Coalitions and Memberships

By Natalia Martinez Duncan / February 3, 2021

The Hydrocephalus Association collaborates with various organizations and coalitions on policy issues that affect the hydrocephalus community. By partnering with other like-minded organizations, we can provide a stronger, unified voice…

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Tips on Writing Your Legislator

By Natalia Martinez Duncan / January 21, 2021

Keep your email or letter short and to the point. Use only enough facts to make your statement. Tell your story. Keep your email or letter to one page and…

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Tips on Calling Your Legislator

By Natalia Martinez Duncan / January 21, 2021

Before making a call, write out what you want to say. Know the issue. Be prepared so you can confidently tell your story and ask for the change you want.…

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Tips for Meeting with Elected Officials

By Natalia Martinez Duncan / January 21, 2021

As many of you know from attending one of our Advocacy Days, a personal visit is a highly effective tool to communicate your priorities to your legislators. Flexibility is always…

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Congressional Pediatric and Adult Hydrocephalus Caucus

By Natalia Martinez Duncan / June 4, 2020

The Congressional Pediatric and Adult Hydrocephalus Congress works to increase awareness of hydrocephalus and the myriad of medical, educational, and social issues faced by the over 1 million Americans living…

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Advocate With Us

By Natalia Martinez Duncan / June 4, 2020

RAISE YOUR VOICE! The Hydrocephalus Action Network (HAN) is a grassroots network of volunteers “at the ready” who are willing to take action to help the Hydrocephalus Association advocate on behalf…

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Our Advocacy Impact

By Natalia Martinez Duncan / June 4, 2020

We started our advocacy efforts in the late 1990s, representing the patient community at a handful of federally-hosted events. It was not until 2004 that we began to formalize an…

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Our Advocacy Strategy

By Natalia Martinez Duncan / April 22, 2020

Alongside the hydrocephalus community, we advocate for policies, programs and agencies that help advance research into a cure for hydrocephalus and new treatment options, improve the lives of the over…

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