As a father of a child with hydrocephalus, I’m committed to bringing much needed attention to our cause and finding new ways to treat this condition. Much like John Holter, the great toolmaker who developed the first commercially-viable shunt for his son, I’m willing to give all I have to see a medical breakthrough for William during my lifetime.
Since the mid-50s, we’ve seen amazing breakthroughs in nearly all areas of medicine: new vaccines and drugs … organ transplants … imaging technology … artificial joints … in vitro fertilization … the list goes on. Unfortunately, hydrocephalus has been mostly left behind.
While shunts do save and improve lives, you and I know they have an unacceptably high failure rate, causing parents like me to live in constant fear of malfunctions. For all of the health and financial burdens hydrocephalus places on individuals and society, far too little is being invested in research, especially when compared to diseases with similar burdens like cystic fibrosis and Parkinson’s disease.
That’s why, in 2009, the Hydrocephalus Association expanded our mission to include funding hydrocephalus research. We launched a Research Initiative to stimulate the research ecosystem, improve outcomes and quality of life, and study the root causes of the disease, with an ultimate mission of finding a prevention or cure.
As of November 18, 2013, we raised $2.5 million toward our $3 million “A Reason for Hope” campaign goal for research. We are well on our way, but the December 31 deadline is right around the corner. Will you help us reach our goal of $3 million by sending a generous contribution to the Hydrocephalus Association by December 31?
Together we will continue to advance the scientific research hydrocephalus deserves.
To check out our progress click here to read our Research Update.
Paul H. Gross
Co-Founder, Hydrocephalus Clinical Research Network
Secretary & Past Chair, Hydrocephalus Association
P.S. If you are a parent, patient or family member of someone living with the condition, I hope you will stand with me to reach our goal of raising $3 million for hydrocephalus research by December 31st.