Whether you participate in a WALK, start a personal fundraiser, sponsor our programs, volunteer, or explore other ways to get involved, your efforts help raise awareness and provide vital support for those affected by hydrocephalus.
Ways to Make an Impact
WALK to End Hydrocephalus
Join our community of walkers and fundraisers to raise awareness, connect with others, and support those affected by hydrocephalus.
- Find a WALK to End Hydrocephalus → Search for an in-person or virtual WALK near you and register to participate.
- Sponsor a WALK → Support walkers and help us maximize the impact of every event.
- Start a WALK or a School WALK → Organize your own WALK or bring the event to your school.
Other Fundraising Ideas
There are many creative ways to raise funds for our mission—choose what inspires you!
- Join the Endurance Team → Train, challenge yourself, and raise funds to support our mission while connecting with fellow participants.
- Games4Brains → Host game nights or community events to fundraise through fun and friendly competition.
- Start a Facebook Fundraiser → Launch your own campaign online and invite friends to support you.
- Create a DIY Event → Celebrate milestones, hobbies, or personal passions while raising awareness and funds.
Participate and Connect
Join the Community
There are so many ways to engage and connect with others impacted by hydrocephalus.
- Join HAPPIER Registry → Contribute to research that helps improve treatments and outcomes for those living with hydrocephalus.
- Read Inspiring Stories and Share Yours → Learn from the experiences of others, share your journey, and build meaningful connections.
- Help Raise Awareness → Use our toolkits and social sharing resources to educate your friends, family, and community about hydrocephalus.
- Connect with Us → Join our community on Facebook, Twitter, Instagram, and LinkedIn to stay updated on hydrocephalus news, events, and stories.
- Become an Advocate → Support policy and research at a systemic level.
It’s important to know that you’re not alone as you deal with hydrocephalus. Get connected to others impacted by hydrocephalus by joining one of the Hydrocephalus Association’s over 42 Community Networks. Community Networks provide localized support, education, and empowerment, hosting educational events, support group meetings, and other gatherings.
Are you passionate about finding a cure for hydrocephalus and helping families impacted by hydrocephalus? Fuel your passion by volunteering with the Hydrocephalus Association! There are a number of ways you can volunteer your time to help us achieve our mission, no matter where you’re located or how much time you have to give.
Find an Event
Connect with others through Community Network events, support group meetings, and other gatherings near you. You can also participate in free webinars, education days, advocacy events and meetings, and programs designed to inform, empower, and bring the community together, both in person and virtually.
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National Conference on Hydrocephalus: HA CONNECT 2026
Join us July 23-25, 2026 in Indianapolis, Indiana for our 19th National Conference on Hydrocephalus, HA CONNECT.
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2026 Grandma’s Marathon
The 2026 Grandma’s Marathon is officially sold out! The only way to secure your bib is through the Charity Partners Program — and we’re thrilled to be one of them!
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Virtual Meetup | Teens are getting together, Let’s Stay Connected!
We are bringing together teens across the US to check in and laugh a little! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
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Virtual Meetup | Teens are getting together, Let’s Stay Connected!
We are bringing together teens across the US to check in and laugh a little! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.
Find a WALK Near You
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NW Arkansas WALK to End Hydrocephalus
When you take part in a WALK, you join more than 1 million Americans and their families who want to change the future of hydrocephalus!
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Denver WALK to End Hydrocephalus
When you take part in a WALK, you join more than 1 million Americans and their families who want to change the future of hydrocephalus!
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Columbia, SC WALK to End Hydrocephalus
When you take part in a WALK, you join more than 1 million Americans and their families who want to change the future of hydrocephalus!
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Jersey Shore WALK to End Hydrocephalus
When you take part in a WALK, you join more than 1 million Americans and their families who want to change the future of hydrocephalus!
HydroAssist®
Now you can take your entire hydrocephalus treatment history with you on your mobile device! HydroAssist® is the first mobile app that allows you to record and store your hydrocephalus treatment history and access it when you need it from your mobile device or through your computer or laptop. Perfect for the individual living with hydrocephalus and the caregiver.
