How do surgeons make decisions? How do they stand by those decisions and evaluate themselves? The HCRN set out to answer these questions in their study.
Dr. Koschnitzky continues our Science Facts blog series with an explanation of the various clinical trial designs we find in hydrocephalus research.
Endoscopic Third Ventriculostomy (ETV) in Children: Prospective, Multicenter Results from the Hydrocephalus Clinical Research Network (HCRN)
What determines the success of an ETV for treating hydrocephalus? Dr. Kulkarni shares their initial findings gathered from across HCRN centers.
Is it dementia or Normal Pressure Hydrocephalus. U.S. News & World Report reports on the importance of proper diagnosis of this treatable dementia.
This Science Facts blog explains the difference between white and grey matter in the brain. Helping you untangle complex concepts and language in research studies!
The Hydrocephalus Association (HA) with its allies on Capitol Hill is celebrating this “first,” as hydrocephalus is named an eligible condition.
My family is going into this holiday season a bit more hopeful because of the great research progress that has already been made through thoughtful donations from individuals like you.
Hydrocephalus Association announces Resident Prize Awardee Jennifer Strahle, MD. for her research paper presented at the AANS/CNS Pediatric Section meeting.
Tomorrow evening Craig and Vicki Brown will host the 2nd annual Vision Dinner in New York City. The event is featured in an October 10, 2014, article in The Greenville News titled, “Drive Owner Hosts Rare Disease Fundraiser.”
Liv Osby of Greenville News interviews Craig Brown, senior vice chair of the HA Board of Directors, who, with his wife Vicki, will host the Vision Dinner in New York City to increase public awareness, stimulate research, and spark physician interest in specializing in hydrocephalus. Craig and Vicki have a son and a nephew with hydrocephalus.
The Long Island WALK is featured on Fios1 News as it unites 1000 individuals to raise their voices for hydrocephalus awareness at their annual Hydrocephalus Association Long Island WALK.
Robyn Shulman of ChicagoNOW writing with Scott Paul share the story of Scott’s son, Charlie, who has hydrocephalus, and encourage readers to support the Clay Matthews Hydrocephalus Challenge,
The upcoming Phoenix Hydrocephalus Association Walk is featured in the Tempe in Motion. The 5th annual WALK hopes to raise awareness and funds to support research into hydrocephalus and provide information about a disease that affects children, the elderly and even pets.
Children’s Memorial Hermann Hospital & Memorial Hermann Mischer Neuroscience Institute are co-sponsoring the 2014 Houston Hydrocephalus Association WALK on Saturday, September 20, at the Houston Zoo.
The Five and Below of Niagra Falls, NY, will donate 10% of dollars spent between August 31, 2014 and September 27, 2014, to Team Hope and the Western New York Hydrocephalus Association WALK on September 13, 2014 at Beaver Island State Park in Grand Island, NY.
Professional Cable / Xavier Cables is a Gold Sponsor at the Hydrocephalus Association Walk in Salt Lake Friday September 12th.
Two-year-old Charlie Pope, son of L.A. Kings Communications Manager Jennifer Pope, enjoys drinking chocolate milk from the Stanley Cup, won this year by the L.A. Kings. Now the players will support Charlie in raising hydrocephalus awareness and funds for critical research into better treatment options and a cure for his hydrocephalus.
Codman Neuro, part of DePuy Synthes Companies of Johnson & Johnson, are providing the funding behind the new Bertil Romner Memorial Hydrocephalus Research Prize, a grant to support further research into Normal Pressure Hydrocephalus.
Researchers at Case Western Reserve University have found that a malfunction in specific genes triggered hydrocephalus in mouse models. The findings were published in the journal, Neuron.
The Little Falls Swim and Dive team in Bethesda, MD, hosted a swim-a-thon to support Team Hydro in their efforts to raise awareness and money for the Hydrocephalus Association’s Kate Finlayson Memorial Research Grant.
The Health Research Alliance is featuring the Hydrocephalus Association on their homepage as part of their new Member Spotlight feature. We are honored to be the member organization chosen for this week. Click here to view our member spotlight and learn more about HRA. The Health Research Alliance fosters collaboration among not-for-profit, non-governmental funders to […]
In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares insights into our recent Research Workshop, “Biomarkers in Hydrocephalus,” held in St. Louis, MO, in late April, which brought together over 30 of the world’s leading experts in biomarkers.
Timothy Vogel, MD, will join the Robert H. Pudenz Lectureship scientific research panel at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, in Portland, Oregon.
The Hydrocephalus Association is the nation’s largest and most widely respected organization dedicated to hydrocephalus … and you are part of our success. As we prepare to make 2014 a year of unprecedented accomplishments, please help us by renewing your membership support.
The Hydrocephalus Association is excited to announce our collaboration with the Hydrocephalus Clinical Research Network (HCRN) on research projects important to the hydrocephalus community. We would like your input on which areas of hydrocephalus interest you most, and what you would like to be researched. Take our survey!
Dr. John Kestle is returning to Primary Children’s Hospital as a pediatric neurosurgeon and Vice Chair of Clinical Research, for the University of Utah Department of Neurosurgery.
A recently published study analyzes hydrocephalus research funding from NIH over 10 years and concludes that more researchers are needed in the field as well as alternative funding sources if we are to move the hydrocephalus research agenda forward.
In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares the results of our Stakeholder Survey eliciting input from our members on the state of HA and direction for the future of the association.