NPH and Caregivers
A normal pressure hydrocephalus (NPH) diagnosis is complex and frustrating. Normal pressure hydrocephalus symptoms like gait disturbance, mild dementia and incontinence also occur with other conditions that affect people over 60 years of age often making diagnosis confusing. These conditions can also coexist with hydrocephalus, further complicating diagnosis and making treatment difficult.
For those living with NPH and their caregivers, staying informed about the condition is essential to managing care. The challenges of living with a chronic illness or caring for a chronically ill parent or spouse are stressful for all involved. Adults with hydrocephalus may resent their dependence on a spouse, child or other family member. Acknowledging emotional responses to this chronic and potentially disabling condition can help all those involved.
The Hydrocephalus Association provides essential tools and resources that enable you to have more control of your life. We provide the following documentation and can help connect you with resources for questions or issues you may encounter.
- About NPH – A Book for Families
- Shunt Systems Fact Sheet
- Durable Power of Attorney
- Second Opinions Fact Sheet
- Questions for your Doctor: Adults with Normal Pressure Hydrocephalus (NPH)
- Ask the Expert Series – Normal Pressure Hydrocephalus (NPH)
Connect with the right healthcare professional to ensure excellent care for all of your clinical needs. We offer Physician Directories as a resource for both families and clinicians.
What are the topics we are receiving the most inquiries on right now? Through blogs, articles and videos, we provide you with information from medical professionals and Hydrocephalus Association support staff on the topics that are important to you.
Be informed and current about hydrocephalus by tuning into interactive, free webinars on a variety of topics.
Connect with people who are living with normal pressure hydrocephalus, their caregivers and loved ones. Visit these portals:
Reach out to other organizations and hospitals for valuable information and support for individuals living with chronic medical conditions.