In the News

Insurance Denials Block Woman with Hydrocephalus from Receiving Care

Insurance Denials Block Woman with Hydrocephalus from Receiving Care

CONTINUE READING

6 Year Old Finds Freedom Running

Abby Cahil has hydrocephalus. Despite the many daily challenges hydrocephalus can place on a child, Abby finds freedom through running. Read her story posted on Minnesota’s StarTribune. Click here to read the article.

CONTINUE READING

LA Kings Unite with Hydrocephalus Community to Raise Over $200K

The LA Kings Insider profiles our Los Angeles Hydrocephalus WALK and the incredible commitment of the LA Kings to standing with our hydrocephalus community.

CONTINUE READING

Elementary School Unites Around One of its Own

Pontiac Elementary School in South Carolina unites around one of it’s own students living with #hydrocephalus to help raise awareness.

CONTINUE READING

Minnesota Teen WALKS for Hope

Natalie​ offers an incredibly informative interview with Big Fish Lifestyle about living with hydrocephalus as a teen. This is a MUST READ!

CONTINUE READING

The Varying Impact of Hydrocephalus

Sarah Ann and Mikell highlight how hydrocephalus can impact each of us differently as they raise awareness on ABC4 Utah and invite Utahns to participate in the 9th Annual Salt Lake City Hydrocephalus WALK.

CONTINUE READING

Forbes Features Story on Team Hydro

Forbes features a story on the inspiration behind Team Hydro and their mission to fund hydrocephalus research. Pam Finlayson, a Team Hydro founder and a member of the Hydrocephalus Association Board of Directors, in interviewed with her sons, Peter and Sam.

CONTINUE READING

Long Island WALK featured on Local Radio Program

Mia Padron, our Long Island Hydrocephalus Association WALK Chair, is interviewed by Dr. Carlos on “In the Best Interest of Children” about the difficulties of diagnosing and living with hydrocephalus. Her interview starts about 5:30 minutes in.

CONTINUE READING
Indiana declares September Hydrocephalus Awareness Month

Sixteen States Join Congress in Declaring September Hydrocephalus Awareness Month

Fifteen states join the U.S. Congress in declaring September as Hydrocephalus Awareness Month.

CONTINUE READING

Chicago WALK Chair featured on MIX Matters

Chicago radio station 101.9FM The Mix featured Katie Cook, our Chicago Hydrocephalus Association WALK Chair, on their weekly radio show “MIX Matters” with Susan Wiencek.

CONTINUE READING

Benefits of Yoga for Brain Recovery

The Love Your Brain Foundation in Denver, CO, has specialized yoga workshops for survivors of traumatic brain injury (TBI).

CONTINUE READING

Brown University Study Suggests Window to Prevent Brain Injury

A study out of Brown University suggests that there may be a window for therapeutic intervention aimed at minimizing further damage after a traumatic brain injury (TBI).

CONTINUE READING

New Orleans Beauty Brand Benefits Toddler with Hydrocephalus

Ashley Sievert , a New Orleans makeup artist and beauty brand owner, will hold a benefit that will raise funds for a young Haitian=born toddler living with her adopted mother in the U.S.

CONTINUE READING

New Catheter for Hydrocephalus Shunt Seeking FDA Approval

The ReFlow shunt system from Alcyone Lifesciences is seeking FDA approval for the commercial resale after being successfully implanted in 4 patients in an ongoing study at Boston Children’s Hospital.

CONTINUE READING

A Business with Hydrocephalus as Part of Its Mission

Jason Spears started his hard cider company with a mission. At the heart of that mission is his daughter, Lucy, living with hydrocephalus.

CONTINUE READING

Study Finds Concussion in Student Athletes Requires Long-term Follow Up

A new study, whose abstract was released at the American Academy of Neurology meeting, finds that student athletes with concussions had less water movement, or diffusion, shortly after their injuries as compared to other players who had not had concussions. Click here to read the full article. 

CONTINUE READING

Kids Raise Funds for Others to Survive

Three children in Singapore with chronic health conditions are raising money for other children in dire financial need so that they can receive medical treatment. One of the children is a young boy has two shunts to treat his hydrocephalus.

CONTINUE READING

Olympic Gymnast Raises Hydrocephalus Awareness

Olympic Gold medalist Shawn Johnson East supported a fundraiser in Pelham, Alabama, to support the construction of a new gym and to benefit the Hydrocephalus Association.

CONTINUE READING

Ohio Baby Born with Rare Brain Condition Doing Well

Baby born with encephalocele has had his brain gently placed into the proper position and treated with a shunt.

CONTINUE READING

Canada Embraces New Brain Procedure for Hydrocephalus

Dr. Jay Riva-Cambrin of Alberta Children’s Hospital is featured in Calgary Metro for his use of the Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization in infants born with hydrocephalus.

CONTINUE READING

Seattle Boy Proves to be a Fighter

Tristen Pierce was born with a rare birth defect called rhombencephalosynapsis and has a shunt as part of his treatment plan. Despite numerous challenges, Tristen has proved to be a fighter.

CONTINUE READING

Coping with Normal Pressure Hydrocephalus

Ontario man shares his journey with Normal Pressure Hydrocephalus and the support he received to cope with the diagnosis.

CONTINUE READING

FDA Clears New MRI-Compatible Shunt

The Federal Drug Administration (FDA) cleared Medtronic’s StrataMR valve for the treatment of hydrocephalus. The valve is MRI- compatible in a full body scan.

CONTINUE READING

Shunt Surgeries Identified as Specific Risk in Hospital Readmission

A study finds specific risk factors following pediatric neurosurgery are associated with hospital readmission, including complications with shunt placement and infection.

CONTINUE READING

Million Dollar Market in Cerebrospinal Fluid Management by 2023

Transparency Market Research finds that by 2023, the market for cerebrospinal fluid (CSF) management, including the manufacturing and use of shunts and CSF drainage systems, will reach 1,840.5 Million.

CONTINUE READING

St. Louis Doctors Among Few Performing ETVs

Because of the country’s high numbers of children with hydrocephalus, doctors, including Dr. David Limbrick of St. Louis Children’s Hospital, traveled to Uganda so they could learn the technique. Two years ago, Limbrick traveled 8,000 miles to the East African country for more than a week of intensive training.

CONTINUE READING

Royal Duchess to Attend Shine’s Golden Anniversary Launch

The Duchess, who has been the patron of the charity since 1973, will meet some of the charity’s members among the 250 delegates attending the launch.

CONTINUE READING

MOI Opens Special Camp for Children with Nerve Issues

Muhimbili Orthopedic Institute (MOI), in collaboration with Friends of Children with Cancer (FOCC), has launched a special camp to conduct operations for the children with neurosurgical problems.

CONTINUE READING

Recognizing NPH, Reversing Dementia

A certain type of hydrocephalus can cause a person to lose the ability to walk and talk normally. And because the symptoms are similar to dementia or Parkinson’s, it’s a condition that can be easily overlooked. But if doctors properly diagnose N.P.H. , they can often reverse it.

CONTINUE READING

6-Year-Old to be Hydrocephalus Awareness Ambassador

Elyse was selected as one of two children to serve as this year’s “National Ambassador of Hydrocephalus Awareness,” for the Pediatric Hydrocephalus Foundation, to help raise the level of awareness and education about Hydrocephalus in the United States.

CONTINUE READING

Singer and Brain Cancer Survivor Uses Music as Therapy

Angel Raynoso spent his 30th birthday in the hospital. The day before, he’d had a seizure, was rushed to intensive care and had emergency surgery to relieve pressure on his brain.

CONTINUE READING

Thousands of Seniors Being Misdiagnosed

Older Americans around the country are being misdiagnosed with Alzheimer’s and Parkinson’s. Normal Pressure Hydrocephalus can display similar symptoms, but is treatable.

CONTINUE READING

Rwandan Hospital Leading the Way in Treating Hydrocephalus

Gikonko is the only health center with facilities to treat the medical condition; other medical centers treat hydrocephalus, but most of them refer patients to Gikonko Health Centre where specialists are based.

CONTINUE READING

11-Year-Old gets his Wish Granted

Elementary school student Aiden Tanz was given an all-expense paid trip to Orlando, Florida for him and his family through Make-A-Wish Foundation. The Tanzes visited three parks: Walt Disney World, Universal Studios and Sea World.

CONTINUE READING

Doctors Find Possible Link Between Zika and Hydrocephalus

Doctors in Brazil have discovered hydrocephalus in two babies with congenital malformation. Some suspect the ongoing Zika pandemic in the country caused these cases.

CONTINUE READING

Apps Like HydroAssist Shaping the Future of Healthcare

Healthcare management and patient empowerment are two benefits of how Health Informatics is driving patient-centered care.

CONTINUE READING

New Computerized Rehab for Brain Injuries

Researchers have shown that computerized cognitive rehabilitation (a program to help brain-injured or otherwise cognitively impaired individuals to restore normal functioning) can improve attention and executive functioning in brain injury survivors including traumatic brain injury (TBI) and stroke.

CONTINUE READING

TBIs: the Road to Recovery

An expert on traumatic brain injuries explains the recovery and treatment options.

CONTINUE READING

Cognitive Training Therapy May Aid Those with Brain Injury

Neurology Now Magazine shares an interesting new therapy that may benefit individuals in our ‪‎hydrocephalus community when it becomes available.

CONTINUE READING

Australia Continues to Push for Registry

An Australian family has welcomed the aid of Senator Bob Day in pushing for a national shunt registry. One of Day’s staff members lost a child to the complications of hydrocephalus.

CONTINUE READING
Change this in Theme Options
Change this in Theme Options