Diane

Hi, my name is Diane.  My journey with normal pressure hydrocephalus (NPH) began two years ago when, at age 70, I began to experience symptoms.   My husband of 25 years, Alan, has been very attentive and supportive during this time.  He’s a psychotherapist and works out of an office in our home.   

In early 2023, I was undergoing physical therapy following a left knee replacement.  However, I plateaued in my progress and was struggling with severe falls and incontinence.  Initially, we thought it was from the knee replacement, but my physical therapist recommended I see a neurologist for further evaluation.    

After two visits, the neurologist suggested testing for possible NPH and referred me to a movement neurologist.   Although the movement neurologist didn’t think I had NPH, they recommended that I see a neurosurgeon specializing in NPH for a second opinion.  

The neurosurgeon carefully reviewed my history, listened to my symptoms, and observed my condition. He determined that NPH was a likely diagnosis and recommended a lumbar drain trial to assess whether a shunt could help. If the trial proved successful, the next step would be surgery to place a ventriculoperitoneal (VP) shunt.  

He issued an order for the lumbar drain trial.  After that very difficult and important test, the neurosurgeon confirmed a definitive diagnosis of NPH.  After the lumbar drain trial, I had another appointment with the neurosurgeon.  He is highly skilled and has had years of experience working with NPH patients.  I had surgery to place a VP shunt in November 2023.

I am recovering well since my surgery, though progress is gradual. After completing six months of physical therapy, I’ve moved from using a walker to a cane. While chores and other activities remain challenging, I’m seeing improvements as I get stronger through exercise, bit by bit.   

Alan and I have a lively 3-year-old dog who keeps us active, though I do regret that I am not yet able to take normal walks with him.   I can cook small meals a little at a time, and I’m grateful for the small moments – like sitting in the backyard with our dog.

Despite the slow pace of my recovery, looking back on my journey I’ve made significant progress.   Alan and I are proud grandparents of two lovely little girls, and my stepdaughter and son-in-law are truly beautiful people, both inside and out. 

Though it hasn’t always been easy there are blessings and challenges along the way.

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