Building Better Devices: The Impact of the Hydrocephalus Engineering Workshop

August 15, 2025
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The Hydrocephalus Association with the generous support from the Rudi Schulte Research Institute hosted their…

The HAPPIER Registry Paper Is Now Published

July 30, 2025
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We’re thrilled to announce that our HAPPIER registry has been published in a scientific journal—a major step toward ensuring the voices of people with hydrocephalus and their caregivers are reflected in research.

Issue Brief: Expenses Crucial for Biomedical Research – Indirect Costs

July 21, 2025
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While indirect research costs are integral to the long-term sustainability of biomedical research institutions across…

Learning the Brain: Neuroanatomy Basics for Understanding Hydrocephalus

June 10, 2025
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Neuroanatomy Basics for Understanding Hydrocephalus: A simple guide to neuroanatomy and hydrocephalus.

When We Cut Research, We Cut Hope: The Human Cost of Medical Funding Cuts

April 4, 2025
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When we cut research, we do not just slow progress. We delay relief. We postpone innovation. And, for many patients and families, we delay hope.

A Future Without Brain Surgery? The Push for Non-Invasive Therapies for Hydrocephalus

April 1, 2025
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What if treating hydrocephalus didn’t require brain surgery? The Hydrocephalus Association (HA) is working to turn this vision into reality!

The Latest Research on Shunt Occlusion

March 13, 2025
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Understanding the cause of occluded catheters is key to improving shunt systems and brings hope that future designs will offer more reliable treatments, improving the quality of life for individuals with hydrocephalus and reducing the need for frequent surgeries.

Hydrocephalus Association Medical Advisory Board And Scientific Advisory Board Issue Response to Cuts to NIH Indirect Cost Payments

February 15, 2025
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The Hydrocephalus Association Medical Advisory Board and Scientific Advisory Board urge the Administration to rescind the directive for the National Institutes of Health (NIH) to cap indirect costs for research funding at 15%.

Exploring Emerging Technology in Smart Shunts

January 30, 2025
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To address the challenges of traditional shunt systems, scientists are developing innovative devices known as “smart shunts”. These emerging technologies aim to make hydrocephalus management easier.

Hydrocephalus Association Expresses Concern Over Executive Orders That Could Affect Hydrocephalus Research

January 28, 2025
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The Trump Administration recently issued Executive Orders that could have long-term consequences for hydrocephalus research, potentially impacting the health of hydrocephalus patients, particularly children.

Bringing in the Next Generation of Engineers in Hydrocephalus

January 21, 2025
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The Hydrocephalus Association’s research department has expanded its outreach efforts to include engineers, aiming to broaden their network beyond physicians and scientists.

Hydrocephalus Association Publishes Key Neuropsychology and Cognitive Research Priorities

January 17, 2025
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The Hydrocephalus Association (HA) is excited to announce the publication of our Research Priorities in Neuropsychology and Cognition in the Journal of Fluids and Barriers of the CNS.

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