Coalitions and Memberships
The Hydrocephalus Association collaborates with various organizations and coalitions on policy issues that affect the hydrocephalus community. By partnering with other like-minded organizations, we can provide a stronger, unified voice…
Read MoreTips on Writing Your Legislator
Keep your email or letter short and to the point. Use only enough facts to make your statement. Tell your story. Keep your email or letter to one page and…
Read MoreTips on Calling Your Legislator
Before making a call, write out what you want to say. Know the issue. Be prepared so you can confidently tell your story and ask for the change you want.…
Read MoreTips for Meeting with Elected Officials
As many of you know from attending one of our Advocacy Days, a personal visit is a highly effective tool to communicate your priorities to your legislators. Flexibility is always…
Read MoreCongressional Pediatric and Adult Hydrocephalus Caucus
The Congressional Pediatric and Adult Hydrocephalus Congress works to increase awareness of hydrocephalus and the myriad of medical, educational, and social issues faced by the over 1 million Americans living…
Read MoreAdvocate With Us
RAISE YOUR VOICE! The Hydrocephalus Action Network (HAN) is a grassroots network of volunteers “at the ready” who are willing to take action to help the Hydrocephalus Association advocate on behalf…
Read MoreOur Advocacy Impact
We started our advocacy efforts in the late 1990s, representing the patient community at a handful of federally-hosted events. It was not until 2004 that we began to formalize an…
Read MoreOur Advocacy Strategy
Alongside the hydrocephalus community, we advocate for policies, programs and agencies that help advance research into a cure for hydrocephalus and new treatment options, improve the lives of the over…
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