hydrocephalus research

Hydrocephalus Association Webinar Banner

Upcoming Webinar: The Next Generation of Hydrocephalus Researchers

Join us for our next webinar on the latest hydrocephalus research with two former HA-sponsored Mentored Young Investigators.

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Clinical Trial Randomization

Research 101: An Explanation of Clinical Trials Design

Dr. Koschnitzky continues our Science Facts blog series with an explanation of the various clinical trial designs we find in hydrocephalus research.

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Endoscopic Third Ventriculostomy

Endoscopic Third Ventriculostomy (ETV) in Children: Prospective, Multicenter Results from the Hydrocephalus Clinical Research Network (HCRN)

What determines the success of an ETV for treating hydrocephalus? Dr. Kulkarni shares their initial findings gathered from across HCRN centers.

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Hydrocephalus Video Blog Parents

Through a Mother’s Eyes: Three Children, Two with Hydrocephalus

In this video blog episode, Debby shares her daughters’ diagnoses of hydrocephalus and briefly discusses their journey and the various causes of hydrocephalus, including genetics.

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US News and World Report NPH Article

U.S. News & World Report Features Normal Pressure Hydrocephalus

Is it dementia or Normal Pressure Hydrocephalus. U.S. News & World Report reports on the importance of proper diagnosis of this treatable dementia.

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Reconstructed white matter fiber tracts of the brain, brainstem, and spinal cord. View through the mid-sagittal plane.

Grey is the new White? Not in the brain!

This Science Facts blog explains the difference between white and grey matter in the brain. Helping you untangle complex concepts and language in research studies!

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Neuron Superhighway

Neurons – a brain superhighway!

This month’s Science Facts blog focuses on the neuron and it’s role in basic brain function. Helping you untangle complex concepts and language in research studies!

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Dawn Mancuso, CEO, Hydrocephalus Association

Celebrating a BANNER Year!

With our eligibility to receive research funding through the CDMRP to launching our Adult Hydrocephalus Clinical Research Network, it has been a year of WINS.

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Rare Brain Condition Now Eligible for Department of Defense Research Dollars

The Hydrocephalus Association (HA) with its allies on Capitol Hill is celebrating this “first,” as hydrocephalus is named an eligible condition.

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Girl with hydrocephalus and Miss Tennessee

A Gift of Hope for Princess Ema

My family is going into this holiday season a bit more hopeful because of the great research progress that has already been made through thoughtful donations from individuals like you.

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Hope in Progress

We have made great strides in hydrocephalus research, from understanding the basic causes, to exploring alternative treatments, to reducing shunt infections. There is hope.

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Hydrocephalus Research Webinar

Upcoming Webinar: Hope in Progress

Tune in to the Hydrocephalus Association’s next webinar to hear the latest on hydrocephalus research, AHCRN, and HA funded research.

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Dawn Mancuso, CEO, Hydrocephalus Association

A Season for Thanks

In the spirit of the Thanksgiving season, Hydrocephalus Association CEO Dawn Mancuso shares her heartfelt appreciation to our highly dedicated and committed volunteers.

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Residents Prize in Hydrocephalus

Hydrocephalus Association Resident Prize Award

Hydrocephalus Association announces Resident Prize Awardee Jennifer Strahle, MD. for her research paper presented at the AANS/CNS Pediatric Section meeting.

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Brown Family Hydrocephalus Vision Dinner

The Greenville News Shares One Couple’s “Vision”

Tomorrow evening Craig and Vicki Brown will host the 2nd annual Vision Dinner in New York City. The event is featured in an October 10, 2014, article in The Greenville News titled, “Drive Owner Hosts Rare Disease Fundraiser.”

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Hydrocephalus Association Board Member Hosts Vision Dinner

Liv Osby of Greenville News interviews Craig Brown, senior vice chair of the HA Board of Directors, who, with his wife Vicki, will host the Vision Dinner in New York City to increase public awareness, stimulate research, and spark physician interest in specializing in hydrocephalus. Craig and Vicki have a son and a nephew with hydrocephalus.

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Board meeting of the Hydrocephalus Association

The Board of Directors Welcomes New Members

The HA Board of Directors meets to set strategic initiatives for 2015, bid farewell to two long-standing members and welcome five new members to serve.

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Long Island Hydrocephalus WALK Featured on Fios1 News

The Long Island WALK is featured on Fios1 News as it unites 1000 individuals to raise their voices for hydrocephalus awareness at their annual Hydrocephalus Association Long Island WALK.

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The Clay Matthews Challenge and a Boy Named Charlie

Robyn Shulman of ChicagoNOW writing with Scott Paul share the story of Scott’s son, Charlie, who has hydrocephalus, and encourage readers to support the Clay Matthews Hydrocephalus Challenge,

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Tempe in Motion features the Phoenix Hydrocephalus Association Walk

The upcoming Phoenix Hydrocephalus Association Walk is featured in the Tempe in Motion. The 5th annual WALK hopes to raise awareness and funds to support research into hydrocephalus and provide information about a disease that affects children, the elderly and even pets.

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Boston Mom Raises Hydrocephalus Awareness

Jennifer Martinage, Hydrocephalus Association Greater New England WALK Co-Chair, shares her family’s journey with hydrocephalus with her local paper.

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Top Medical Centers Co-Sponsor 2014 Houston Hydrocephalus Association WALK

Children’s Memorial Hermann Hospital & Memorial Hermann Mischer Neuroscience Institute are co-sponsoring the 2014 Houston Hydrocephalus Association WALK on Saturday, September 20, at the Houston Zoo.

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Five and Below Support Local Western NY Family in Hydrocephalus WALK

The Five and Below of Niagra Falls, NY, will donate 10% of dollars spent between August 31, 2014 and September 27, 2014, to Team Hope and the Western New York Hydrocephalus Association WALK on September 13, 2014 at Beaver Island State Park in Grand Island, NY.

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Salt Lake Businessman Puts His Company Behind the Local Hydrocephalus WALK

Professional Cable / Xavier Cables is a Gold Sponsor at the Hydrocephalus Association Walk in Salt Lake Friday September 12th.

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Nasal Spray for Hydrocephalus

Through the NOSE! Non-invasive Modulation of CSF Absorption

A proof of concept paper shows that drugs delivered through a nasal spray could one day provide a non-surgical way to manage hydrocephalus.

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Charlie and the LA Kings Sip Success

Two-year-old Charlie Pope, son of L.A. Kings Communications Manager Jennifer Pope, enjoys drinking chocolate milk from the Stanley Cup, won this year by the L.A. Kings. Now the players will support Charlie in raising hydrocephalus awareness and funds for critical research into better treatment options and a cure for his hydrocephalus.

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Codman Neuro Inaugurates Hydrocephalus Research Prize at ISHCSF

Codman Neuro, part of DePuy Synthes Companies of Johnson & Johnson, are providing the funding behind the new Bertil Romner Memorial Hydrocephalus Research Prize, a grant to support further research into Normal Pressure Hydrocephalus.

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Hydrocephalus Awareness Month 2014

Hydrocephalus Awareness MATTERS!

September is HYDROCEPHALUS AWARENESS MONTH! To celebrate the 30 days of September, here are 30 ways you can help raise awareness. We hope we hear you raise your voice!

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Hydrocephalus Association Website

Announcing our NEW Website!

During this month of Hydrocephalus Awareness, we are are proud to announce the launch of our newly redesigned website! See what’s new…

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One Cause of Hydrocephalus Linked to Genetic Function

Researchers at Case Western Reserve University have found that a malfunction in specific genes triggered hydrocephalus in mouse models. The findings were published in the journal, Neuron.

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Maryland Swim Team Raises Money for Hydrocephalus Research

The Little Falls Swim and Dive team in Bethesda, MD, hosted a swim-a-thon to support Team Hydro in their efforts to raise awareness and money for the Hydrocephalus Association’s Kate Finlayson Memorial Research Grant.

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Health Research Alliance Features HA in Their Member Spotlight

The Health Research Alliance is featuring the Hydrocephalus Association on their homepage as part of their new Member Spotlight feature. We are honored to be the member organization chosen for this week. Click here to view our member spotlight and learn more about HRA. The Health Research Alliance fosters collaboration among not-for-profit, non-governmental funders to […]

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Dawn Mancuso, CEO, Hydrocephalus Association

From the CEO: Sowing the Seeds of Exploration into Hydrocephalus

In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares insights into our recent Research Workshop, “Biomarkers in Hydrocephalus,” held in St. Louis, MO, in late April, which brought together over 30 of the world’s leading experts in biomarkers.

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Dr. Timothy Vogel Joins the Robert H. Pudenz Lectureship at Conference

Timothy Vogel, MD, will join the Robert H. Pudenz Lectureship scientific research panel at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, in Portland, Oregon.

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Power of the Hydrocephalus Movement

The Power of a Movement

The Hydrocephalus Association is the nation’s largest and most widely respected organization dedicated to hydrocephalus … and you are part of our success. As we prepare to make 2014 a year of unprecedented accomplishments, please help us by renewing your membership support.

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Hydrocephalus Research

Help us determine the direction of hydrocephalus research!

The Hydrocephalus Association is excited to announce our collaboration with the Hydrocephalus Clinical Research Network (HCRN) on research projects important to the hydrocephalus community. We would like your input on which areas of hydrocephalus interest you most, and what you would like to be researched. Take our survey!

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Dr. John Kestle to Return to Primary Children’s Hospital in June 2014

Dr. John Kestle is returning to Primary Children’s Hospital as a pediatric neurosurgeon and Vice Chair of Clinical Research, for the University of Utah Department of Neurosurgery.

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Innovative Analysis of Publicly-Funded Hydrocephalus Research

A recently published study analyzes hydrocephalus research funding from NIH over 10 years and concludes that more researchers are needed in the field as well as alternative funding sources if we are to move the hydrocephalus research agenda forward.

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The Results of a Strong Partnership

In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares the results of our Stakeholder Survey eliciting input from our members on the state of HA and direction for the future of the association.

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Update on the Adult Hydrocephalus Clinical Research Network

The Adult Hydrocephalus Clinical Research Network Planning Committee finalizes the policies and procedures for collecting data from adult hydrocephalus patients at its 6 clinical centers and reviews protocols for its first clinical study.

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