Happening NOW: HA Attends the Rare Disease Day Conference at NIH

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CEO Dawn Mancuso & Research Programs Manager Ashly Westrick are attending the Rare Diseases Day Conference at the National Institutes of Health (NIH) in Bethesda, MD, today and tomorrow. This conference is providing a unique opportunity to hear updates and engage in conversations with leaders at NIH, DHHSFDA, DOD, the Social Security Administration, and other patient advocacy groups to find innovative ways to solve the challenges individuals with chronic and rare diseases face every day. The conference coincides with Rare Disease Day, today, Thursday, February 28, 2013 – a day where we recognize individuals living with rare diseases and conditions in the United States and around the world.

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