shunt

Looking Back…Moving Forward: Fresno Says YES to Our Hydrocephalus WALK

As part of our interview series commemorating our 30th anniversary, this week Randi Corey, our National Director of Special Events and Volunteer Support, sits down with Cheryl Merrell, our Hydrocephalus Association WALK Chair in Fresno, California, to talk about volunteering for HA, starting and chairing a HA WALK, and other thoughts about the organization.

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6 Year Old Publishes Book on Hydrocephalus

Thomas Lawson of Little Rock, Arkansas, took his love of drawing and writing and published a book, “It’s Not Just Brain Surgery”, to help raise funds to find a cure for hydrocephalus, a rare brain condition that his younger brother lives with daily.

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Brain 101: The Ventricles and CSF Flow

As a follow up to the previous article on the anatomy and physiology of the brain, the Hydrocephalus Association would like to continue our learning and explore the terms we so often hear when dealing with hydrocephalus.

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New Gravitational Shunt Valve Hits Market

Aesculap introduces a new gravitational shunt valve that allows for different pressure settings for the lying and the upright positions. The Miethke proSA valve is implanted in combination with fixed or adjustable valves.

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Living with Undiagnosed Normal Pressure Hydrocephalus

Rhode Island NBC channel 10 shares Roberta Healy’s story of being living for years with undiagnosed with Normal Pressure Hydrocephalus (NPH).

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Teen Voices: Hydrocephalus has Changed My Life

I am amazed at how hydrocephalus has changed my life…but I would not change it. Here is my story. Within weeks of my birth the doctor expressed concerns about the amount of growth of my head. My parents were referred to a neurologist who diagnosed me with communicating hydrocephalus

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New Protocol with Adjustable Shunt Reduces Cases of Subdural Effusion

Medwire news reports on a research study that shows that an adjustable Strata valve shunt set at the highest setting and slowly calibrated down in a patient being treated for idiopathic normal pressure hydrocephalus (INPH) reduces the cases of subdural effusion and shows improvement in gait and/or cognitive function.

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Neurosurgeons Trained in Zimbabwe

Twelve doctors and neurosurgeons in Zimbabwe were trained in the neuroendoscopic ventriculostomy surgical technique for the treatment of hydrocephalus. The Neurosurgical Education Development Foundation, led by Dr. Mahmood Qureshi, has been promoting better surgical treatment options leading to fewer shunt insertions in order to address the medical and financial constraints of many African countries.

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Looking Back…Moving Forward: One Vision Built on Determination

Hydrocephalus Association commemorates our 30th anniversary with a series of interviews with members of our community. These intimate and conversational pieces provide both educational content as well as a historical perspective on the heart behind the work of our association. This week we sit down with two of our founding members, Emily Fudge and Cynthia Solomon, to discuss the early days of forming the association, including their vision and their challenges.

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A Guitar Rock Legend Builds Awareness of NPH

ABC News Worldwide features a story today on guitar rock legend, Dick Wagner and his diagnosis of Normal Pressure Hydrocephalus (NPH). The article – Rock Star Nearly Loses Career with “Curable” Dementia – is another step forward in increasing public awareness of both NPH and hydrocephalus.

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Famous Rock Star Treated for NPH

ABC News features a story about rock legend, Dick Wagner (lead guitarist for Alice Cooper, Aerosmith and KISS) and his journey with hydrocephalus. Wagner was treated at the Barrow Neurological Institute. After receiving a shunt, he was back on the road making music.

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Successful Surgical Procedure on Infant to Treat Hydrocephalus and Extreme Macrocephaly

Neurosurgeons at All Children’s Hospital/Johns Hopkins Medicine and the University of South Florida Morsani College of Medicine successfully performed back to back surgeries on an infant within the first week of life to treat hydrocephalus and extreme macrocephaly. This is the first reported case of cranial fixation in such a young child with extreme hydrocephalus.

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It’s Never Too Late

I’m writing in memory of my daughter, Ellen. I am committed to sharing Ellen’s story to help raise awareness to the great support services and work of the Hydrocephalus Association as well as to help raise funds to find better treatments options for everyone living with hydrocephalus.

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New Partnership Will Benefit the Speed Medical Devices Get to Market

The first public-private partnership, called the Medical Device Innovation Consortium (MDIC), will prioritize the needs of the medical device community and fund projects to help simplify the process for medical devices to reach market. The FDA will be a part of the consortium that could potentially assist new developments in shunt technology.

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A Gift of Advocacy: Support Your Voice in Washington

The Hydrocephalus Association’s advocacy strategy spans a broad range of activities from local, grassroots awareness efforts such as our WALK program, to state level efforts to establish hydrocephalus awareness days/months, to our federal efforts which focus on research programs at the National Institutes of Health (NIH) and legislation with Congress. Our primary advocacy goal is […]

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ETV Procedures Creates Market Challenge to Shunt Manufacturers in Europe

The Millennium Research Group (MRG) – the global authority on medical technology market intelligence – has completed a study that shows that the the European neurosurgical and neurovascular medical device market will grow only slowly through 2016. Treatments such as endoscopic third ventriculostomy (ETV) are contributing to slowed growth for shunt manufacturers.

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Seizures and Hydrocephalus

November is Epilepsy Awareness month and the Hydrocephalus Association would like to address the topic of hydrocephalus and seizures. Seizures are not an uncommon occurrence in people with hydrocephalus. However, no correlations have been found between the number of shunt revisions or the site of shunt placement and the risk of developing seizures.

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APDC Helps Fund Self-Monitoring Shunt

The Atlanta Pediatric Device Consortium (APDC) is helping fund the development of a shunt that can be monitored wirelessly.

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Papilledema, Vision Loss, and Hydrocephalus

Papilledema is an optic disc swelling that is secondary to elevated intracranial pressure around the brain associated with hydrocepahlus.The biggest concern with increased intracranial pressure is there is always the potential for visual loss secondary to the papilledema.

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Voices from Our Community: Abby Shares Her Life Experiences With Hydrocephalus!

By: Abby Wood Hi!  My name is Abby.  I turned 12 years old at the end of August and this is a snapshot of my life.  I was born in Albuquerque, New Mexico. When I was born, I was very sluggish and tired. My parents found out that I had hydrocephalus a few weeks later […]

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Congresswoman Gabrielle Giffords received a permanent shunt for her hydrocephalus Wednesday, May 18th

Arizona congresswoman Gabrielle Giffords, who was shot in the head more than four months ago in Tucson, Ariz., had a permanent ventriculoperitoneal (VP) shunt inserted for hydrocephalus. Rep. Gabrielle Giffords is recovering well after her two brain surgeries yesterday.  Neurosurgeons also placed a bone flap to protect her brain and skull.  This operation, known as […]

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