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Teachers’ Guide: Middle School (6th-8th)

March 25, 2021

Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.

Health Challenges and School

March 18, 2021

Hydrocephalus, as well as the other medical conditions that can accompany it, can have an impact on a child’s ability to participate fully in school.

Back To School Checklist

January 20, 2021

It’s that time of the year – back to school time! Here is a checklist that includes a couple of simple tips for starting the school year on the right foot.

Recovering and Maintaining Functionality

January 13, 2021

Symptom improvement after shunt surgery to treat NPH is impacted by a number of variables. After surgery, PT, OT, and other therapies may be advised to help.

Coping with Hospital Stays

January 12, 2021

If you have hydrocephalus, the hospital may be a very familiar place. Learn tips and tools on how to cope with hospitalizations.

Sending your Child to Daycare

January 11, 2021

Sending off a child to daycare is scary on its own. We have developed a checklist to help you prepare.

Prenatal FAQ Checklist for Expectant Parents

January 11, 2021

Receiving an unexpected prenatal diagnosis of hydrocephalus can be difficult to handle. Expectant parents can experience a range of emotions. We’re here for you.

COVID-19 Guidance for People Living with Hydrocephalus

December 28, 2020

We know that the coronavirus (COVID-19) pandemic is causing concern and raising questions. To help you navigate, here you’ll find information and recommendations.

Medical Advisory Board

December 15, 2020

The Medical Advisory Board (MAB) of the Hydrocephalus Association was established for the purpose of providing advice and guidance to the staff and Board of Directors.

Annual Reports and Financials

December 4, 2020

The Hydrocephalus Association is a donor-funded, 501(c)(3) nonprofit that has earned high marks from Guidestar,…

Charity Ratings

December 4, 2020

In 2022, over 84% of the Hydrocephalus Association’s total operating expenses were used to support…

2019-2022 Strategic Plan

December 4, 2020

PILLAR 1: FIND AND ENGAGE THE HYDROCEPHALUS COMMUNITY The Hydrocephalus Association still remains relatively unknown…

Workplace Giving

November 3, 2020

Workplace giving is a simple and effective way for you to support the Hydrocephalus Association’s…

The CSF Shunt Entry Site Study

November 3, 2020

A Randomized Controlled Trial of Anterior versus Posterior Entry Site for CSF Shunt Insertion Participating…

Genetic Causes of Congenital Hydrocephalus Research Study

November 3, 2020

The Hydrocephalus Association invites you to participate in an HIC/IRB-approved study currently being conducted by principal investigator Kristopher T. Kahle, M.D., Ph.D. (Yale), Murat Gunel, M.D. (Yale), and Richard Lifton, M.D., Ph.D. (Rockefeller University and Howard Hughes Medical Institute).

Cerebrospinal Fluid Dynamics Relevant to Hydrocephalus

September 3, 2020

Cerebrospinal Fluid (CSF) flows through the four ventricles and then flows between the meninges in an area called the subarachnoid space.

Learning Disabilities in Children with Hydrocephalus

August 18, 2020

Learning disabilities (difficulties) are not uncommon in kids with hydrocephalus. Parents must be prepared to act early to give their child the best chance for success.