Resources
Understanding Anxiety, Depression, and Mental Health in Hydrocephalus
Anxiety and depression are common in people living with chronic conditions. Hydrocephalus is no exception. The link between hydrocephalus and mental health is influenced by a combination physical, emotional, and social factors. Explore how hydrocephalus impacts mental health, including anxiety and depression, and discover therapies like CBT and ACT, along with strategies for emotional well-being. Explore how hydrocephalus impacts mental health, including anxiety and depression, and discover therapies like CBT and ACT, along with strategies for emotional well-being.
Read More
Understanding a Shuntogram (Shunt Patency Study)
A shuntogram, or shunt patency study, checks if a shunt is working properly by tracking fluid flow to identify blockages or leaks.
Read More
Understanding External Ventricular Drains (EVDs) in Hydrocephalus Management
External Ventricular Drains (EVDs) are crucial for managing hydrocephalus, providing temporary relief and helping treat infections or test shunt effectiveness. Understanding their use can help patients and families feel more confident.
Read More
Understanding Intracranial Pressure (ICP) Monitors in Hydrocephalus: When and Why They’re Used
Intracranial pressure (ICP) monitors are essential for managing hydrocephalus, offering real-time insights into intracranial pressure. They help diagnose symptoms, evaluate shunt performance, and guide treatment decisions, empowering patients and families to actively participate in care.
Read More
Guide to Managing Chronic Pain, Headaches, and Hydrocephalus
Chronic pain and headaches can impact every aspect of life, but with the right strategies, relief is possible. This guide offers practical tips for managing symptoms, including tracking with HydroAssist®, staying hydrated, prioritizing sleep, and exploring stress management and alternative therapies to improve daily well-being.
Read More
How to Explain Hydrocephalus to Your Teachers and Friends
Hydrocephalus can be tricky to explain, but keeping it simple helps: Share what’s important for others to know, like when you might need a break, and remember—it’s your story to tell, your way.
Read More
Looking Back at Key Accomplishments in 2024
2024 was a year full of legislative accomplishments for the Hydrocephalus Association and the broader hydrocephalus community. Our successes could not have been achieved without the hard work of advocates from across the country. Partners in Congress were some of the strongest contributors for our mission as well.
Read More
U.S. House Foreign Affairs Committee Holds Hearing on the Challenges Affecting Global Hydrocephalus Patients
The House Foreign Affairs Subcommittee’s November 20th hearing discussed global brain health challenges, focusing on hydrocephalus in developing countries. Experts, including Dr. Benjamin Warf of NeuroKids, highlighted the need for better care and training to support patients, particularly in low-resource regions. The hearing also addressed the lack of USAID programs for brain health and the importance of international aid for hydrocephalus treatment.
Read More
Navigating Relationships with Hydrocephalus: Building Strong Connections
Navigating relationships with hydrocephalus requires patience, open communication, and mutual support. With understanding and balance, strong connections can thrive beyond the challenges.
Read More
Intimacy and Hydrocephalus: Strengthening Bonds Together
Learn how hydrocephalus affects intimacy and find ways to strengthen emotional and physical connections in romantic relationships.
Read More
Maximizing Your Doctor Appointments: Tips, Tools, and Insights
Doctor appointments can be overwhelming, but preparation is the key to making them count. This article offers practical tips, trusted resources, and insights from those living with hydrocephalus to help you take charge of your healthcare journey and get the answers you need.
Read More
The Exclusive Hydrocephalus Scoop on the Hill | Key Updates for November 2024
Washington, D.C. is buzzing as Congress pushes key legislation and the Hydrocephalus Association partners with advocates to drive priorities forward. With government funding set to expire on December 20th, a short-term resolution is likely. The new presidential administration and Congress will bring major changes, especially in the first 100 days. Stay tuned!
Read More
The Power of a Second Opinion: Advocating for Your Health
Even though second opinions are a common and accepted practice in medicine, many people feel uncomfortable asking for them.
Read More
Join a Clinical Trial
Help further hydrocephalus research by participating in clinical research trials. Your input is valuable in our quest to find a cure for hydrocephalus.
Read More
Announcing the 2024 Hydrocephalus Association Innovator Award Recipients
The Innovator Awards fund groundbreaking projects advancing hydrocephalus research, driving innovation, and improving outcomes for those impacted worldwide.
Read More
Breaking Myths About Hydrocephalus: What’s Fact and What’s Fiction?
Hydrocephalus is often misunderstood, with myths overshadowing the realities of this invisible condition. This blog breaks down common misconceptions, highlights the facts, and sheds light on the challenges faced by those living with hydrocephalus, proving that what you see on the outside doesn’t always reflect the struggles within.
Read More
Understanding Cerebral/Cortical Visual Impairment (CVI) and Hydrocephalus: How Vision Can Be Affected
Cerebral Visual Impairment (CVI) affects how the brain processes visual information. This article highlights the link between CVI and hydrocephalus, its impact on vision, and ways to support those affected.
Read More
Strategies for Coping with Memory Issues and Forgetfulness
Memory challenges can impact daily life in many ways, whether they’re related to managing medical conditions like hydrocephalus or are part of the natural aging process. Here are some practical strategies, tools, and resources to help manage forgetfulness and enhance your memory.
Read More
What Hydrocephalus Patients Should Know for Medicare Open Enrollment
As Medicare beneficiaries navigate through the open enrollment period, it is crucial for them to understand the surplus of 2025 changes as they choose a new Medicare insurance plan. The Medicare Open Enrollment Period began on October 15 and will close on December 7th.
Read More
Get the Exclusive Hydrocephalus Scoop on Capitol Hill for October 2024
As healthcare advocates race to secure passage of critical bills before the end of the 118th Congress, the Hydrocephalus Association (HA) is joining forces on Capitol Hill, advocating for vital legislation to support Medicare coverage for breakthrough devices, strengthen the medical workforce, ensure fair billing practices, fund brain research, and raise hydrocephalus awareness.
Read More