hydrocephalus

WALK tip of the Month:

Five Reasons to Register Early for WALKS by Randi Corey, Hydrocephalus Association Director of Special Events You get your own WALK webpage: When you register online your own personal, WALK webpage is automatically generated. This includes a hyperlink (or URL) that you can email to family and friends asking them to sponsor you. Clicking on […]

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Concert to Benefit Hydrocephalus Research

By David Moore If you live in the Washington, D.C. area, take a stroll down memory lane while helping the future of hydrocephalus research, by attending Peter Yarrow’s Concert for Hydrocephalus. This family friendly event will take place on Sunday, October 24, 2010 at the Residence of the Australian Ambassador in Washington, D.C. Peter Yarrow, […]

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You’re Not Alone

By Jennifer Bechard Imagine how a 10 year old would feel lying in a hospital bed not knowing what is going on or where to turn to for support. With too many questions and not enough answers, a condition such as hydrocephalus can take an emotional and physical toll on any individual, especially a child. […]

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Hydrocephalus Association CEO on Her First WALK

by Laurene McKillop, PhD What better kind of day to walk than a bright, late summer day, crispy cool in the morning and warming up as the Walk proceeds?  “Crispy cool” lets you know that I wasn’t on the east coast:  this was the Detroit Walk, held on August 7th, 2010. I arrived early, along […]

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Gabriel’s Life Sticker Campaign

Our partner website Gabriel’sLife.com is launching an ambitious campaign to raise awareness of hydrocephalus. On September 23, ABC will air the season premier of their hospital drama “Grey’s Anatomy.” On the same day, Gabriel’s Life will launch a campaign to get a Gabriel’s Life sticker on the prime time television show. How you can help. […]

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Dr. Joseph Madsen Blogs on Translational Research

If you want to understand better how basic scientific research produces better clinical outcomes, be sure to read Dr. Madsen’s article, “A Very Narrow Bridge:  Translational Research.”  Dr. Madsen, a member of the Hydrocephalus Association Medical Advisory Board, directs a lab at the Children’s Hospital of Boston, where he treats children with hydrocephalus.  He spoke […]

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The Night Before Walk

by Randi Corey, HA Director of Special Events ‘Twas the night before Walk and all it entails Walk Chairs all over were pacing and biting their nails. Although the site was set up with care they wished – and wondered “Would the walkers be there?” “And will the weather be sunny and bright?” “Or, will […]

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The Hydrocephalus Association Provides Commentary to the Food and Drug Administration

On September 13, 2010, the Hydrocephalus Association had the opportunity to provide commentary at an Open Public Hearing sponsored by the Food and Drug Administration (FDA).  FDA currently funds a project called the “Ask Study,”  which aims to assess, from the perspective of a young person,  the effectiveness of various neurological medical devices they use […]

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Hydrocephalus Walk Tip of the Month

Letter writing campaigns for Walk Family Teams! by Randi Corey, Hydrocephalus Association Director of Special Events Family Teams currently comprise the majority of the Hydrocephalus Association (HA) Walks. A ‘Family Team’, is usually a team with a direct connection to hydrocephalus and HA’s mission which is to eliminate the challenges of hydrocephalus. The team forms around a […]

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Trust and Let Go

by Pip Marks The issue of transition is very close to my heart – it has been since the day my oldest child was born. My first questions to the docs after his birth were “Will he be able to live away from home one day? Will he be able to take care of himself? […]

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Announcing the 2010 Hydrocephalus Association Scholarship Awards

By Tom Smith The Hydrocephalus Association (HA) is both pleased and privileged to award eight scholarships to persons with hydrocephalus seeking higher education. Each year we receive dozens of application and as you might imagine, is is always difficult to choose among the many outstanding applicants. However, we are pleased to announce that these young […]

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Sharkfest by Sarah Oxford

“Make sure to stay calm, have fun and focus on your target,” advised a veteran Sharkfest swimmer as we approached Alcatraz, a historical landmark located in the legendary shark-infested San Francisco Bay. Over 800 swimmers anxiously stared out the ferry windows as water temperature (59°) and safety protocols were announced over a loud speaker. A […]

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Spring in our Step

Spring has dawned upon a bi-coastal Hydrocephalus Association and I’m thrilled with all that we have going on across the country. We have added several key staff to our roster and now the search has begun in earnest to find our new offices. It’s an exciting period of growth for us. Spring also heralds WALK […]

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