Advocacy Day in Washington, DC: Climbing Capitol Hill for a Cure!

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advocacy day 2006 on the hill

“On Hydrocephalus Advocacy Day, May 30, 2006, 120 hearty souls braved the heat in Washington, D.C. on a mission to ask our elected representatives to devote more federal support to hydrocephalus research and treatment. I was moved by everyone’s vibrant courage. Though most of you had never pursued legislative advocacy before, we did amazing work together, meeting with the staff of 48 senators and 51 congressional representatives. We reached almost half of the Senate members and over 11% of the House representatives. Fantastic!” Hydrocephalus Association Newsletter, Summer 2006.


advocates on the hill

Advocacy Day 2006

Our first Advocacy Day event was held in 2006 during our 9th National Conference on Hydrocephalus in Baltimore MD. As part of this year’s 12th National Conference on Hydrocephalus, all attendees will participate in another Advocacy Day in Washington, DC.

Experts will provide workshops and training at the conference on how to talk to our representatives, how to make them aware of hydrocephalus, and how to encourage them to support hydrocephalus research.

advocacygirl

Advocacy Day 2006

On Thursday, June 28, 2012, conference attendees will travel to Washington, D.C. to meet with their representatives. Transportation will be provided from the conference site to DC and back.

Our primary goal for this year’s advocacy day is to ensure the federal government is investing adequate funds to accomplish the following:

  • To understand the breadth and depth of the impact of hydrocephalus affecting more than one million Americans;
  • To make hydrocephalus research funding a priority for improved treatments and a cure;
  • To support all those affected with hydrocephalus with appropriate resources and programs.

Families, friends and professionals of all ages are welcome to join us on this historic day. Visit the registration page to register and learn more about the conference and this event.

 Together, let us make a statement and speak in numbers! 

B&W Group on the Hill

4 Comments for : Advocacy Day in Washington, DC: Climbing Capitol Hill for a Cure!
    • Susan Andersen Moore
    • March 1, 2012
    Reply

    For all of us who are not able to attend the upcoming Hydrocephalus Conference, how can WE be involved with Advocacy Day too, and show our ‘Virtual’ support? We need to involve more people within our communities to understand the impact Hydrocephalus has on our lives, awareness is critical for funding for research & new treatments, but also for educating our children with Hydrocephalus, and keeping them safe within our community as well. Any suggestions?

      • tom
      • March 1, 2012
      Reply

      Those are all excellent points Susan. As the date gets closer we will let you know details on how to take ‘virtual’ part in Advocacy Day. Stay tuned.

    • Anna
    • March 1, 2012
    Reply

    What are the paper signs that everyone is holding?

      • tom
      • March 1, 2012
      Reply

      Everybody is holding a poster stating their age, number of surgeries and name in order to make a statement.

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