Advocacy

Patient Engagement: A Key Healthcare Priority

June 3, 2024

The Hydrocephalus Association recently partnered with the Defense Health Research Consortium (DHRC) to host a research-centered Congressional Briefing on Capitol Hill.

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Get the Hydrocephalus Scoop on Capitol Hill for May 2024

June 3, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Get the Hydrocephalus Scoop on Capitol Hill for April 2024

May 7, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Get the Hydrocephalus Scoop on Capitol Hill for March 2024

April 8, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Hydrocephalus Association Congressional Briefing on Capitol Hill

April 5, 2024

The Hydrocephalus Association recently partnered with the Defense Health Research Consortium (DHRC) to host a research-centered Congressional Briefing on Capitol Hill.

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Hydrocephalus Association Highlights Revolutionary Women in Medical Research

March 13, 2024

Celebrate Influential Leaders during National Women’s History Month. Dr. Robinson & Dr. Jantzie are both revolutionary women making strides for hydrocephalus

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Get the Hydrocephalus Scoop on Capitol Hill for February 2024

March 8, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Hydrocephalus Association Advocates for Rare Disease Week

Hydrocephalus Association Unites Advocates for 2024 Rare Disease Week

March 5, 2024

Members from the Hydrocephalus Association Action Network came to Washington, DC, to participate in the Everylife Foundation for Rare Disease’s Rare Disease Week, which took place from February 25-28, 2024.

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Get the Hydrocephalus Scoop on Capitol Hill for January 2024

February 6, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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The Hydrocephalus Scoop on Capitol Hill for December 2023

January 2, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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The Hydrocephalus Scoop on Capitol Hill for November 2023

December 8, 2023

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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The Hydrocephalus Scoop on Capitol Hill for October 2023

October 31, 2023

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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The Hydrocephalus Scoop on Capitol Hill for September 2023

October 2, 2023

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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The Hydrocephalus Scoop on Capital Hill for May 2023

June 1, 2023

Right now, Congress has two important tasks as it works to increase the country’s debt limit and also come to agreement on how much money will be spent in next year’s federal budget. Here’s the scoop on what’s happening on hydrocephalus issues.

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Resources for Lawmakers

August 29, 2022

Are you having a meeting with an elected official that you would like to get involved with the mission of HA? Find resources, that you can leave with individuals at the end of your meeting or send via email as part of your follow-up.

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The Hydrocephalus Scoop on Capitol Hill: Jan/Feb 2022 Update

February 7, 2022

It’s been a busy time in Congress. Find out what we’ve been up to on Capitol Hill!

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The Hydrocephalus Scoop on Capitol Hill – Sept/Oct 2021

October 4, 2021

The Hydrocephalus Association has been busy protecting hydrocephalus-related research dollars in Congress, and working with members Congress to recognize National Hydrocephalus Awareness Month.

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Coalitions and Memberships

February 3, 2021

Coalitions and Memberships The Hydrocephalus Association collaborates with various organizations and coalitions on policy issues…

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Tips on Writing Your Legislator

January 21, 2021

Keep your email or letter short and to the point. Use only enough facts to…

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Tips on Calling Your Legislator

January 21, 2021

Before making a call, write out what you want to say. Know the issue. Be…

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