Hydrocephalus Blog & Resources
Hydrocephalus Receives National Attention
TLC aired a feature piece on hydrocephalus that featured three families – Roona in India, Lyndos in Uganda, and Parker in Oklahoma.
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Why I WALK – For a Better Tomorrow
The WALK has become so important to me because I know how it feels to be alone and confused after being diagnosed with hydrocephalus.
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Splash Into Summer Fun with Summer Camp
Summer is right around the corner. Where will you child go to summer camp this year? A young adult from our community offers some insight and tips.
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Why I WALK to Raise Hydrocephalus Awareness
“…the likelihood of fraternal twins being born with the same variation of hydrocephalus was extremely rare.” One dad shares his story and the inspiration behind raising awareness.
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FDA Clears MRI-Compatible Shunt System by Medtronic
The Food and Drug Administration cleared Medtronic’s new StrataMR™ valve and shunt system for use in the United States.
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An Invisible Medical Condition and a Handicap Placard
Sometimes a disability is not readily visible. A mom shares her experience advocating for her daughter with hydrocephalus to a stranger in a parking lot.
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Hawk and Why I WALK
A member of the hydrocephalus community reflects on the birth of his son with hydrocephalus and how it has affected his life.
Read MoreSeattle area-based Cider Company Partners with National Patient Advocacy Organization to Raise Awareness for Incurable Brain Condition
Locust Cider founder, Jason Spears, announces a partnership with the Hydrocephalus Association to raise awareness and funds for education and research.
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Cerebral Palsy Benefits from Hydrocephalus Research
On National Cerebral Palsy Awareness Day, the Hydrocephalus Association is proud to support the Cerebral Palsy Research Network.
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Inspiring 26 Miles: A Posse of Penguins Take On the LA Marathon
Inspired by her cousin, Jessica, and her journey with hydrocephalus, Katie, along with other family members, set out to run the LA Marathon in Jessica’s honor.
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That Feeling of Helplessness
One mom openly and honestly shares the many emotions that challenge parents of children living with hydrocephalus.
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Overcoming Bullying through a Passion for Sports
Bryant found sports to help him get through being bullied because of his hydrocephalus. He challenges us to each find our own passion and let it grow our individual confidence and resilience.
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