Hydrocephalus Blog & Resources

Congressman Lloyd Doggett Recognizes September as Hydrocephalus Awareness Month

September 29, 2021

Raises awareness of the leading cause of brain surgery in children. There are over 1…

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Local Mom on a Mission to Find a Cure for Son’s Brain Disorder

September 28, 2021

Will take part in Cincinnati WALK to End Hydrocephalus on Oct. 3rd Chase Parker Lorenzo…

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Massachusetts Governor Names September Hydrocephalus Awareness Month

September 14, 2021

Hydrocephalus is the leading cause of brain surgery in children. Every 15 minutes, a brain…

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Make Some Noise for Hydrocephalus Awareness Month!

August 13, 2021

September is Hydrocephalus Awareness Month (HAM), our chance to shine a light on hydrocephalus and how it impacts our community!

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Announcement About Anuncia ReFlowTM System Mini

June 15, 2021

Earlier this year, Anuncia Inc., a medical device company focused on the development of treatment devices for hydrocephalus and other cerebrospinal fluid (CSF) disorders, announced that the ReFlowTM System Mini received the U.S Food and Drug Administration (FDA) Breakthrough Device Designation. The ReFlowTM System Mini is the next generation version of the commercial ReFlowTM Ventricular System.

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In the NICU: Preparing Families for Life with Hydrocephalus

May 25, 2021

A recent study explored how neonatal intensive care units (NICUs) can better prepare families that receive a diagnosis of posthemorrhagic hydrocephalus  of prematurity (PHHP).

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9 Foods to Nourish Brain Health

May 4, 2021

After having brain surgery, eating nutrient-dense foods that support your brain can promote healing. Learn more about the 9 foods that can help nourish brain health.

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Hydrocephalus and Independence

May 4, 2021

By Madeleine Darowiche, HA Volunteer So, you’re considering living on your own for the first…

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How to Reconnect and Trust your Body

April 29, 2021

In this blog, Bethany Holmes, Certified Integrative Health Coach, and Reiki Practitioner discusses how to reconnect, trust, love, and heal your body after trauma.

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Congressmen Lloyd Doggett and Chris Smith Join Forces to Raise Awareness About Hydrocephalus

April 14, 2021

Representatives Lloyd Doggett (D-TX) and Chris Smith (R-NJ) have joined forces to champion two critical…

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A Mystery Disease: One Woman’s Struggle to Get Diagnosed with NPH

April 12, 2021

Merlin Bott woke up one morning in October 2013 with a severe case of vertigo. It quickly got worse and soon, she became so dehydrated that she had to be hospitalized. Finally after 29 harrowing days in the hospital, she was told she needed brain surgery.

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Innovator Award Series: Get to Know Dr. Aditya S. Pandey

April 5, 2021

In this installment of our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Aditya S. Pandey, one of four scientists who received a 2020 Innovator Award. Dr. Pandey’s team is testing the use of acetazolamide (Diamox) directly into the ventricles to determine if it can prevent hydrocephalus.

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