Hydrocephalus Blog & Resources
Congressman Lloyd Doggett Recognizes September as Hydrocephalus Awareness Month
Raises awareness of the leading cause of brain surgery in children. There are over 1…
Read MoreLocal Mom on a Mission to Find a Cure for Son’s Brain Disorder
Will take part in Cincinnati WALK to End Hydrocephalus on Oct. 3rd Chase Parker Lorenzo…
Read MoreMassachusetts Governor Names September Hydrocephalus Awareness Month
Hydrocephalus is the leading cause of brain surgery in children. Every 15 minutes, a brain…
Read MoreMake Some Noise for Hydrocephalus Awareness Month!
September is Hydrocephalus Awareness Month (HAM), our chance to shine a light on hydrocephalus and how it impacts our community!
Read MoreAnnouncement About Anuncia ReFlowTM System Mini
Earlier this year, Anuncia Inc., a medical device company focused on the development of treatment devices for hydrocephalus and other cerebrospinal fluid (CSF) disorders, announced that the ReFlowTM System Mini received the U.S Food and Drug Administration (FDA) Breakthrough Device Designation. The ReFlowTM System Mini is the next generation version of the commercial ReFlowTM Ventricular System.
Read MoreIn the NICU: Preparing Families for Life with Hydrocephalus
A recent study explored how neonatal intensive care units (NICUs) can better prepare families that receive a diagnosis of posthemorrhagic hydrocephalus of prematurity (PHHP).
Read MoreHydrocephalus and Independence
By Madeleine Darowiche, HA Volunteer So, you’re considering living on your own for the first…
Read MoreCongressmen Lloyd Doggett and Chris Smith Join Forces to Raise Awareness About Hydrocephalus
Representatives Lloyd Doggett (D-TX) and Chris Smith (R-NJ) have joined forces to champion two critical…
Read MoreA Mystery Disease: One Woman’s Struggle to Get Diagnosed with NPH
Merlin Bott woke up one morning in October 2013 with a severe case of vertigo. It quickly got worse and soon, she became so dehydrated that she had to be hospitalized. Finally after 29 harrowing days in the hospital, she was told she needed brain surgery.
Read MoreInnovator Award Series: Get to Know Dr. Aditya S. Pandey
In this installment of our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Aditya S. Pandey, one of four scientists who received a 2020 Innovator Award. Dr. Pandey’s team is testing the use of acetazolamide (Diamox) directly into the ventricles to determine if it can prevent hydrocephalus.
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