“On Hydrocephalus Advocacy Day, May 30, 2006, 120 hearty souls braved the heat in Washington, D.C. on a mission to ask our elected representatives to devote more federal support to hydrocephalus research and treatment. I was moved by everyone’s vibrant courage. Though most of you had never pursued legislative advocacy before, we did amazing work together, meeting with the staff of 48 senators and 51 congressional representatives. We reached almost half of the Senate members and over 11% of the House representatives. Fantastic!” Hydrocephalus Association Newsletter, Summer 2006.
Our first Advocacy Day event was held in 2006 during our 9th National Conference on Hydrocephalus in Baltimore MD. As part of this year’s 12th National Conference on Hydrocephalus, all attendees will participate in another Advocacy Day in Washington, DC.
Experts will provide workshops and training at the conference on how to talk to our representatives, how to make them aware of hydrocephalus, and how to encourage them to support hydrocephalus research.
On Thursday, June 28, 2012, conference attendees will travel to Washington, D.C. to meet with their representatives. Transportation will be provided from the conference site to DC and back.
Our primary goal for this year’s advocacy day is to ensure the federal government is investing adequate funds to accomplish the following:
- To understand the breadth and depth of the impact of hydrocephalus affecting more than one million Americans;
- To make hydrocephalus research funding a priority for improved treatments and a cure;
- To support all those affected with hydrocephalus with appropriate resources and programs.
Families, friends and professionals of all ages are welcome to join us on this historic day. Visit the registration page to register and learn more about the conference and this event.
Together, let us make a statement and speak in numbers!