Of course, these are all words that describe individuals touched by hydrocephalus. These words also describe Mark Paulissen and Mary Sodano. Their spirit of adventure and love for bicycling has spurred them onto a journey of a lifetime. Sponsored by Celsius drink company, Mark and Mary have challenged themselves to ride 2,500 miles across the country to raise awareness about hydrocephalus and to help raise funds for the Hydrocephalus Association (HA). Their ‘Spirit of America Ride for Hydrocephalus‘ is also their way of paying tribute to Mary’s niece, Madeleine Daraowiche, and the courage she’s shown having undergone seven brain surgeries for her hydrocephalus.
Mark and Mary left Tampa, Florida, on September 5then route to Denver, Colorado. The couple plan to track their adventures by using social media tools and a blog that gives the day-by-day account of their travels and travails. They are also raising money that will go to HA. Donations can be made online through their blog. Celsius has promised to match the first $3,000 in donations. If you would like to make a contribution, please click here.
- Read their story and find out why they ride for hydrocephalus.
- Join them on their adventure by following their blog.
- Follow them on Twitter through either of these hashtags:
- Follow them on Pinterest.
- Hear from Madeleine in her recent blog posting.
We would like to congratulate and thank Mark and Mary for their bravery and commitment to Madeleine and the larger hydrocephalus community.
If you are interested in cheering them on along the route, contact Jennifer Bechard at firstname.lastname@example.org . We are hoping to have cheering stations possibly organized by our support groups across the country.
The recap to date found on their blog: