Know You're Not Alone
We are here to help you live your best life.
Find essential tools and resources to help you advocate for yourself, make informed decisions, and manage your daily needs.
NPH and Rehabilitation Services
Undergoing surgery is a critical first step to regaining functionality lost to normal pressure hydrocephalus (NPH), but it may not be the whole solution. After surgery, physical therapy, occupational therapy, and other rehabilitation strategies may be advised to help you or your loved one attain as much resolution of symptoms as possible.
Navigating Your Care
Once you receive a hydrocephalus diagnosis, choosing your doctor is one of the most important decisions you will make. We have developed resources to help you explore the diverse range of specialists who cater to individuals with hydrocephalus, along with tips to aid in finding the best fit for your needs.
Related Health Conditions
It's not uncommon for individuals with hydrocephalus to experience additional symptoms or comorbidities, whether predating the diagnosis or emerging later on. Many people have to manage additional health issues such as headaches, chronic pain, and epilepsy, among others.
Healthy Living
Staying healthy, from the inside out, is key to maintaining a good quality of life when living with normal pressure hydrocephalus (NPH). Gain tips and tools to optimize your body and mind so you can live your best life!
Top Resources
Our association offers trusted, high-quality resources to empower you.
Hydrocephalus Stories
from Individuals in Our Community
Our community is brave, resilient, and inspiring. Read stories from individuals with hydrocephalus.
Diagnosed at 62
Olga
Story Written by Self
Olga confronted unexpected health hurdles at 62. From navigating unexplained falls to advocating for her treatment, her story embodies resilience.
Diagnosed at 67
Evelyn
Story Written by Author/Self
Evelyn shares how the surgical placement of a shunt for NPH transformed her life.
Diagnosed at 75
John
Story Written by Wife
Sukey shares her husband’s journey with normal pressure hydrocephalus (NPH).
Diagnosed at 79
Mira
Story Written by Author/Self
Mira was diagnosed with NPH at the age of 79. She believes in early detection of hydrocephalus.
Diagnosed at 62
Kim
Story Written by Author/Self
Kim was diagnosed with normal pressure hydrocephalus (NPH) at the age of 62.
Diagnosed at 66
Trish
Story Written by Author/Self
Trish was diagnosed with NPH and had shunt surgery. Thanks to that and several kinds of therapy, Trish is now back to doing what she loves.