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9 Foods to Nourish Brain Health
After having brain surgery, eating nutrient-dense foods that support your brain can promote healing. Learn more about the 9 foods that can help nourish brain health.
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Toolkit for Transitioning Medical Care
Working with both pediatric and adult providers, we have developed a tool for you to use to help ensure a smooth transition of care.
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Teacher’s Guide to Hydrocephalus: High School
Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.
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Health Challenges and School
Hydrocephalus, as well as the other medical conditions that can accompany it, can have an impact on a child’s ability to participate fully in school.
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Back To School Checklist
It’s that time of the year – back to school time! Here is a checklist that includes a couple of simple tips for starting the school year on the right foot.
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Recovering and Maintaining Functionality
Symptom improvement after shunt surgery to treat NPH is impacted by a number of variables. After surgery, PT, OT, and other therapies may be advised to help.
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Coping with Hospital Stays
If you have hydrocephalus, the hospital may be a very familiar place. Learn tips and tools on how to cope with hospitalizations.
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Sending your Child to Daycare
Sending off a child to daycare is scary on its own. We have developed a checklist to help you prepare.
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Prenatal FAQ Checklist for Expectant Parents
Receiving an unexpected prenatal diagnosis of hydrocephalus can be difficult to handle. Expectant parents can experience a range of emotions. We’re here for you.
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COVID-19 Guidance for People Living with Hydrocephalus
We know that the coronavirus (COVID-19) pandemic is causing concern and raising questions. To help you navigate, here you’ll find information and recommendations.
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Medical Advisory Board
The Medical Advisory Board (MAB) of the Hydrocephalus Association was established for the purpose of providing advice and guidance to the staff and Board of Directors.
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Annual Reports and Financials
The Hydrocephalus Association is a donor-funded, 501(c)(3) nonprofit that has earned high marks from Guidestar,…
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Charity Ratings
In 2022, over 84% of the Hydrocephalus Association’s total operating expenses were used to support…
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2019-2022 Strategic Plan
PILLAR 1: FIND AND ENGAGE THE HYDROCEPHALUS COMMUNITY The Hydrocephalus Association still remains relatively unknown…
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The CSF Shunt Entry Site Study
A Randomized Controlled Trial of Anterior versus Posterior Entry Site for CSF Shunt Insertion Participating…
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Genetic Causes of Congenital Hydrocephalus Research Study
The Hydrocephalus Association invites you to participate in an HIC/IRB-approved study currently being conducted by principal investigator Kristopher T. Kahle, M.D., Ph.D. (Yale), Murat Gunel, M.D. (Yale), and Richard Lifton, M.D., Ph.D. (Rockefeller University and Howard Hughes Medical Institute).
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Cerebrospinal Fluid Dynamics Relevant to Hydrocephalus
Cerebrospinal Fluid (CSF) flows through the four ventricles and then flows between the meninges in an area called the subarachnoid space.
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Learning Disabilities in Children with Hydrocephalus
Learning disabilities (difficulties) are not uncommon in kids with hydrocephalus. Parents must be prepared to act early to give their child the best chance for success.
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Individualized Education Program (IEP)
Guidance for parents so they can learn how to develop and maintain good communication between with school personnel.
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Recipients by Scholarship
Read more about the recipients of the Hydrocephalus Association’s Scholarship program.
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