Hydrocephalus Awareness Month begins this Sunday. There is no better way to kick off the month than with gratitude to the recent awareness being raised about hydrocephalus with some of today’s brightest stars. These individuals include Justin Timberlake, Taylor Swift, Alison Sweeney, Dr. Lauren Streicher, Kasey Kahne, and Dick Wagner. Hydrocephalus affects an estimated 1 million individuals in the United States, from infants to seniors. There is no cure and the only treatment requires brain surgery. Despite its prevalence, there is still not a lot of awareness in the general public about the condition. As a result, research dollars earmarked to find better treatment options and a cure are scarce. This leaves individuals living with hydrocephalus to face a lifetime of brain surgeries and other challenges. Support from highly visible celebrities and athletes not only motivates hydrocephalus patients to continue their fight, but also brings greater exposure and more understanding about this life-altering condition to the general public.
Justin Timberlake stopped his media tour to spend some time with Giana DiLascio, 13, when she and her mother were picking up tickets to his concert in downtown New York City. The Huffington Post IMPACT reports that after the encounter, Giana was approached by numerous news outlets for interviews. What did she learn? For the first time, this was her opportunity to share her story and her struggles living with hydrocephalus to help other teens like herself. Read the article.
This past Tuesday, Taylor Swift played to a sold out crowd in Sacramento, California. Prior to hitting the stage, Alexis Rioccola had the opportunity to meet Taylor and spend time with her in a private meet and greet. She won tickets to the meet and greet and concert from her local radio station, Froggy 92.9, part of the Sonoma Media Group. Listen to the story. Under the banner, click the play button in the green rectangle.
Alison Sweeney, best known for her role as Sami Brady on Days of Our Lives and as the host of The Biggest Loser, will serve as the Special Guest in Attendance at the Los Angeles Inaugural Hydrocephalus Association WALK on September 29, 2013. She will have the opportunity to meet hundreds of individuals living with hydrocephalus and their family members as they raise funds to support critical research initiatives and the education and support programs of the Hydrocephalus Association. The local chairs of the event could not be more excited to have Alison join the WALK and meet members of the hydrocephalus community. Register or donate to the WALK today!
Dr. Lauren Streicher, Associate Clinical Professor of Obstetrics and Gynecology at The Feinberg School of Medicine at Northwestern University in Chicago, is considered a thought leader in her field. She has appeared in numerous national and local media outlets discussing all aspects of obstetrics and gynecology. She currently is seen regularly on ABC’s Windy City Live, the number one rated talk show in Chicago, and is a recurring guest on The Dr. Oz Show, The Today Show, and Good Morning America-Health. Consistently recognized as a Chicago-area “Top Doctor” by Chicago Magazine, Streicher was honored to serve as the honorary chair at the 9th Annual Chicago Hydrocephalus Association WALK which took place on August 18, 2013. She stated she was proud to advocate for those affected by hydrocephalus, as she has experienced the condition firsthand in her medical practice.
Rylee Durham, 12, was awarded her wish to meet her favorite NASCAR driver, Kasey Kahne, as part of the eighth annual ESPN SportsCenter “MyWish” series. Rylee spent the day taking a VIP tour of the Daytona International race track and then spending time with her idol, which included a drive around the famous track. Read the article. Watch the video.
Dick Wagner, former lead guitarist for Aerosmith, Alice Cooper, and Kiss, was diagnosed with Normal Pressure Hydrocephalus (NPH) and treated with a shunt, after being misdiagnosed for a period of time. This is a situation known all too well to many individuals living with NPH. He now travels around the country speaking about his life and his experience of living with hydrocephalus as he promotes his recently published book, NOT ONLY WOMEN BLEED, Vignettes from the Heart of a Rock Musician. Mr. Wagner also joined the 7th Annual Detroit Hydrocephalus Association WALK on Sunday, August 25, 2013, where he entertained the crowd with his musical talent.
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