Raising Awareness…From Coast to Coast!

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Strength. Perseverance. Endurance. Spirit. Do these traits sound familiar?

Of course, these are all words that describe individuals touched by hydrocephalus. These words also describe Mark Paulissen and Mary Sodano. Their spirit of adventure and love for bicycling has spurred them onto a journey of a lifetime. Sponsored by Celsius drink company, Mark and Mary have challenged themselves to ride 2,500 miles across the country to raise awareness about hydrocephalus and to help raise funds for the Hydrocephalus Association (HA). Their ‘Spirit of America Ride for Hydrocephalus‘ is also their way of paying tribute to Mary’s niece, Madeleine Daraowiche, and the courage she’s shown having undergone seven brain surgeries for her hydrocephalus.

Mark and Mary left Tampa, Florida, on September 5then route to Denver, Colorado. The couple plan to track their adventures by using social media tools and a blog that gives the day-by-day account of their travels and travails. They are also raising money that will go to HA. Donations can be made online through their blog. Celsius has promised to match the first $3,000 in donations. If you would like to make a contribution, please click here.

We would like to congratulate and thank Mark and Mary for their bravery and commitment to Madeleine and the larger hydrocephalus community.

If you are interested in cheering them on along the route, contact Jennifer Bechard at support.liaison@hydroassoc.com . We are hoping to have cheering stations possibly organized by our support groups across the country.

The recap to date found on their blog:

Day 1 Recap: Long Distance Cycling Journey Challenges

Day 2 Recap: Meeting the Spirit of America Face to Face

Day 3 Recap: Biking Travels Offer New Friends Along the Way

Meet Mary: My Heroes Inspired Spirit of America Ride for Hydrocephalus

Meet Mark: Behind the Scenes Look at Preparing for Cycling Journey


 

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