Get Involved

The Hydrocephalus Association (HA) is dedicated to helping families and individuals whose lives have been touched by hydrocephalus as well as the professionals who are dedicated to creating a bright future through medical excellence and research. Take action and join HA in eliminating the challenges that face our community!

Sign up HERE to receive e-mails from the Hydrocephalus Association!

Get involved today.


Donate Hydrocephalus

Every dollar counts in the fight against hydrocephalus! Your donation funds programs that support our mission to eliminate this condition and to provide services to families affected by hydrocephalus. Learn about the many ways to give.


Hydrocephalus Volunteer

HA would not be where we are today without the involvement and support of our volunteers. Have you thought about playing a more active role in raising awareness and eliminating the challenges of hydrocephalus in your community or across the country? We would love to have you join our team.

WALKS and Special Events

The first Hydrocephalus Association (HA) WALK was held in 1993 in San Francisco. Since then, the WALK program has grown tremendously and now accounts for 30% of HA’s annual revenue. Our WALKS are a 100% volunteer effort, run by dedicated Chairs who generously donate their time and effort to recruit local volunteers for event planning and coordination.

Teens Take Charge (TTC)

Hydrocephalus Teens Take Charge

The Teens Take Charge (TTC) Program teaches teenagers and young adults who are affected by hydrocephalus to advocate for themselves specifically with health professionals and with their legislators. If you are between the ages of 12 – 25, visit our TTC page to learn more.

Making Waves: DIY – Do It Yourself Fundraising

The Hydrocephalus Association’s – Making Waves – Do It Yourself (DIY) – Fundraising allows you to raise awareness and help fund the search to cure hydrocephalus. Create your own webpage today and turn your favorite hobby, sport, event or celebration—you name it—into a unique awareness activity! Making Waves is for individuals, families, businesses, schools and community groups—anyone who is interested in personalizing a campaign and raising funds for HA.



The Hydrocephalus Association’s advocacy strategy spans a broad range of activities from local, grassroots awareness efforts such as our WALK program, to state level efforts to establish hydrocephalus awareness days/months, to our federal efforts which focus on research programs at the National Institutes of Health (NIH) and legislation with Congress. Grassroots Advocacy Point Persons meet with local, state and national government leaders to raise awareness and organize events within the community. Take action today!


Our biennial national conferences bring patients and caregivers, medical professionals, and medical industry representatives together in a casual environment that facilitates information-sharing, support, and community. The goal of our patient-centered conferences is to provide tools and connections to address the medical, educational and social complexities of living with hydrocephalus.



We host numerous events across the country throughout the year. Join us at one of our local events and meet other individuals living with hydrocephalus and their loved ones.

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