Resources
HA CONNECT: Where I Found Life-changing Community
The National Conference on Hydrocephalus, HA CONNECT, is where Carly found real connection, understanding, and lifelong friendships, no longer feeling alone in her journey.
Hydrocephalus Association Scholarship: Top Application Tips
Prepare a strong Hydrocephalus Association (HA) Scholarship application with key tips to stay organized, plan ahead, and submit your best work.
Government Benefits for People Living with Hydrocephalus
Learn how government benefits support people with hydrocephalus through financial assistance, medical coverage, and programs that help improve daily life.
Tips for Navigating the Holidays With Hydrocephalus
Navigating the holidays with hydrocephalus can be challenging. Learn tips for managing symptoms, reducing stress, and finding meaningful ways to celebrate.
Body Image and Scars: Living with Hydrocephalus
Scars from hydrocephalus surgery can impact body image and confidence. This article explores why scars can feel overwhelming and how to rebuild self-acceptance.
Abdominal Pain and Shunts
Understand how abdominal pain may relate to your shunt, what the causes may be, and when to contact your doctor.
Lumbar Puncture Explained: How It Helps Diagnose NPH
A lumbar puncture, or tap test, helps diagnose normal pressure hydrocephalus (NPH) by draining cerebrospinal fluid and assessing changes in gait.
Attitude of Gratitude: Staying Positive with NPH
Attitude of Gratitude: Dorothy embraces life with NPH and other health challenges, turning obstacles into opportunities for gratitude and growth
Emotional Impact of Chronic Pain: Finding Acceptance
Emotional impact of chronic pain can feel overwhelming. Explore ways to heal emotionally, embrace acceptance, and live with renewed purpose.
Dating With Hydrocephalus: Confidence and Boundaries
Learn how to approach dating with hydrocephalus—build confidence, set healthy boundaries, and create relationships grounded in trust and self-love.
Hydrocephalus versus NPH: What’s the Difference?
Many people under 60 think they have NPH—but it’s almost always seen in older adults. Learn the real causes of symptoms and how to get the right diagnosis.
Podcast: Dancing in the Rain: Scott + Angelica’s Story of Hope + Healing
In this heartfelt finale, Scott shares his journey through Angelica’s diagnosis, caregiving, and finding humor, hope, and resilience in the hardest moments.
Shunt Infection: Symptoms, Treatment, and Recovery
Learn how to recognize, treat, and recover from a shunt infection. Understand symptoms, surgery, and infection risks for different shunt types.
Tests to Diagnose Shunt or ETV Failure
Learn how doctors use imaging, fluid tests, and pressure monitoring to diagnose shunt or ETV malfunction in people with hydrocephalus.
Growing Up with Hydrocephalus: Finding My Own Timeline
Growing up with hydrocephalus taught Jenna to let go of expectations and embrace her own pace on a path that’s uniquely hers.
Understanding Continuous Lumbar CSF Drainage for NPH
Continuous lumbar CSF drainage is a hospital-based procedure and vital diagnostic tool for normal pressure hydrocephalus (NPH), helping predict response to shunt surgery.
Hydrocephalus in High School: Coping with Chronic Pain
Growing up with hydrocephalus in high school meant facing chronic pain, self-advocacy, and learning to trust your body when others didn’t believe you.
Podcast: The Search for the Silver Lining: Melissa & Abagail’s Hydrocephalus Story
Melissa joins the podcast to share Abagail’s hydrocephalus journey, reflecting on resilience, advocacy, and finding laughter along the way.
Podcast: Helping Children with Hydrocephalus Thrive with Neuropsychologist Dr. Jennifer Queally
In our podcast, neuropsychologist Dr. Jennifer Queally shares how hydrocephalus impacts learning and offers strategies for kids to thrive.
Podcast: Understanding Hydrocephalus: A Conversation with Pediatric Neurosurgeon Dr. Ramin Eskandari
This podcast explores hydrocephalus, treatment options, warning signs, and expert advice from Dr. Ramin Eskandari to guide patients and families.