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Our Advocacy Impact

June 4, 2020

We started our advocacy efforts in the late 1990s, representing the patient community at a handful of federally-hosted events. It was not until 2004 that we began to formalize an advocacy strategy when we put the wheels in motion for the first NIH sponsored workshop on hydrocephalus in September of 2005.

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NPH and Comorbidities

April 21, 2020

NPH can frequently co-exist with other age-related neurologic and medical conditions that may produce similar symptoms.

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You or Your Loved One Has Just Been Diagnosed – What’s Next?

April 16, 2020

Have you or a loved one been newly diagnosed with hydrocephalus? We’re here to help you on this journey!

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Make a Stock Donation

March 9, 2020

Did you know that donating stock is one of the smartest ways to give — and it benefits you while supporting the Hydrocephalus Association?

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Join the Hydrocephalus Patient Registry

March 3, 2020

Share your experiences and help inform critical hydrocephalus research!   What is HAPPIER? HAPPIER is…

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HydroAssist® Development Team

March 2, 2020

HydroAssist® was developed by an adult neurologist, a pediatric neurosurgeon, a medical app developer, and a representative from the Hydrocephalus Association.

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About HydroAssist® Mobile Application

March 2, 2020

HydroAssist® is the first mobile app that allows you to record and store your hydrocephalus treatment history and access it when you need it from your mobile device, computer, or laptop.

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Transition Initiative: Transitioning from Pediatric to Adult Care

March 2, 2020

A major milestone in a young adult living with hydrocephalus is the transition from pediatric to adult medical care. Learn about the HA Transition Initiative.

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About Scholarship Funding

February 24, 2020

The Hydrocephalus Association is grateful to all the donors who generously fund the different scholarships. Learn More.

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How to Apply

February 24, 2020

The Hydrocephalus Association’s Scholarship Program proudly offers scholarships to young adults with hydrocephalus. Learn more about instructions and criteria.

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Summer Camp

February 24, 2020

If you think that your child’s condition will prevent him or her from participating in a summer camp, it’s time to think again. Learn more about camps available!

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woman on the phone support line

Helpline

February 24, 2020

It’s not uncommon to feel overwhelmed when dealing with a chronic medical condition. Through the helpline, we answer your questions and refer you to resources.

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HydroAssist® Technical Support

February 24, 2020

Questions about HydroAssist®? Find your answers here.

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HydroAssist® Privacy Policy

February 24, 2020

This privacy policy governs your use of the software application HydroAssist® for mobile devices.

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Primary Care Needs of Children with Hydrocephalus

February 24, 2020

Children with hydrocephalus may have life-long special health needs. It’s key that caregivers understand hydrocephalus to provide the right primary healthcare.

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Social Skills Development in Children with Hydrocephalus

February 24, 2020

Some kids with hydrocephalus face difficulty developing their social skills. This article talks about those difficulties and suggests tools for overcoming them.

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Medical Alert IDs and Hydrocephalus

February 24, 2020

Without proper ID of a medical condition, common symptoms can be misdiagnosed and appropriate care could be jeopardized or delayed. Learn more about Medical Alert IDs.

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Living Independently

February 24, 2020

Hydrocephalus can affect your independence and day-to-day needs, and there are additional considerations to keep in mind. Learn more about living independently and hydrocephalus.

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Preparing for College

February 23, 2020

Are you preparing for college? Learn about the important issues to consider when you’re living with hydrocephalus.

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Driving and Hydrocephalus

February 23, 2020

Driving is often seen as a rite of passage into adulthood. However, it’s not uncommon for individuals with hydrocephalus to experience challenges.

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