For our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Engin Deniz, one of four scientists who received a 2019 Innovator Award. Through his research, he hopes to determine how cilia, small hair like structures that move CSF, contribute to post-traumatic hydrocephalus.
In the 3rd installment of our Meet the Innovator Awardees Blog Series, we interviewed Dr. Joel Geerling, one of four scientists who received our 2019 Innovator Award, and Maggie Tish, who works in Dr. Geerling’s lab. They delve deeper into their fascinating research on Normal Pressure Hydrocephalus (NPH).
There is a lot we do not know about how hydrocephalus develops and how to best treat the condition across our many communities. Our 2019 Innovator Award recipients are looking to change that.
Families and researchers from across the country came together on Nov. 3 to celebrate the 10th Anniversary of HA’s Research Initiative. The event, held in St. Louis, MO, highlighted the successes of our research investments and honored the trailblazers who started it all.
What if you could prevent or stop the development of hydrocephalus after a brain bleed or develop a shunt that doesn’t get clogged? That’s what the 2018 HA Innovator Award grantees are hoping to do through their research projects.
Congress is currently debating a bill that could have major implications for hydrocephalus research through the Department of Defense CDMRP program.
HA is pleased to announce some of the brightest minds in the field who are generously offering their time, expertise and talent in planning the 15th National Conference on Hydrocephalus
Housing is open for the National Conference on Hydrocephalus which will take place on June 28-30, 2018 at the Renaissance Newport Beach in Orange County, California. Book your hotel!
We have the chance to raise $80K in one day to support hydrocephalus research as well as programs and resources to support individuals and their families. #GivingTuesday is BIG this year!
Professional members enjoy the benefits of the association working on your behalf to ensure greater coordination of research, identify and reach the patient population and provide training and educational opportunities tailored to the needs of the professional community. Join us today.
The Hydrocephalus Association’s annual Vision Dinner will serve as the catalyst for a focused research initiative that aims to prevent or minimize the development of hydrocephalus after a brain bleed.
Hydrocephalus Association Converges on Capitol Hill for Rally for Medical Research Hill Day to Advocate for Increased Funding for the National Institutes of Health (NIH)
The Hydrocephalus Association joins more than 300 organizations to ask Congress to provide robust, sustained, and predictable budget increases for the NIH
Forbes features a story on the inspiration behind Team Hydro and their mission to fund hydrocephalus research. Pam Finlayson, a Team Hydro founder and a member of the Hydrocephalus Association Board of Directors, in interviewed with her sons, Peter and Sam.
Congress is hearing our message and starting to act on measures that will help our #hydrocephalus community, but we need to keep pushing our priorities.
Join us for our advocacy webinar covering the Congressional appropriations process and what you can do to help protect medical research program funding.
Hydrocephalus Advocate Joins Scientific Peer Review of Research Applications for the Department of Defense Peer Reviewed Medical Research Program
Peer review advocate Barrett O’Connor participated in the evaluation of research applications submitted to the PRMRP sponsored by the Department of Defense.
The National Conference on Hydrocephalus takes place June 16 – 19th in Minneapolis, Minnesota. Join us! Here are tips to help make it affordable.
The Core Data Project of the Adult Hydrocephalus Clinical Research Network (AHCRN) has enrolled nearly 200 patients since in late 2014.
The largest hydrocephalus patient advocacy organization, the Hydrocephalus Association (HA), selects Diana Gray as the new Chief Executive Officer (CEO) to lead an aggressive growth strategy.
HA played a key role at the annual NINDS Nonprofit Forum, which provides an opportunity for nonprofit leaders to engage in dialogue with NINDS staff.
University of North Carolina has been awarded a grant to fund a study for neurotoxin action. Lead Scientist Dr. Bahr hopes the recent grants will push forward traumatic brain injury program and Alzheimer’s research.
Local volunteers joined forces with elected state representatives in Connecticut, New York, Tennessee, Virginia, South Carolina, Colorado and Illinois to proclaim September as Hydrocephalus Awareness Month.
SAVE THE DATE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.
Our Patient Partner Committees provide the patient perspective throughout the duration of a research study, making sure the patient voice is at the table.