Hill Day and Rally for Medical Research
Federal funding for medical research is in jeopardy, threatening the health of all Americans, but especially those with chronic conditions like hydrocephalus. On September 18th, the Hydrocephalus Association will be partnering with Research!America as part of Hydrocephalus Awareness Month to bring together hydrocephalus patients and family members, along with thousands of other patient advocates, to meet with House and Senate offices on Capitol Hill in Washington, D.C. as well as in local District Offices all around the country. Our goals include:
- Urging Congress to make funding for the hydrocephalus research a national priority for the federal government.
- Raising awareness about the challenges of living with hydrocephalus.
- Spur progress, inspire hope and save more lives with increased investment in medical research by NIH.
Participants will be meeting with Senators and Representatives from their home state and district. Participants should plan to be available for these meetings on Thursday, September 18th from 9:30 am – 4:30 pm EDT. Unless otherwise requested, participants will be placed into groups reflecting the spectrum of medical research stakeholders (researchers, patients and family members, clinicians, and other patient advocates) and grouped according to state.
Participants will receive their meeting schedule the day before the meetings (September 17th), unless you request to receive it earlier.
Registration for the Rally for Medical Research events in Washington, D.C. is completely complimentary and includes both the advance and the on-site training sessions, the reception on Wednesday evening, the Kick-Off Breakfast, and assistance in setting up your appointments with your Congressional offices. Participants must fund all other expenses, including their travel to/from Washington, D.C.; transfers; hotel accommodations; and other meals.
Registration to participate in the Rally for Medical Research in local District offices is completely complimentary and includes advance training and assistance in setting up your appointments with offices in your area. Participants must fund all other expenses, including their travel to/from District offices, parking, hotel accommodations (if needed), meals or any other expenses.
Visit our Rally for Medical Research page on our website for detailed information.
HOW TO REGISTER
If you can join us – either by coming to Washington or by visiting your Congressional representative(s) in a local District office – click here to REGISTER.
Friday, September 5th, 2014