CSF Shunt Entry Site Trial

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The CSF Shunt Entry Site Trial has reached 75% enrollment!

The CSF Shunt Entry Site Trial has reached the 75% mark in patient enrollment – that is 385 patients enrolled! Lead investigator, Dr. William Whitehead, expects to complete enrollment by December 2018.

A huge THANK YOU to all of the families involved with this trial!

About the trial:

In 2014, the Patient-Centered Outcomes Research Institute (PCORI) awarded a $1.8 million contract in support of a Hydrocephalus Clinical Research Network (HCRN) randomized control trial to determine the most effective entry site for placing a shunt. The Hydrocephalus Association (HA) partnered with HCRN to involve patients and caregivers in the initial study selection and development.

The most common treatment of hydrocephalus is the placement of a shunt. There are two possible entry sites which surgeons use to place the shunt, but it is unclear which, if either, entry site is better. The CSF Entry Site Trial is using randomized trial methods to compare the two possible entry sites.


About PCORI:

The funding organization, PCORI, is a nonprofit, nongovernmental organization established by Congress under the Patient Protection and Affordable Care Act of 2010. PCORI aims to fund research that is most relevant to patients and its funded contracts require involvement by the patient community throughout the entire lifecycle of a project. To learn more about how PCORI is putting patients at the center of research CLICK HERE.


6 Comments for : CSF Shunt Entry Site Trial
  1. Reply

    My concern, probably like many others who are “pre-shunt”, is when we will be able to perform laser surgery on us whose only path to relief is a shunt?. I ask this in view of the huge percentage of patients who must succumb to additional “rebisin” surgeries.

      • Sara
      • March 28, 2018

      I have been wondering the same thing ever since I was younger, thinking with technology advancing soo quickly they would have already come up with tge idea with the laser.

    • Kathie Kerr
    • February 23, 2018

    How do I sign up? I live in kansas city, mo

    • Clary Garcia-Ramos
    • February 14, 2018

    I had a Shunt done recently like to find out about other people in the same condition Seminars, I live in Miami Lakes, Florida

      • Ines Schlegel
      • February 15, 2018

      Hi Clary, If you go to our Community Network Page, you can join the Facebook group for your area! Here is the link: https://www.hydroassoc.org/cause-view/community-network/

      • jacque enderle
      • February 16, 2018

      Hey Clary, I’m new to this site but also have VP shunt and live in Largo,FL which is south of Clearwater. If you would like you can contact me at my email which is jmenderle@yahoo.com and we can see what we have in common. I’ve had my shunt with numerous revisions for over 30 years and am 62 years young. Look forward to hearing from you. Jacque

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