hydrocephalus

The Night Before Walk

by Randi Corey, HA Director of Special Events ‘Twas the night before Walk and all it entails Walk Chairs all over were pacing and biting their nails. Although the site was set up with care they wished – and wondered “Would the walkers be there?” “And will the weather be sunny and bright?” “Or, will […]

CONTINUE READING

The Hydrocephalus Association Provides Commentary to the Food and Drug Administration

On September 13, 2010, the Hydrocephalus Association had the opportunity to provide commentary at an Open Public Hearing sponsored by the Food and Drug Administration (FDA).  FDA currently funds a project called the “Ask Study,”  which aims to assess, from the perspective of a young person,  the effectiveness of various neurological medical devices they use […]

CONTINUE READING

Hydrocephalus Walk Tip of the Month

Letter writing campaigns for Walk Family Teams! by Randi Corey, Hydrocephalus Association Director of Special Events Family Teams currently comprise the majority of the Hydrocephalus Association (HA) Walks. A ‘Family Team’, is usually a team with a direct connection to hydrocephalus and HA’s mission which is to eliminate the challenges of hydrocephalus. The team forms around a […]

CONTINUE READING

Trust and Let Go

by Pip Marks The issue of transition is very close to my heart – it has been since the day my oldest child was born. My first questions to the docs after his birth were “Will he be able to live away from home one day? Will he be able to take care of himself? […]

CONTINUE READING

Announcing the 2010 Hydrocephalus Association Scholarship Awards

By Tom Smith The Hydrocephalus Association (HA) is both pleased and privileged to award eight scholarships to persons with hydrocephalus seeking higher education. Each year we receive dozens of application and as you might imagine, is is always difficult to choose among the many outstanding applicants. However, we are pleased to announce that these young […]

CONTINUE READING

Sharkfest by Sarah Oxford

“Make sure to stay calm, have fun and focus on your target,” advised a veteran Sharkfest swimmer as we approached Alcatraz, a historical landmark located in the legendary shark-infested San Francisco Bay. Over 800 swimmers anxiously stared out the ferry windows as water temperature (59°) and safety protocols were announced over a loud speaker. A […]

CONTINUE READING

Spring in our Step

Spring has dawned upon a bi-coastal Hydrocephalus Association and I’m thrilled with all that we have going on across the country. We have added several key staff to our roster and now the search has begun in earnest to find our new offices. It’s an exciting period of growth for us. Spring also heralds WALK […]

CONTINUE READING
Change this in Theme Options
Change this in Theme Options