WALK to End Hydrocephalus® Participant Privacy Policy

March 8, 2022
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This privacy policy governs your use of the software application WALK to End Hydrocephalus® for mobile devices.

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HydroAssist® Partners

March 3, 2022
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The Hydrocephalus Association would like to thank the organizations and industry partners that support HydroAssist®…

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HydroAssist® Terms of Use

February 7, 2022
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Disclaimer and End-User License Agreement DISCLAIMER THIS APPLICATION IS MADE AVAILABLE BY THE HYDROCEPHALUS ASSOCIATION…

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Transitioning to College: Healthcare Management

December 13, 2021
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For many young adults living with hydrocephalus, college is the first time they are managing their medical condition(s) on their own, particularly if the individual has moved away from home to live on campus. For this reason, it is important to put into place a plan for local care, particularly in the event of a medical emergency.

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Transitioning to College: Academics

December 13, 2021
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There are a lot of moving parts once a student with hydrocephalus commits to a college and moves on to requesting accommodations (for those that need them), honing their self-advocacy skills, and preparing to navigate their health and wellness needs independently.

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Choosing the Right College

December 13, 2021
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Alongside the typical comparisons for choosing a college, like cost, distance from home, academic major, etc., students with hydrocephalus should consider proximity to a medical center with neurosurgical care as well as compare the services and supports that the school offers.

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College Status and Leave Policies

December 13, 2021
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Students with hydrocephalus may require more flexibility in their college experience, due to unpredictable hospitalization, medical procedures, and illness. It’s important for students and families to understand the policies on full- and part-time student status as well as leaves of absence before committing to a school.

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College Programs for Academic and Accessibility Support

December 13, 2021
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Academic support varies across colleges, from peer tutoring and writing centers to specialized programs to schools completely built around educating students with learning disabilities. Additionally, some schools are well known for their inclusive approach to physical accessibility.

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Differences Between High School and College Accommodations

December 13, 2021
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It is important for students and families to understand that the services, supports, and accommodations that a student received in high school may not be available in the college setting. The responsibility for requesting and managing accommodations also rests fully on the student, unless a FERPA waiver is on file with the school.

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The College Search

December 13, 2021
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There is a lot to consider when thinking about transitioning to college with hydrocephalus. Beyond the typical considerations around academic fit and cost, you will also need to think about your medical needs and what accommodations and support are available on campus.

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Mental Health and Wellness for College Students

December 13, 2021
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College is an exciting time for many students but it can also be overwhelming, as students transition to a more independent lifestyle with new academic and social pressures. It can be a lot for some students, but many colleges are actively working to provide holistic support to student health and wellness.

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Timeline for a Successful Transition to Adult Care

October 21, 2021
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Mapping out a path to taking over your medical care once you are of legal age and/or ready to move away from home will help you have a successful transition into the adult medical world.

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Complications of ETV

The Importance of a Support System

October 19, 2021
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Living with hydrocephalus can feel overwhelming at times. That’s why building a strong support system is so important. Our team of trained professionals is here to help! Our staff will listen to your concerns and connect you with helpful resources.

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9 Foods to Nourish Brain Health

May 4, 2021
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After having brain surgery, eating nutrient-dense foods that support your brain can promote healing. Learn more about the 9 foods that can help nourish brain health.

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Toolkit for Transitioning Medical Care

March 31, 2021
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Working with both pediatric and adult providers, we have developed a tool for you to use to help ensure a smooth transition of care.

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Teacher’s Guide: Late Elementary (Grades 3-5)

March 26, 2021
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Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.

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Teacher’s Guide: Early Elementary (K-2nd)

March 26, 2021
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Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.

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Teacher’s Guide to Hydrocephalus: High School

March 25, 2021
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Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.

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Teachers’ Guide: Middle School (6th-8th)

March 25, 2021
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Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.

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Health Challenges and School

March 18, 2021
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Hydrocephalus, as well as the other medical conditions that can accompany it, can have an impact on a child’s ability to participate fully in school.

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