HCRN Update, Ashly Westrick interviews Dr. Jay Wellons, principal HCRN investigator for the Shunt Outcomes in Post Hemorrhagic Hydrocephalus study.
Read MoreLooking Back…Moving Forward: It Doesn’t Make Us Different…It Makes Us Stronger
Teens Take Charge Advisory Council member, Wyatt Barris, speaks out about living with hydrocephalus and being an advocate for the condition.
Read MoreLooking Back…Moving Forward: From the NICU to Medical School
Jennifer Bechard sits down with Jamie Wright, our Support Group Leader in Houston, TX, as we continue our history series commemorating our 30th anniversary. Jamie was born six weeks prematurely, diagnosed with post-hemorrhagic hydrocephalus, and was shunted at 20 months old. She is now in her second year of medical school at the University of Texas Medical School at Houston, where she is in a combined MD/PhD program.
Read MoreI Smile Because You Are My Sibling…
The relationship between siblings is complex and sometimes even…shall we say… strained, but there is a powerful, unbreakable bond that endures through the best and hardest of times. Teens Take Charge (TTC) Advisory Council Members, Harrison Silver and Alexis Rocciola, share a special message to their siblings in our National Siblings Day blog honoring a special group of loved ones in our lives – brothers and sisters.
Read MoreUpdate on Health Care Research Funding: Hydrocephalus Association in Action
In the monthly CEO Blog, Dawn Mancuso discusses the many ways HA advocates for members of our community.
Read MoreLooking Back…Moving Forward: It’s About Relationships
HA Board Member and former VP of Sales for Medtronic, Ralph Kistler, reflects back on his 20+ year relationship with the Hydrocephalus Association.
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