Newly Diagnosed

Newly diagnosed with hydrocephalus? You are not alone. 

Guides for All Ages

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You or a loved one has just been diagnosed with hydrocephalus, now what? Whether you are living with hydrocephalus or are a caregiver - we're here to help you on this journey. We developed guides and next steps tailored to specific age groups and life stages. The information provides helpful tips and tools to help you navigate the complexities of living, or caring for someone with this condition.

For more detailed information on the special nature of brains with hydrocephalus, watch Brain Matters: Hydrocephalus 101 with Dr. Marion L (Jack) Walker, MD and James P. (Pat) McAllister II, PhD.

Hydrocephalus in Pregnancy

Pregnancy is a joyous time for a woman. However, receiving the news that your developing baby has hydrocephalus can be overwhelming, frightening, and sad for expectant women and couples. Gain the knowledge you need to help you make the best decisions and advocate for your child.

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Hydrocephalus in Infants and Children

Dealing with your child’s hydrocephalus diagnosis can be overwhelming. It’s common to have countless questions that range from what hydrocephalus is to what a child’s experience will be across the life spectrum. Learn everything you need to know -- from the types and causes of hydrocephalus to symptoms and treatment -- so you can ensure your child receives the right care and support.

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Hydrocephalus in Adults

Finding out that you have hydrocephalus as a young or middle-aged adult can be shocking and confusing. It can be challenging to make decisions about your care - especially when you’re still learning about hydrocephalus. Find information and resources that can help you take care of yourself or your loved one.

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Normal Pressure Hydrocephalus (NPH)

A NPH diagnosis is complex and frustrating. For those living with NPH and their caregivers, staying informed about the condition is essential to managing care. The challenges of living with a chronic illness or caring for a chronically ill parent or spouse are stressful for all involved but acknowledging emotional responses to this chronic and potentially disabling condition can help all those involved.

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Next Steps

Your mind is probably filled with questions and concerns. Or, you are feeling so overwhelmed by the diagnosis you don’t know what questions to ask. There is no simple way to deal with the diagnosis, but there is help. We will take you through the next steps to better understand the condition and ongoing management.

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The Importance of a Support System

Life with hydrocephalus can cause immense emotional strain and devastation. Building a strong support system will provide you with more options for coping with mental and physical hardships.

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