Resources for Lawmakers
Are you having a meeting with an elected official that you would like to get involved with the mission of HA? Find resources, that you can leave with individuals at the end of your meeting or send via email as part of your follow-up.
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The Hydrocephalus Scoop on Capitol Hill: Jan/Feb 2022 Update
It’s been a busy time in Congress. Find out what we’ve been up to on Capitol Hill!
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The Hydrocephalus Scoop on Capitol Hill – Sept/Oct 2021
The Hydrocephalus Association has been busy protecting hydrocephalus-related research dollars in Congress, and working with members Congress to recognize National Hydrocephalus Awareness Month.
Read More >Coalitions and Memberships
The Hydrocephalus Association collaborates with various organizations and coalitions on policy issues that affect the…
Read More >Tips on Writing Your Legislator
Keep your email or letter short and to the point. Use only enough facts to…
Read More >Tips on Calling Your Legislator
Before making a call, write out what you want to say. Know the issue. Be…
Read More >Tips for Meeting with Elected Officials
As many of you know from attending one of our Advocacy Days, a personal visit…
Read More >Congressional Pediatric and Adult Hydrocephalus Caucus
The Congressional Pediatric and Adult Hydrocephalus Caucus works to increase awareness of hydrocephalus and the…
Read More >Advocate With Us
The best advocates are patients, family members, medical caregivers, and others who are directly affected by the condition – WE NEED YOU!
Read More >Our Advocacy Impact
We started our advocacy efforts in the late 1990s, representing the patient community at a handful of federally-hosted events. It was not until 2004 that we began to formalize an advocacy strategy when we put the wheels in motion for the first NIH sponsored workshop on hydrocephalus in September of 2005.
Read More >Our Advocacy Strategy
Alongside the hydrocephalus community, we advocate for policies, programs and agencies that help advance research…
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