Diagnosed at 79


Story Written by Author/Self

My name is Mira. I believe in early detection of hydrocephalus and here’s why!

In April of 2022, at the age of 79, I was diagnosed with normal pressure hydrocephalus (NPH). It was a complete shock because I had never heard of the condition and didn’t know that it existed.

For about two months prior to my diagnosis, I was experiencing symptoms associated with NPH. I felt very tired. I had severe headaches with pressure in the back of my head. I could not lift my foot because it felt like a heavy brick. I am a walker and usually very steady on my feet, but all of a sudden, I felt very unsteady. To be safe, I would hold onto a wall when I walked or another person that was walking with me. Being an active person, I realized that something was off with my well-being.

I met with my primary doctor, and she quickly sent me to a neurologist. The neurologist checked out my gait (my walking) and ordered an MRI. Within a few weeks, I had an appointment with a neurosurgeon who told me that it looked as though I have NPH.

My surgery was then scheduled for a couple of weeks later. The surgery would place a medical device called a shunt. The shunt drains the excess fluid, also called cerebrospinal fluid (CSF), from my brain to another part of my body. A few days after surgery my walking improved, and my headaches were gone. I feel very lucky that my doctors caught my condition early and were proactive.

I’m grateful that I had early detection and hope people learn from my story. The Hydrocephalus Association (HA) and its Community Networks, also known as support groups, have been a great support system and I have found it extremely helpful in guiding me through this experience.

Tell us about your journey with hydrocephalus!

Share your story of hope and perseverance with us! We will feature the amazing individuals in our community who are living life to the fullest regardless of their condition! Stories are reviewed by our staff and posted on our website and through social media. Stories should be no more than 800 words long. Click here to submit your story today!

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