Hydrocephalus and Disability Benefits

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Hydrocephalus is an abnormal accumulation of cerebrospinal fluid in the brain, which causes the ventricles to enlarge and the pressure inside the head to increase. There is no cure and the only treatment option requires brain surgery. Adults with hydrocephalus may develop symptoms of the condition slowly over time or may have a rapid onset of symptoms, which can include headaches, vision issues, vomiting, a loss of coordination and balance, fatigue, and problems with speech, memory, and thinking, as well as personality changes and impulse control issues. Anyone can develop hydrocephalus at any time from a brain injury, infection, tumor, or, for unknown reasons, as part of the aging process.

Symptoms often diminish or disappear entirely once hydrocephalus is effectively treated for some individuals, but in many individuals symptoms can persist at varying degrees and intensities, and may be permanent in some cases. If your symptoms continue to prevent you from working, then you have a strong disability application, provided you have appropriate medical evidence to back up your claim. 

Disability Benefit Programs

The Social Security Administration (SSA) provides support to disabled individuals through two separate programs:

Supplemental Security Income (SSI) benefits are available to disabled persons of any age. This program does not require you have a work record at all but it does have “financial-need” standards you must meet.

Social Security Disability Insurance (SSDI) benefits are paid to disabled workers that meet work history or work record requirements. To qualify you must have contributed to the Social Security fund through Social Security taxes during your employment history and dependent upon your age, you typically must have worked between 5 and 10 years. Younger applicants with hydrocephalus will not be expected to have worked as long as a 60-year-old applicant.

Matching a Blue Book Listing with Hydrocephalus

The SSA’s Blue Book is a manual of recognized disabilities. While there is no dedicated listing for hydrocephalus, you may qualify by showing through medical records that your symptoms are equal in severity to one of the following listed impairments:

Stroke or Traumatic Brain Injury – Section 11.04

Traumatic Brain Injury – Section 11.18

Epilepsy – Sections 11.02 and 11.03

Tumors of the head and neck – Section 13.02

Organic Mental Disorders – Section 12.02

This is not a complete list. Qualifying for benefits will hinge on finding a listing that you can meet in the Blue Book based on your own symptoms from hydrocephalus. To meet the SSA’s medical eligibility requirements, you must have:

a through medical history,

a formal diagnosis,

and detailed documentation of how your symptoms affect your daily life and abilities.

Your doctor is an invaluable resource. He or she can help you understand the Blue Book medical stipulations and can assist you in compiling required medical records.

Medically qualifying for children is different than qualifying for adults. Hydrocephalus in children is listed in the Blue Book, in Section 111.00. Your child will be able to qualify if he or she has non-compensated hydrocephalus. The hydrocephalus must also cause intellectual or motor delays.

Qualifying Under a Medical Vocational Allowance

If you’re unable to match a listed condition, then you must be able to show your everyday abilities are severely compromised by your symptoms, including things like cooking, cleaning, shopping, communicating with others, or interacting socially. The SSA will conduct a “residual functional capacity” or RFC evaluation that looks at your physical and mental limitations.

If the RFC shows:

you are not able to work in any job for which you already possess the training and skills necessary,

AND

you cannot reasonably be trained for a new job, given your education level, training, work history, and your physical and mental limitations, then you will be granted disability benefits through a medical vocational allowance. Your doctor can download an RFC evaluation online and fill it out for you.

Applying for Benefits

The SSI and SSDI programs require separate applications. The SSDI application can be completed online, but the SSI application must be filled out for you by an SSA representative, using the details you provide during your application interview. Visit the SSA’s website to start your online application, or call 1-800-772-1213 to schedule an appointment at the closest SSA office.

This article was provided by Social Security Disability Help. For any additional information, please feel free to email them at help@disability-benefits-help.org.

8 Comments for : Hydrocephalus and Disability Benefits
    • Stjohn
    • March 17, 2017
    Reply

    I applied for SSI 3 times for my daughter. She was denied 3 times and I just do not get it. There is no cure she has a VP it was placed when she was 2 days old. In my opinion she does have learning disabilities and some emotional. I gave up but after reading this I need to advocate and fight for my daughter. I know many cases where parents received from hospital assistance with how to apply for SSI and received it. However I have been denied 3 times for my daughter.

    • K O'Brien
    • March 15, 2017
    Reply

    I received social security being retired but can I get more with all my medical bills with nph

    • Monique
    • March 15, 2017
    Reply

    First I want to thank the author of this article. I wish I would have had this information in 2015 it looks like my son would of qualified for SSDI. That would have greatly helped meet the enormous financial burden we dealt with during his recovery of multiple surgeries. I am actually going to pass this on to the doctors at the rehab center so this can be shared this with other patients and their families.
    I want to point out that the “RFC evaluation online” link in your article comes up with an error.
    Again, thank you.

    • Lesli Anderson
    • March 15, 2017
    Reply

    This is excellent information that I wish I’d had ten years ago!! So glad you have this on your site!!

    • Jeff Hoag
    • March 4, 2017
    Reply

    Are you allowed to earn an income at all if receiving SSDI? I have hydrocephalus and had surgery for it but the condition was too far advanced to reverse all of the damage. I can still function in my profession, just not at a level that brings success. What are my options?

      • Lesli Anderson
      • March 15, 2017
      Reply

      You are allowed to earn an income, but it cannot exceed a specified amount or your SSDI amount will be reduced. This works well for people like me who are on SSDI but not able to work full time in my chosen profession (in fact, I am working part-time in another profession all together). You must keep up to date with the occasional paperwork they send to you, which monitors your hours and income.

    • Robert Brousseau
    • February 28, 2017
    Reply

    I was born with hydrocephalus. So I’m asking if I qualify for SSDI.

      • DOROTHY ROBERTSON
      • April 25, 2017
      Reply

      i HAVE BEEN DIAGNOSED AS HAVING HYDROCEPHALUS ABOUT 3-4 YEARS AGO. i HAVE A SHUNT. iT SEEMS I AM JUST GETTING WORSE. I need to work (nurse practitioner). I need to
      have a routine..I need to return to some independent mode.My gait is abnormal. My memory
      sucks. My feet and hands are numb. I don’t want to just lie there and waste away. I want to work..that’s my only happiness.

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