By Dawn Mancuso “The difference between children and adults is that they’re shorter – not dumber.” ― Mo Willems Normally, I would agree with Mr. Willems. We adults tend to underestimate the intelligence of the children around us, assuming that our life experiences make us somehow smarter.The Unique Challenges of Adult Hydrocephalus However, I’ve learned […]
Local reporter, Matthew Schwerha, highlights the upcoming Chicago WALK occurring September 15, 2012. To read the full article, click here.
Leslie Katz, , CRAVE Technology Writer, approaches an article on her sister’s journey with hydrocephalus from a technology point-of-view on CNET.com. To read the full article, click here.
Military researchers are getting a better understanding of the long-term neurological effects of a battlefield blast or concussion. To read the full article, click here.
Dr. Steven Schiff of Penn State has had his findings published in the Center for Infectious Disease Dynamics (CIDD) journal. To read the full article, click here.
By Karima Roumila, MPH Congratulations to Michael A. Williams, M.D., medical director of The Sandra and Malcolm Berman Brain & Spine Institute (BSI) at LifeBridge Health. Dr. Williams, who is a member of the Hydrocephalus Association’s Medical Advisory Board , and served as the co-chair of our 12th National Conference on Hydrocephalus, recently received a […]
By Dawn Mancuso “…Come senators, congressmen, please heed the call” -Bob Dylan July has been an incredibly busy month for the Hydrocephalus Association. In fact, it is safe to say that the word busy hardly does it justice. At the beginning of the month, we wrapped up our biennial conference on hydrocephalus in Bethesda, […]
It was a bittersweet moment to close and lock the door of Suite 705 for the final time at 870 Market Street in San Francisco on July 31st. After 29 years of being headquartered on the west coast, the Hydrocephalus Association has moved our national headquarters to the Washington, D.C., area. Our new office location […]
The Hydrocephalus Association held it’s 12th National Conference on Hydrocephalus in Bethesda, MD from June 27th through July 1st, 2012. As always we gathered to re-establish our sense of community and educate ourselves about hydrocephalus. Conference Highlights: Advocacy Day On Thursday, June 28th, over 200 participants visited their congressional representatives to lobby for […]
We are pleased to announce the 2012 Hydrocephalus Association Scholarship Awards recipients. The scholarships program marks its 18th year and we are very proud to honor these amazing young adults. Despite the challenges and obstacles of having hydrocephalus, these future young leaders of our community are able to further their education, help their community and […]
The Hydrocephalus Association is pleased to announce Aisha Heath, CFRE as the new Director of Development. Ms. Heath has devoted her professional career to raising awareness and resources for national organizations supporting the health and well-being of children and families. She has worked in the non-profit sector for over 12 years, fundraising for a variety […]
By Paul Gross, Chairman of the HA Board of Directors The third NIH sponsored research conference on hydrocephalus concluded on July 11th and by all accounts was a resounding success! Entitled “Opportunities in Hydrocephalus Research: Pathways to Better Outcomes“, the conference featured a broad spectrum of thought leaders from bench scientists in molecular biology to […]
Famed football coach Vince Lombardi once said that “My teams have never lost a football game. They just occasionally run out of time to win it.” Here at Hydrocephalus Association, we know first-hand just how time is of the essence. Each day, more children and adults are diagnosed with hydrocephalus. And, those previously diagnosed with hydrocephalus […]
On Thursday, the 28th of July, the second day of our conference, we held our second Advocacy Day on Capitol Hill, “Climbing Capitol Hill for a Cure.” Hundreds of members of the hydrocephalus community braved the intense heat of a Washington, DC summer day to bring our message of increased funding for hydrocephalus research to […]
On June 21st, the Hydrocephalus Association (HA) announced the launch of its new $3 million dollar fundraising campaign called “Reason for Hope.” We are very pleased to announce that we have received a commitment for a gift of $500,000 to that campaign. The anonymous donor requested that these funds be used in support of HA’s […]
Historical Perspective of Hydrocephalus and its treatment & HA History: 1983 – 2012 – then, now and the future
Ever wanted to know more about the history of hydrocephalus? When was it discovered? How has it evolved over the last 2500 years? Would you like to know more about the work of Dr. Hakim? How about the humble beginnings the Hydrocephalus Association? Well, we invite you to attend the 12th National Conference in Bethesda, […]
By Tom Smith We are pleased to announce our new $3 million dollar fundraising campaign called “Reason for Hope”. Its purpose is to fund a five year Research Initiative plan intended to push hydrocephalus research forward. The funds will be used to implement three areas deemed crucial to eventually finding a cure for hydrocephalus. Stimulate […]
Our biennial hydrocephalus conference is one of the traditional cornerstones of the Hydrocephalus Association’s commitment to meeting the far ranging needs of our community. This year, from June 27th through July 1st, the HA invites you to join us in Bethesda, MD at our the 12th National Conference on Hydrocephalus. Education, education, education… Hydrocephalus is […]
We are honored and excited to announce that Benjamin Warf, MD is joining our faculty this June in Bethesda, MD. Dr. Warf is scheduled to give the Keynote Address during lunch on Saturday June 30th. His Inspirational Keynote Address will encompass his work treating hydrocephalus in Sub-Saharan Africa. Dr. Warf began his career in pediatric […]
NetFlix Founder and former member of the Hydrocephalus Association Board of Directors Marc Randolph will be a keynote speaker at the upcoming research conference, “Opportunities in Hydrocephalus Research: Pathways to Better Outcomes,” scheduled for July 9 – 11, 2012, in Seattle, Washington. Mr. Randolph was the founding CEO of NetFlix, and served as a member […]
We are excited to announce that we have received a commitment from the National Institute of Neurological Disorders and Stroke (NINDS), the leading federal funder of brain science at the National Institutes of Health (NIH), to support our upcoming research conference entitled “Opportunities in Hydrocephalus Research: Pathways to Better Outcomes” in Seattle on July 9-11, […]
By Dawn Mancuso, FASAE, CAE, Hydrocephalus Association CEO I am pleased to announce that the Hydrocephalus Association (HA) and the Hydrocephalus Clinical Research Network (HCRN) have signed a partnership agreement that will ensure the continuation of HCRN’s hydrocephalus research. We are honored to be partnered with the first and, so far, only clinical research network […]
by Paul Gross, Chairman of the HA Board of Directors I am excited to announce that Hydrocephalus Association (HA) has partnered with the Rudi Schulte Research Institute (RSRI) to release a major new Request for Applications (RFA) in conjunction with our upcoming research conference in Seattle on July 9-11. Rudi Schulte was one of the […]
By Dawn Mancuso, FASAE, CAE, HA CEO Sometimes we all encounter frustration. We feel like we work and we work, but that things just don’t change as fast as we would like or need. At times like these, when my patience is wearing thin, I often look to those wiser than myself for inspiration and […]
By Jennifer Bechard, Support Liaison My first conference was at the 11th National Conference on Hydrocephalus in Cleveland OH and it certainly was an experience that I will cherish forever. Meeting world-renowned medical professionals, watching a live endoscopic third ventriculostomy (ETV) surgery, marching in a parade and hearing researchers speak about the advancements and works […]
The Hydrocephalus Association, in conjunction with several other institutes and organizations, is pleased to announce a landmark research conference to be held July 9-11, 2012 in Seattle, WA. The title of the conference is “Opportunities in Hydrocephalus Research: Pathways to Better Outcomes.” The focus will be the discussion of current hydrocephalus research from several different […]
The National Conference on Hydrocephalus is our biennial gathering to self-educate and make or renew connections. Join doctors, nurses, parents, children, people living with hydrocephalus and people affected by it, as we celebrate our community. While we strive to keep costs down for attendees and provide some financial aid for registration, there are other costs […]
By Dawn Mancuso, HA CEO Captain Kelly’s biographical information generously provided by Keppler Speakers I am so excited about this news I just had to make it the subject of my blog this month – Captain Mark Kelly will be speaking at our hydrocephalus conference in June! Mark Kelly is an American astronaut, retired US […]
By Randi Corey, National Director of Special Events and Volunteer Support At the 2012 Veteran WALK Chair’s meeting Hydrocephalus Association introduced its new School WALK program. The program was the brainchild of Long Island WALK Co-Chair, Mia Padron. The event Mia coordinated last fall raised over $4,000 with 114 kids participating in their own “mini-WALK” […]
By John Kestle, MD, MSc, FRCSC, FACS (re-posted with the author’s permission) The HCRN has successfully launched a new, potentially ground-breaking study across the Network. This study, titled Ventricular Involvement in Neuropsychological Outcomes in Pediatric Hydrocephalus, or VINOH for short, is funded by a Mentored Young Investigator award from the Hydrocephalus Association received by Dr. […]
Watch the highlights from our last conference on hydrocephalus, which took place in Cleveland, OH in 2010. We invite you to register for the upcoming 12th National Conference, which will be held in Bethesda, MD from this June 26th through July 1st.
By Dawn Mancuso, HA CEO A very famous author from across the pond (hint: “…that which we call a rose by any other name would smell as sweet”) once asked “What’s in a name?” As I travel to meetings on behalf of the Hydrocephalus Association (HA), and as I talk to more and more people […]
By Randi Corey, HA Director of Special Events New WALK Chair’s Training Meeting: In February Hydrocephalus Association held the 2nd annual training meeting for HA’s New WALK Chairs in Charlotte, NC. New Chairs included Shawn and Julie Robinson (starting a new WALK in Northern Kentucky/Cincinnati), Genia Hastings and Melissa Arsenault (taking on a new WALK […]
By: Madison Pardi Hi, my name is Madison and I am 14 years old and a freshman in high school. I was diagnosed with hydrocephalus when I was 10 weeks old. I have had 5 surgeries and my last shunt revision was 11 years ago. When I was a baby I crawled and walked later […]
As you make your way to the 12th National Conference on Hydrocephalus in Bethesda, MD, here is some information to help you plan your trip. Area Airports 1) Washington Dulles International Airport Chantilly, VA www.metwashairports.com/dulles/dulles.htm Distance from hotel: 25 miles 2) Ronald Reagan Washington National Airport Arlington, VA www.metwashairports.com/reagan/reagan.htm Distance from hotel: 23 miles 3) […]
We are honored and thrilled to report that Dr. Story C. Landis, the distinguished Director of the National Institute for Neurological Disorders and Stroke (NINDS), will be a keynote speaker at the Hydrocephalus Association’s 12th National Conference on Hydrocephalus: Getting to The Heart of Hydrocephalus. Dr. Landis will address the importance of hydrocephalus research and how this […]
By Dawn Mancuso, HA CEO I do not know what this winter has been like where you live, but here in the D.C. area, the winter has been much more like a lamb than a lion. Not that I am complaining, mind you, but it does mean that the trees and plants in the area […]